#starvingforacure

[starvingforlife88]

I'm trying, I promise I'm trying.

Fighting this body gets so trying.

But I promise to never stop trying.

[spoonielivingapp]

💜✨🥄✨💜#Repost @chronic_rae ・・・ On a brighter note, one week from today I'll be seeing a GI who specializes in Gastroparesis! I'll be spending a week in Philly at Temple University Hospital, undergoing tests and being evaluated for various treatments (both established treatments, and experimental ones). August is also Gastroparesis Awareness Month, it's kinda cool that this is happening during this month! 💚 #Gastroparesis #GoGreenForGastroparesis #starvingforacure #RareDiseaseWarrior #CareAboutRare #spoonielivingapp

[spoonielivingapp]

Really great news! ✨ Sending Spoons 💜🥄✨🥄💜#Repost @chronic_rae ・・・ Exciting news to share! I've been accepted as a patient by a Gastroparesis specialist up at Temple University Hospital! I have exhausted all my options with my current GI, so I was referred to Dr. Henry Parkman who is known for his clinical trials and new research for Gastroparesis treatment. I've been accepted and will spend a solid 4 days there in August undergoing tests and beginning experimental treatments. There's a possibility of me undergoing surgery to try their version of a gastric pacemaker, but that's yet to be determined. Temple is a little farther than I wanted to go (3.5 hours without traffic, and there's always traffic!) but if it gets me the treatment I need then it's worth it. #Gastroparesis #starvingforacure 💚#spoonielivingapp

[spoonielivingapp]

💜🥄✨💜 Repost: @fiyera_rae I think tomorrow I'm going to call my GI, because the last round of treatment doesn't seem to be working. Guess that's what happens with treatments that carry a 50-50 success rate! Unfortunately this means now we're going to be looking at surgical options, but nothing is decided yet. At least I have the Meow doing everything she can to help me feel better. ❤🐈She has been here in bed with me almost constantly for the past 12 hours. 
#GastroparesisAwareness #GastroparesisWarrior #starvingforacure #RareDiseasesNeedTreatmentToo #GoGreenForGastroparesis 💚💚💚 #spoonielivingapp

[heresthethingaboutit-blog]

Gastroparesis awareness month is over, and i didn't keep up with it because I've had so much going on and, wouldn't ya know, my #gastroparesis has been a real butthead. So let me just say this: the month may be over but I am aware of my disease EVERY. SINGLE. DAY. Nearly every second of every day I am either sick or in pain, planning my "meals" around my schedule and vis versa, making sure i have time to face the consequences of eating and time to be sick. . I haven't posted this month to gain sympathy but to raise awareness. About the disease, about myself. Being positive and happy is an intentional choice. I choose to wake up and fight back against my own body every single day to try to enjoy what quality of life i have left. Some days, i fail. Some days i feel sorry for myself and wonder why it just won't get easier. But other days i appreciate the small things so much and i love the moments in which being sick doesn't overshadow the rest of my life. . Please educate yourselves on this disease and others like it. Please don't take it for granted and think that because we "don't look sick" that we arent fighting every second the hardest and most draining battle of our lives - for our lives. PLEASE appreciate your health, your food, your life- and make the best of it every day that you're blessed enough to live it. #awarenessiskey #starvingforacure #fightingformylife #everydamnday

[heresthethingaboutit-blog]

August is Gastroparesis awareness month! This disease has taken every sense of normalcy from my life. Throughout the month I'll be posting pieces of my story and facts about the disease. This says food stays in the stomach for sometimes days... my Doctor estimates that my stomach keeps food for sometimes 9 days at a time (maybe longer), causing it to rot and cause infections. #gastroparesis #gastroparesisawareness #awarenessiskey #starvingforacure #fightingformylife #everydamnday