Woop! It’s HPN Awareness Week! HPN stands for Home Parenteral Nutrition and it’s home my daughter gets her nutrition, making her one of about 250 people in Aus and NZ in the HPN club. It involves regular blood tests, a sterile area within our home to do connections and disconnections, weekly deliveries of stock, supplies and the PN itself, a special fridge, a whole team of doctors, nurses, pharmacists, and others, and a lot of special training for me. We’ve been doing it for three years now and for us it’s almost normal, if donning mask and gloves and accessing a line that goes to my daughter’s heart each day can be called normal. If you’d like to learn more there are new resources going up at www.pndu.org or just shoot me a question. You never know when HPN might become your life line too. xx . #homeparenteralnutrition #pndu #parenteralnutriton #parenteralnutritiondownunder #hpnawarenessweek
