Motor Neurone Disease Fund
I never thought I would be somebody to make a post like this but over the past few weeks my Uncle Nick declined horrifically in his health. He had a bag full of health problems anyway but it took forever for him to have the Motor Nerurone Disease diagnosed.
When I say that he dramatically declined in health, I really mean it.
This disease is awful and horrific for everybody involved.
I watched my Uncle go from okay to in a medically induced coma in a matter of weeks. It was so fast.
I’ve never seen a disease cause somebody to go down hill so fast in all of my life; his bod became so thin, he couldn’t focus on anything right, he was hallucinating me in his house when it was a blanket on the door, he kept trying to grab at the wall that he said was moving towards him, he wasn’t eating or drinking, he couldn’t breathe properly and therefore couldn’t even sleep so he found himself sleeping on the sofa downstairs in pain.
My Uncle was a sweet man and he deserved so much better than this.
As you can tell from my tense, my Uncle passed away 30/07/2021 at 7:15 pm.
His family and my family were all there around him, holding his hands and cuddling his head as he lay there with a tube shoved down his throat and so, so many wires for machines I don’t even know the name of.
He was under sedation for days on end and he was under when we were all there with him. He’s the only person I have ever seen die and I am still trying to get that image out of my head a day later as I basically watched my Uncle suffocate to death.
Anyway.
My little sister has started a fund for the disease so that more research can be put into it as the entire situation with my Uncle was a crap show.
The goal is only £150 but more would always be a bonus for the disease to be properly understood so it can be diagnosed sooner.
Please help us out if you can.
Thank you ever so much for reading and if you could please reblog this to spread this around; I’d really appreciate it.
Catherine x
