#adivasworth

[sarcdiva]

Happy Heavenly Birthday Mommy!!! 😘😘😘💜💜💜 Missing my greatest supporters. Nothing & no one can replace your parents. With all that is going on right now, I wish for just 1 more long talk with some hugs & comfort attached. 😞😞😞😞 Just having a moment, sometimes too many things go on all at one time. #MissingYou #SarcoidSucks #ADivasWorth #DivaStrong #WarriorForLife (at Diva) https://www.instagram.com/p/Coo3dywu4O09wM_GftFRd6e2PRmauGMc07ImDc0/?igshid=NGJjMDIxMWI=

[sarcdiva]

Hair done.... ✔️ Check Nails done.... ✔️ ✔️ Check and redone Outfit.....✔️✔️✔️ Majority Rules (only missing shoes) Prepared for my date ✔️✔️✔️✔️✔️✔️✔️✔️Always whenever he asks. I promised my Home Team Family that I would celebrate me more especially the small stuff because all blessings are for my good. It was also unexpected to hear that I unknowingly blessed others just by being me. This year got off to a very rocky and rough start. I was already dealing with depression & anxiety on a high level due to the progression of Sarcoidosis and it's ugly tricks and for that to be followed by making the toughest decision of my life with my family didn't keep the gray people away, it just brought them back out in full force. I'm not a quitter and giving up isn't in my nature. Sometimes I need help getting out of my moment and that came through with #ContinuedConfirmation that God spared my life for a reason, my dash is not done yet. So as I look back over my life, I can truly say that I have been wondrously blessed with family I never would have met #ButGod I may not enjoy the circumstances of how or why but so grateful to have them in my life as we do battle, encourage, inspire & uplift each other. 24hours to Birthday 48. Thank you God that I don't look like what I've been and continue to go through. I'm ready to take these next few days by storm and have fun......💜💜💜💜💜💜💜💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾💪🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾🙏🏾💔💔🎈🎈🎈🎈🌹🌹🌹🌹🎊🎊🎊🎉🎉🎉🎉🦋❄️🦋❄️🦋❄️🦋❄️🧸🧸🧸🧸🧸 #ADivasWorth #DivaStyle #Divafied #Divalicious #SarcoidWarrior #FibroWarrior #AnxietyWarrior #AutoimmuneWarrior #WarriorForLife #PurplePower #IWearPurpleForMe #FamilyOverEverything #PowerOfPrayer #ButGod #ADayInTheLife IFightToWin #LoveConquersAll https://www.instagram.com/p/CdxW6VruKJCj_vxUA0aKcpbapgsUz5qEtgfAMM0/?igshid=NGJjMDIxMWI=

[sarcdiva]

Thank you so much Simply Bold Nails @nailsbyher_215 for working with me doing a home visit to help me get #Divafied Even though it was our first meeting, I truly enjoyed how comfortable you made me feel and loved playing in the stickers and rhinestones. I look forward to our next adventure when the time comes for a refill. Next step is finding a braider/stylist that does home visits so I can get my hair done & build back my hair & wig collection. I already get the comments that I don't look sick, but at least I can feel better about being sick. Sometimes it's the little things that mean so much. #Divalicious #ADivasWorth #SarcoidWarrior #AprilIsSarcoidosisAwarenessMonth #PurplePower #AnxietyWarrior #WarriorsForLife https://www.instagram.com/p/CcBG5GgO4za6DxNtFnml-DkoRr9ACHGfcV1hFE0/?utm_medium=tumblr

[sarcdiva]

I've been going over conversations that I have been having for the past few weeks with fam, friends, medical team and my home health advocates. In light of recent events, I'm updating my medical records and making sure all of my emergency contact information is in place. As we were going through trying to make sure all medical issues documented, everyone was running out of space on their various systems. Even I was having trouble since I had to change phones to upgrade to changing technology. It was then that old feelings began to creep in when the comment was made "How can one person go through all of this?" #ButGod I was immediately taken back to April 7, 2007 when we thought receiving a diagnosis of Sarcoidosis was going to be easier to handle than the other medical possibilities. Boy, were we wrong & definitely not prepared for my insides to look more than 20-30yrs older than my outside. This presented an obstacle when discussing treatment. Back then the damage to my lungs were already extensive and due to the damage was rated at a Stage IV so most people only live 2-4years after diagnosis. Based on what they were reviewing in the file, the recommendation was to provide palliative care and pain control assuming age was in 60s-70s only to turn the page and realize I was in my early 30s. #ButGod Plans then changed to be aggressive with treatment & prayer to be on one accord.Today as we are updating, finally everything is entered completely, but still reads as end-stage, they are shocked to realize the devastation of this rare debilitating disease called Sarcoidosis. Some had heard of it but only mild cases or cases of famous people who look fine. Even family is stunned for a minute but know God kept me here for a reason. I feel so blessed again because this team also stopped for a word of prayer for us to be on one accord. Once again #ButGod and I'm a blessed Snowflake Butterfly 🦋❄️❄️❄️🦋 💜💜💜💜 #PurplePower #DivaStrong #ADivasWorth #WarriorsForLife https://www.instagram.com/p/CbHyQcLuRjI30ecycWATQDvByy-tEPBtD75T5g0/?utm_medium=tumblr

