#sarcoidwontwin

[sarcdiva]

Hello Everyone, I just want to thank you all for the prayers, calls, emails & love shared with me during my time at the vacation spot. I've had my follow-ups (virtually of course). A little disappointed ☹️☹️ by some things..well maybe a lot disappointed and saddened, the best that I can say is #ButGod I'm still here so I just have to be a little anal about more things, but my Home Team is right on point with me and have my back. I've had a few more changes and am so glad that I got #ContinuedConfirmation of my prayers to be surrounded by people who genuinely care for & love me and that I'm not just a paycheck to the ones who are here to help me. So it's time for this disease to take a backseat because #SarcoidWontWin I am surrounded by #WarriorsForLife who know the #PowerOfPrayer to help me get to and stay #DivaStrong The tears still come but I know that I got this & God got me. 💜💜💜💜💜💜🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾🦋🦋🦋🦋🦋🦋🦋❄️❄️❄️❄️❄️ #PurplePower #IHateSarcoidosis #ADivasWorth ❤️🌹~All My Heart~ 🌹❤️ (at Diva's Suite) https://www.instagram.com/p/Cnz8GBXpwVXDrVpXKB3fnGrc3lSBBTVlFvBd-40/?igshid=NGJjMDIxMWI=

[sarcdiva]

At my vacation spot....but at least I'm not in ICU. Sarcoid rearing is ugly head, but I'm where I need to be to get better & back on track. 🙏🏾🙏🏾🙏🏾🙏🏾💜💜💜💜💜💪🏾💪🏾 #WarriorForLife #SarcoidWontWin #DivaStrong #ADayInTheLife (at Mercy Fitzgerald Hospital) https://www.instagram.com/p/CnZr9FsOgj9vFQ3MUGrAl9QRaSPL-UsS3eFynM0/?igshid=NGJjMDIxMWI=

[sarcdiva]

You know you are loved and truly cared for when everyone from your caregiver to your nephew want to make sure that you are safe. I have everything I need on & around the bed, snacks and drinks included and the last person to make sure I was in /on the bed was my Munchkin. We were playing computer games when I had to refill my cups and since we video chat, he could see that Ti-Ti was actually filling up the cups and bottles and he finally said good night when he could see blue walls & my table. This year has truly been a rollercoaster ride that I wouldn't wish on anyone #ButGod The storms may be raging with the billows tossing high, yet I'm still blessed and will continue to be a blessing to others. God assigns the tests and trials to His strongest soldiers because He already knows you can handle it. He has already qualified you for the test. We just have to keep our hearts and minds in prayer & praise mode and remember that #WeFightToWin #SarcoidWontWin there are too many people praying & fighting for your defeat. Progression may slow me down but it will not stop me. 💜💜 ~Sarcoid Diva~💜💜 #BlessedToBeABlessing #DivaStrong #ADayInTheLife #SarcoidWarrior #AnxietyWarrior #WarriorsForLife #PurplePower https://www.instagram.com/p/CjhKGQQN6nwYR1KJDFjKUdOx-ztusbdA4I5muY0/?igshid=NGJjMDIxMWI=

[sarcdiva]

