Nanny job with a boy who has angelman syndrome is a challenge.
He doesn’t show any emotion. He doesn’t show signs of being hungry, sad, bored, happy, frustrated, tired, etc.
He doesn’t talk or walk. The PT wants him to draw every Thursday (aka I hold the market over his hand and I move his arm to draw.)
Last Wednesday, I got on the floor at PT to cheer him on while his dad was on the phone waiting for class to be done which felt weird. Shouldn’t his dad be his biggest cheerleader?
I love this sweet boy. I just wish I knew what he liked or didn’t like. I wish he made some sort of sound maybe then I’ll know if hes hurting in some way...or cry?
It’s also really hard because of the pandemic-I can’t take him anywhere. I know I can try the park but he puts EVERYTHING in his mouth so if I set him down, it’ll be me constantly trying to distract him from the grass or sand.
I feel discouraged bc I know I am trying. I’m working on helping him walk, his fine motor skills, his exercises, his homework....but what if I am doing it all wrong and it’s actually worse for him?
I’m trying to find a support group where I can share my struggles. I’m finding nanny groups but there’s not sharing the struggles I am facing.
I also am jumping from working as a caregiver with seniors for 5 years to children...which’s much as I love the change, it’s all new to me.
#expressingmythoughtsonpaper