[sarcdiva]

I really truly enjoyed getting my hair and nails done by @major_grabbies on Thursday. I finally was able to find a stylist that wasn't family that I could truly mesh with that also made house calls for disabled clients only. I was able to explain my hypersensitivity with my head and she took great care. There were several times that she wanted to stop especially when she approached the areas where the lesions in my brain are located (because of the temperature change), my very deep & tender soft spot & the way my scalp moves like a baby's would. I just kept explaining, encouraging her that I was fine & had enough pain meds on board to get me through. She also wants to make wigs for when the hypersensitivity or Sarcoid issues are too great..just like my 2 sistas would. I was surprised at the speediness of getting the appointment (2 days after our conversation after saying she has several bookings). Best of all it's not often that both Daddy & Rufus like my hair.... especially in braids so you know she gets props.....Daddy even gave her a thumbs up and said to tell her thank you so much. Sometimes people forget that even though a person is sick, getting dressed up with your hair & nails done or a fresh cut can change your outlook about what you are going through on a daily basis just fighting to live. They just see the outside and say #YouDontLookSick so you must be faking your symptoms or the diseases. Many know how hard I fight everyday to always keep a smile and a positive outlook so this was truly a gift to myself. They also know the strength it takes for me to get my nails done and the strength for me to sit for micros.... And I sat for both at the same time. I know @major_grabbies is going to fit in and become like family because after completing my hair, she watched me fill up my cup, I thanked her and watched her get in her car and her final instructions were to go to bed. 💜💜💜🦋🦋🦋❄️❄️❄️💪🏾💪🏾💪🏾🥰🥰🥰 #Divalicious #DivaStyle #ADivasWorth #Divafied #PurplePower #StylistForDisabled #CaringHands #BlackOwnedBusiness #YouDontHaveToLookSickToBeSick https://www.instagram.com/p/CIrdXp8HNKmyPJ2-iHL4hZTrSVC2oZqdgcbP1w0/?igshid=krj8af6x1pva

[sarcdiva]

#ButGod He paid the price so that we could live. It was a great debt that He didn't owe, it was the greatest gift we could receive because there is no way that we could pay it without Him. He exchanged His life for ours. And He's still showering us with gifts daily. All I can say is Thank you God for your gift of life and all your many blessings, and because I'm blessed, I can bless somebody else. It the gift that keeps on giving and doesn't take away from anything that You have given me. This is one lesson that many fail to learn and in doing so, they block the blessings and many rewards that they could receive. #BlessedToBeABlessing #WarriorsForLife #ADayInTheLife #ADivasWorth https://www.instagram.com/p/CCThr9nHotryEa4EZ8qrTRHKtgHcFW2Y4G-DgY0/?igshid=2tucuw3l9b4o

[sarcdiva]

So proud of myself, dinner cooked, put in plastic containers, dishes washed, dried & put away, straightened up kitchen to prepare for grocery shopping, shopping list made. Now the oxygen is back on so when I catch my breath, then I'll eat. It may take me a minute & may not be the right way but its done. Pork chops with onions & garlic, string beans, and olive oil & garlic noodles. #ASistaCanStillBurn #SarcoidWarrior #ADivasWorth #ADayInTheLife #DivaStrong #PurplePower https://www.instagram.com/p/B7RvvR6HqYf-Hpo1T7MH6BrNmP8kUt0cNiZaOQ0/?igshid=yrb4ceodmt06

[sarcdiva]

Still on my own so dinner tonight is stir fry with shrimp and broccoli and I still have some cheesesteak left. Unfortunately this new flu shot and the weather has me a little discombobulated. #ButGod got me so I know I got this. #ADivasWorth #ADayInTheLife #DivaStrong https://www.instagram.com/p/B59BR_VHs3dRnMJUpHvXXIzUZRJJb32u1a_AEw0/?igshid=5bd2ldvezmym