#ponderstamp

[cassolotl]

@ponderstamp replied to your post:fangirlinginleatherboots: please remember that...

I think I need this. The fact I don’t feel like I have enough bad stuff to reblog it *probably* supports that??

Quite possibly! <3

[cassolotl]

@ponderstamp replied to your post:Preparations for August

ssssqqueeeeeeeeeeeee! I be at Bicon! Hope you do come :)

I hope so too! I've wanted to go for ages, and this year I've got a close friend who wanted to go too, so we can stick together and look after each other. The deciding factor will be what my health is like nearer the time.

[cassolotl]

ponderstamp replied to your post:appear.in community

I don’t know if you can get it on the internet, but there is a telly program from vienna where they just set up a camera riding the trams, similar sort of ‘non shouty telly’ sort of thing.

Oooohhhh so pleasing! More "boring" TV, yes please. :) I find it really calming. Maybe I'll start a webcam channel and just turn it on and point it at my knitting whenever I knit. :D

[cassolotl]

ponderstamp replied to your post:totally cool if you don't want to answer, but how...

Thankyou :) I have years worth of clear blood tests, but unfortunately the depression diagnosis seems to cover anything, with the implication that depression meds/ CBT should fix it. Bah. It may not be CFS but *something* is going on. Ta :)

That all sounds very frustrating and mysterious. I hope you are wiggling ever onwards with self-diagnosis, and I hope my strange wurblings helped.

[cassolotl]

totally cool if you don't want to answer, but how did you get to CFS diagnosis, whether you have or have not managed to get one from medical establishment? It seems to be one of those things that some docs don't 'believe'in, or only for bed-bound people, and I am ticking an increasing number of the boxes whilst still being able to do stuff somedays, but then I PAY, and basically want to know a bit more about when it isn't a matter of being unable to *ever* get out of bed. Also yay for healing :)

Eh, “chronic fatigue” got written on a piece of paper ages ago. It just means I’m tired all the time and they don’t have a better diagnosis for me. I don’t have a letter with it on because no one has ever asked me to produce one to “prove” I have it.

My doctor said that basically it’s considered a psychological condition, and what I took from that is, it’s not that she thinks it doesn’t real - it’s just that she couldn’t find a cause, and when that happens they tick the “psychological” box.

And yeah, I am not bed-bound most of the time. I become bed-bound if I overdo it, and for me the bar is much much lower. I get disproportionately tired.

Edit: Wow did I fail to answer the question there! I just had to go to my GP a few times saying "I'm still unbelievably tired, can you test me for anything else? Can you sign this bit of paper saying I'm too ill to work so that I can claim benefits?" You need to be tired for over 3 months for it to be considered chronic (as opposed to acute). It was all very vague, I saw no specialist, it was just my GP.

[cassolotl]

ponderstamp replied to your post:I'm in a hospital room

Have ony had G.A. for a short procedure, but thought I’d add my voice to the ‘it went fine’ camp. talking to nurse to distract self from cannula then-gone! Then woke up aftrwards like waking up, quite abruptly, but not unnaturally. Thinking of you :)

Thank you, this helps. :)

[cassolotl]

Hi Cassian, found you from poly in pictures, Have only just made a tumblr so this is my first message sending :) Best of luck for Tuesday.

Awwww, thank you! :) And welcome to Tumblr!