Spoonie Living App

#Spoonie? Please help test my student project, an app visualising #ChronicIllness Install now: iOS & Android

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💜🐶🥄✨💜 #Repost @sooziebea ・・・ Norbert is so good at taking care of me! @spoonielivingapp #unofficialtherapydog #chemobuddy #instapug #lovethisdog

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💜🥄✨🥄💜 #Repost @fitfibrochronicals ・・・ I love getting to play the game “is it my mascara or am I just really fucking tired?” spoiler alert, I’m always just really fucking tired 😴 #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #noenergy #comebacklater #chronicpain #chronicfatigue #chronicillness #invisibleillness #exhausted #exhaustion #teamnosleep #eyebags #onfleek #fleekdafuq #fuckfibro #fibromyalgia #fibromyalgiasucks #spoonie #spoonies #spoonieproblems #lifeofaspoonie #thestruggleisreal

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💜🥄✨🥄💜 #Repost @chronic_photographer ・・・ Today I saw Dr. So, a neurologist at UWMC. As soon as the nurse took my blood pressure/pulse, I was showing symptoms of POTS. My pulse while laying down was 90, but when I stood up, it jumped to 135. With that being said, my neurologist gave me a diagnosis of POTS (based on other symptoms as well), but I am still doing the tilt table test in a couple of weeks to confirm it. But as of right now, I have POTS🙃 #spoonie #spoonielife #spoonielivingapp #spoonieliving #POTS #posturalorthostatictachycardiasyndrome #neurology #neurologist #ehlersdanlossyndrome #zebra #zebrastrong #zebrawarrior #careaboutrare

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💖✨🥄✨💖 #Repost @rae_of_positivity ・・・ Finally mostly kicked my migraine, but I'm still fighting a random fever and general sick/pain. My solution? Lots of makeup, for fun. ❤ #ChronicallyFabulous . . . . . . . . . #chronicillness #chronicallyill #spoonie #chronicpain #ehlersdanlos #ehlersdanlossyndrome #eds #hypermobility #gastroparesis #celiacdisease #celiac #glutenfree #gluten #pots #posturalorthostatictachycardiasyndrome #tachycardia #fibromyalgia #fibro #mobility #disabled #disability #handicapped

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💜🥄✨🥄💜 #Repost @sooziebea ・・・ I still have my hair! Might not tmrw, but I do right now! #cancersucks #chemohair #chemo #chemokitten @spoonielivingapp

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@gpfighter_katrina Thank you for sharing 💜🥄✨🥄💜#spoonielivingapp

[spoonielivingapp]

💜🥄✨🥄💜 #Repost @fitfibrochronicals ・・・ • ⚠️LONG POST/UPDATE⚠️ I saw my favorite doctor for the first time since I had Sally the stent and my kidney stone removed about a month and a half ago! my stone was made up of calcium oxalate and calcium phosphate - the phosphate part is raising some concern about some other thing going on with me...now I have to keep a diary of everything I ingest as well as every time I pee with all the lovely details - so I decided to color code my entries to make it easier to do and pretty to look at 💁🏻💅🏼 I also ordered my two 24-hour urine collection kits, which luckily don’t have to be done on consecutive days. She wants me to do one as I normally eat at home and one as I eat at work since my diet varies between work days and weekends - I definitely won’t actually collect my pee at work so I’ll just mimic my work diet one weekend instead😂 keeping track like this will help with my unfortunate reoccurring acid reflux for when my doctor is back from maternity leave - idk what went wrong after my stomach surgery, but I’m feeling like crap all over again 🙍🏻‍♀️ I can’t alter my diet at all yet until we see what’s going on with my pee, and even then it’ll be a struggle because what ends up helping kidney stones will aggravate my IC and vice versa, on top of whatever’s going on with my stomach again, I’m just gunna live off of air 🤦🏻‍♀️ meh, it’s never a dull moment for a spoonie! #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonielivingapp #spoonieliving #chronicallyfabulous #chronicallyawesome #kidneystones #interstitialcystitis #IC #ureteralstent #sallythestent #stomachsurgery #fundoplication #chronicillness #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #spoonie #fooddiary #nausea #acidreflux #gerd #exhaustion #pain #spoonielife #spoonieproblems #lifeofaspoonie

