#savingeliza

[ilovesocksandsouls]

So much thanks to Socks and Souls! There must be 50 pairs of socks with fun designs that were delivered to our house. We are sharing these with other...

This is why Socks and Souls motto of 1 for 1 works so well as we really are warming souls through soles! Thank you Eliza's Story for sharing your photos with us - we are glad everyone liked the socks and we hope other Sanfilippo families will too!

[amundica]

Eliza O’Niell

hello everyone! i was just sharing this in the hopes of saving a wonderful girls life. Eliza Glenn O’Niell was diagnosed with Sanfillipo Syndrome-Type A.

“Eliza and other children with this disease are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain and body leading to severe disability and death before they even reach their teens. This disease affects both genders, all races, all countries and continents. It is everywhere and the world needs to know.”

This girl almost has enough funds to get the proper treatment, and I think by spreading the word we can help save this sweet girl. 

For more information please go to http://www.gofundme.com/ElizaONeill. 

[joemerl]

Sorry to bother people, but I've been watching this GoFundMe account for a while, and they're having a big fundraising drive today (it's the little girl in question's birthday). Unfortunately I have no money to donate myself, but if anyone does please go over and help them reach the end of their goal! 

[dexterlittle9-blog]

PLEASE PLEASE PLEASE SHARE THIS OR DONATE

http://abcnews.go.com/Health/family-break-gofundme-record-save-child-rare-disorder/story?id=23963169

http://www.gofundme.com/ElizaONeill

http://abcnews.go.com/blogs/health/2014/04/28/boy-7-makes-heartfelt-plea-for-help-to-fund-sisters-lifesaving-cure/

A little girl needs your help!!!

Eliza has Sanfilippo syndrome type A, a rare genetic disorder that causes a deadly buildup of heparin sulfate in her cells. Soon, Eliza will lose the ability to speak, her parents say. After that, she’ll lose the ability to walk and then she’ll develop seizures.

Most children with Sanfilippo type A don’t live far into their teens.

All varieties of the disease affect one in 70,000 live births, according to the National Institutes of Health, but there is no cure.

Doctors at Nationwide Children’s Hospital in Columbus, Ohio, have been working on a cure for 16 years and have found a gene therapy that works in mice. They hope to try it on humans early next year, but they need about $2 million to make a clinical trial happen.

[dailytinnituzz]

Daily @ tinnituzz

Your Daily tinnituzz @ http://www.tinnituzz.com/eliza-genetic-desaes-rescue/

4 Year Old Eliza Was Diagnosed With Rare Genetic Disease. Parents Were Told That She'll Fade Away Before Their Eyes. If Not THIS Rescues Her!

Eliza (4yr) was diagnosed with rare genetic diseas Sanfilippo Syndrome Type A. Her parents were told, there is no way she’ll live long. If you’re affected with this syndrome, you are missing an essential enzyme for normal cellular function. With time passing by, toxics will go up...

[ilovekurtmaxsam]

[petapixel]

Our Editor in Chief DL Cade and photographer Benjamin Von Wong recently teamed up to try and create a viral video and help save this little girl's life.

The video has already been picked up by The New York Daily News and Right This Minute but the O'Neill's need your help! Share this video and then go to www.savingeliza.com and donate to help save this little girl and beat Sanfilippo Syndrome once and for all in 2014!