Healthy people will never understand what a massive achievement it is to do your laundry AND cook yourself a meal in one day.
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Healthy people will never understand what a massive achievement it is to do your laundry AND cook yourself a meal in one day.
i’m gonna hold your hand with a glove on when i say this
when disabled/chronically ill people tell you they can’t do something, then that is not your cue to tell them that they can actually or that they’ll always find an excuse if they’re looking for one.
when a disabled/chronically ill person says they can’t do something, sometimes that doesn’t mean it’s outside the realm of possibility, sometimes it means if they (attempted to) do that, they will seriously hurt themselves.
when a disabled/chronically ill person says they can’t do something, sometimes it’s preventative care, and they refuse to do that thing to prevent a flare up from happening/their symptoms getting worse in the first place.
disabled/chronically ill people are not “looking for excuses”, they are giving you reasons why. something they don’t even have to do! so maybe just accept the reasons they give you.
it’s funny how many expectations are put on the disabled and chronically ill. if any abled person experienced even 7% of our symptoms, they would be going straight to the ER and say they couldn’t do something because they have to recover. yet when they talk to a chronically ill person, the expectations are so high. “you should be managing that by now. why don’t you feel better? you can’t expect everyone to feel bad for you and support you 24/7” like yall would be crying and begging to go to the ER if you had one of our symptoms. we get told to get over it and stop being an inconvenience
I just saw a video where a girl was saying “If you have just learned about my condition, you probably will not cure it so please stop bringing it up.” Yet her comments is full of abled people being like “We’re just making conversation!” “We are just being nice” “Well why are you bringing it up so much?”
The amount of times I’ve been approached in public when I have my cane and “prayed” for or have to then listen to a story about someone’s mom’s aunts friend… I would have enough nickels to get more medical research.
So NO! Sometimes you can just be existing and people will try and help you. And it’s not helpful please stop.
"kill them with kindness" WRONG run them over in your wheelchair 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽 👨🦼 👩🦼 🧑🦼 👨🦽 👩🦽 🧑🦽
tip for people with chronic pain/fatigue: lay down occasionally. haven't laid down in the past 3-5 hours? do it (if you can) and see how you feel. i've found that i'll lay down in bed just to be in my room, but then i get hit with an instant wave of relief because just sitting on the couch was too much for my body, and i didn't realize it.
when you're in pain or fatigued for a long time, your awareness of your body may get wonky - especially if you already struggle w/interoception due to neurodivergency. so. test it, sometimes. you can apply it to other things too: sit if you're standing. stop doing a task if you've been doing it for a while. have a small snack to see if you're hungry. etc. etc.
"The doctors are not OK"
Shame, medical training, gaslighting, and cycles of abuse.
Blogpost arguing that doctors may not be willing to admit in a consultation they don't understand a patient's condition/symptoms/etc & instead not treat them well (e.g. gaslighting them) because of the way they themselves were trained
What if you wanted to do things
But God said torture chamber (chronic pains)