Today was definitely a full & fun filled day and I really needed it. The morning started with exploring with my aide to help her continue to learn the area and we ended up in an expensive thrift store and to soothe the pain we ended up going to eat. As we're leaving, walking through the parking lot to the car, I run into my 2nd family...we briefly catch up and I was told to stop breezing through social media so they can keep track of a sister. We headed for home with me showing her yet another way to go. My next adventure started with my Munchkin, I missed our 2nd Game Night with him & PopPop earlier this week (the 1st one was 3hrs). We talked with PopPop to say Happy Father's Day and quickly got off the phone since it was His Day to spend quality time. I told Munchkin to give me a 15minute head-start so I could get situated for Game Night with His Ti-Ti. Let's just say we had a 7hr Game Night - phoney texts, scary movies, funny videos, tower of fun, Lamborghini Road Trip (not a good driver), Lamborghini Police Car, Road Rage, and Police chases (He put me out on the side of the road to run from the cops!!!!!) That's why he ran out of gas. He then puts me back in the car and still running from the cops. This time I'm making all the sound effects trying to catch and arrest this Lamborghini and everytime I catch him, he changes the rules. Then we finished as a family all making funny faces with Thumbalina and Mommy. Those that know me knows that my phone never dies....I am down to 3% and the phone is hot 🥵🥵🥵. Now to plug everything in and get ready for tomorrow's....oops later today Game/Ti-Ti Time. I am truly blessed with the bond that I have with my babies (and I'm the only one who gets to call them that). I have a strong bond with both of them that began with video chatting with me from Day 1. They make sure that Ti-Ti doesn't miss anything and I wouldn't have it any other way. Sometimes, I wish I could split myself in to 2 because they don't like to share. #BlessedBeyondMeasure #ButGod #FamilyOverEverything #SarcoidWontWin #DivaStrong #DivaLove #IFightToWin #PurpleAndOrangeWarriors https://www.instagram.com/p/CQXjneEH6umYurGnH81SMLWr_uGbC7Ya9WWXOk0/?utm_medium=tumblr

[sarcdiva]

So Glad I made, I made it through, In spite of the storm & Rain, Heartache and pain, I'm still alive declaring, I made it through I didn't lose. Experienced loss at a major cost, but I never lost faith in you - My Testimony, Marvin Sapp Thanking God for waking me up this morning and His Keeping Power as I celebrate my 47th Birthday. A day that many doctors didn't think I would see, #ButGod He didn't have to do it but He did. I'm going to keep living my life for Him on purpose. This disease did not win, it only increased the faith in me and my circle of family &friends. #SillFighting #SarcoidWontWin #DivaStrong #CelebratingLife #ButGod https://www.instagram.com/p/CPJiijtH4wOO-FHSgdru_Y-8G7dC5YgN81_w-Q0/?utm_medium=tumblr

[sarcdiva]

I truly enjoyed my day. Today it was all about me, even though my body is still adjusting to being without pain meds (don't ask). I was able to get out and play (yes, I was double masked the whole time) I shopped until I was getting ready to drop and even my wallet was tired because that strap popped. Seriously, look at the picture....that's when we knew it was time to come home. You know it's a long day when you leave the house when your aide comes and by the time you come home and try to get situated, it's time for her to go 🛍️🛍️🛒🛒🏷️🏷️👗👗🚗🚗🚗💸💸💸 I'm truly trying to start my birthday month with no worries. I've been down this road before and still came out on top. Shopping and doing creative things is truly my outlet. One trip down, another is coming to me...probably before the weekend is over & I'm getting ready to order my additional masks now.... (doctor's orders) but I have to be cute. #YouDontHaveToLookSickToBeSick I have to be #Divafied #Divalicious #DivaStrong #SarcoidWontWin (at Sharon Hill, Pennsylvania) https://www.instagram.com/p/COTpyIkn_QoIxqRDJ2kGmwCrVxPeVludM1wGHk0/?igshid=1ppm6mg12igcj

[sarcdiva]

Back to being #Divalicious #Divafied and doing me #DivaStyle I'm not a girly girl but there are just some things that I had to take back from Sarcoid and Hellgate. Getting back to being me. Feel so much more like myself. You know it's bad when even the doctor asks when are you getting your nails done. #SarcoidWarrior #SarcoidWontWin #IFightToWin #IWearPurpleForMe #TheresNoPlaceLikeHome #TheBestIsYetToCome #InvisibleIllness #ChronicIllness #ChronicPain #SarcoidosisAwareness #WeNeedACure #MentalHealthAwareness https://www.instagram.com/p/BuDXycoHP4LcJFIIWE9CDz_06y82prHRJliggo0/?utm_source=ig_tumblr_share&igshid=x9cddclbl4u4