Had a really rough few days health wise. Absolutely horrific seizures. Mum thought she was gonna end up doing Resus on me on the new decking. She had to call palliative care today, but unfortunately it’s not something we can fix. All we can do is ride it out. We’re lucky to have an incredible hospice who are there to support us even when there’s nothing they can do other than tell us “we’re here for you”. Ironically my mental health and mood has been really good despite being so poorly, but tonight I’m just very tired at the prospect of dealing with this shit for the rest of my life. I am genuinely really positive about my situation and I love my life. But tonight the prospect of so much suffering (for myself and the people I love) is utterly, utterly exhausting. I am feeling poorly, in pain, and more than anything, I feel very sad. Please send some words of encouragement, puppy photos, or tell me something good about your day 💛 need some cheering up! I’m hoping my meds will kick in soon and that I’ll feel better tomorrow after some sleep. I am sad... for now. This too shall pass. #iamsad #fornow #thistooshallpass #palliativecarewarrior #tellmesonethinggood https://www.instagram.com/p/CD2ZHhqD2gp/?igshid=71640v1dvik2