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💜✨🥄✨🥄💜 #Repost @chronic_photographer ・・・ Let’s hope KT tape helps🙏🏻 #ehlersdanlossyndrome #hEDS #edstype3 #zebrawarrior #zebrastrong #dislocations #subluxations #hypermobility #chronicpain #chronicillness #spoonie #spoonielife #spoonielivingapp #careaboutrare

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💜🥄✨🥄💜Repost @fitfibrochronicals ・・・ chronic pain view of the day, courtesy of a massive sciatica flare 😒 that in combination with on/off kidney pain is exactly how I wanted to kick off my midwinter break 🙃 #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #sciatica #paindrained #warning #lowonspoons #spoonie #pjday #poorlyday #kidneypain #backpain #viewoftheday #chronicpain #chronicillness #chronicfatigue #invisibleillness #butyoudontlooksick #flare #sendspoons #teacherlife

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💜🥄✨🥄💜 #Repost @zebrasurvivors ・・・ I love my new zebra scarf!! I always feel so empowered when I wear anything with zebra print on it. It reminds me that I am a part of a movement. #ehlersdanlossyndrome #heds #dysautonomia #mastcellproblems #crps #zebrastrong #spoonielivingapp #dazzlethemwithawareness #18yearolddazzlingzebra

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💜🥄✨🥄💜 Repost: @cripple_skunk surprised i made it through today, this high of pain really doesn’t go well. needing spoons #fibro #spoonielivingapp

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💜🥄✨🥄💜 #Repost @j_and_pupper_ ・・・ #spoonielivingapp My neck is screwed up and the doctors haven’t really done anything about it and haven’t told me what is wrong. I have a doctors appointment tomorrow and I am going to ask about what I can do. I have already done a crap ton of physical therapy for my neck and spine. I want to cry right now. I just hurt so badly #spoonielivingapp

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💜🥄✨🥄💜 #Repost @chonicallyquestionable ・・・ this is my service dog in training, sunshine. she is the light of my life. there's some days that i just don't want to face the world. i don't want to face all of the comments about how i'm "faking it" or not "trying hard enough" sometimes the weakness is just too much. the brain fog is too confusing. the extreme anger is too scary. but she's always there for me, day or night. always ready to give me puppy snuggles and ready to improve her alerts so they can one day be lifesaving. love this girly #spoonielivingapp

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💜🥄✨🥄💜 #Repost @chonicallyquestionable ・・・ y'allllllllllllllll i've been so so so weak recently. i'm pushing my damn hardest to see a cardiologist as it all seems to stem for my high HR, but my dad just isn't having it. he thinks i'm lying. in the meantime though i'm just taking it slow, although it's hard to watch my health slowly degrade each and every day :( #spoonielivingapp

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💜🥄✨🥄💜 #Repost @chonicallyquestionable ・・・ yo yo yo, i'm Leon. my main account is @heckle.smeckle and my service dog sunshine's account is @sunshine.my.savior !! this account will be documenting my journey on the search for answers to my medical mysteries! #spoonielivingapp

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💜🥄✨🥄💜 #Repost @chonicallyquestionable ・・・ stop. telling. people. that. they don't "look" sick or disabled. stop. would you tell a veteran with ptsd that they don't "look traumatized" or a blind person that they don't "look like they can't see" ?? no ?? cool. not all disabilities are visible sigh. #spoonielivingapp

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💜✨🥄✨🥄💜 #Repost @chonicallyquestionable ・・・ my dad doesn't understand ADHD. "just try harder" is something he tells me a lot. my meds help but don't fix the problem. i have frequent breakdowns because he says things like "if you don't finish all your homework in an hour you aren't allowed to train sunny for 3 days" and stuff like that. sucks man. #spoonielivingapp