First post, and it’s 3am
So just a quick blurb before I attempt more sleep.
I’m gonna use this blog to get out my thoughts as I walk this quest of balancing a diagnosis we ran from and the possibility of still facing a mystery.
I’ve been treated as a CF patient since a baby without the actual diagnosis. Then at 14 we removed part of my left lung. Now I’m getting sick again when we thought the surgery was the fix it solution.
So some more CF testing in the morning.
I’m all about positive thoughts and keeping high spirits. So while this all sucks, I know I can beat it. I’m strong as hell and will fight for every moment.
It takes a special person to live a dying life, but some of the best moments have been ones I’ve been afraid would be taken away too soon.
The song live like you are dying, is how I have been able to live my entire life. Full of love, laughter and never letting a moment slip by.
