#worldrarediseaseday

[itsageneticthing]

Happy World Rare Disease Day!! It is important to spread awareness and education about these conditions, diseases and illnesses. Access to care needs to improve for these people who are living with one. It should be available to all.

[omsweet0m]

It's #WorldRareDiseaseDay - celebrate the rarest day of the year accordingly. This special day is in honor and for awareness/support of people affected by rare diseases and disorders. For more info, check out: https://bit.ly/2BqnlBI c/o rarediseaseday.org 🙌 for #1p36DeletionSyndrome (www.1p36dsa.org) and all #chromies that struggle to gain attention or funding. Here's to spreading a bit more awareness. = ) #RareDiseaseDay #WRDD #WorldRareDiseaseMonth https://globalgenes.org/ #GlobalGenesDay #GlobalGenes #RareDisease #WearThatYouCare #WearBecauseYouCare #1p36DSA #1p36BellaBoo #1p36BellaM #chromosomedisorderawareness #Monosomy1p36 #1p36 #1p36Deletion #chromosomedisorder #CareAboutRare #ShowYourRare #WRDD2020 #EagleRare #bourbon #whiskey (at Long Beach, California) https://www.instagram.com/p/B9LYxjVJXg_/?igshid=vgyqm3m7e0qq

[anjrawat]

Rare Disease Day

#RareDiseases are the #diseases that affect a small number of people compared to the general population, and specific issues are raised concerning their rarity.

#ThisDay, 29 February 2020 is observed as #RareDiseaseDay, the main objective of Rare Disease Day is to raise awareness regarding rare diseases and their impact on the lives of the patients and their families.

https://www.delveinsight.com/

[omsweet0m]

World Rare Disease Month is winding down to #WorldRareDiseaseDay on the last day of Feb - the 29th being the rarest day of the year. It's a celebration of observance, awareness and support of people affected by rare diseases and disorders. For a little more info, check out: https://bit.ly/2BqnlBI from rarediseaseday.org Honoring my daughter who has #1p36DeletionSyndrome (www.1p36dsa.org); her and her #chromies face their own personal challenges, but collectively struggle with gaining attention (raising awareness and helping doctors learn about them) and funding (it's a bit easier to raise funds for something well known). Here's hoping this spreads a bit more awareness. = ) For info on #RareDiseaseDay, #WRDD and #WorldRareDiseaseMonth, visit https://globalgenes.org/ #GlobalGenesDay #GlobalGenes #RareDisease #WearThatYouCare #WearBecauseYouCare #1p36DSA #1p36BellaBoo #1p36BellaM #chromosomedisorderawareness #Monosomy1p36 #1p36 #1p36Deletion #chromosomedisorder #CareAboutRare #ShowYourRare #WRDD2020 (at Long Beach, California) https://www.instagram.com/p/B8-iMbWhKpN/?igshid=1msvj2bvvlz2u

[thrivewithchianti-blog]

Please support a cause that is literally close to my heart. Its World Rare Disease Day! I suffer from 3 ultra rare heart diseases. All commissions will be donated to Rare Disease Research. 15% off my entire website! BeYouBeBeautifulByChianti.com Special gift for all orders placed today. Pm me or comment with your email and order. Orders accepted till 11pm! BeYouBeBeautifulByChianti.com Ultra Rare Heart Disease's will not stop me! BrS ARVC NCS #heartdisease #brugadasyndrome #arrythmogenicrightventricularcardiomyopathy #neurocardiogenicsyncope #iwillnotstop #nevergiveup #pacemaker #defibillator #biotronik #doublelead #2nddevicein2years #CLS #worldrarediseaseday #research #funding #donations #ThriveWithChianti

[elmo3907]

@Regrann from @chivecharities - Chive Charities is proud to support the 350M people affected by rare disease. Join us in shining a light on this community and starting a conversation to save lives! #WorldRareDiseaseDay #WRDD . . . #kcco #rare #CareAboutRARE #sharingiscaring #letstalk - #regrann

[themarlyq]

Today is World Rare Disease Day and I have been PARKing all day wearing my PEACE. LOVE. HEALTH shirt to spread #awareness #scarlettsvoice #1p36deletionsyndrome #wepark #leapyear #worldrarediseaseday

[ozemutha]

#worldrarediseaseday #donate #helpfindacure www.chloesaxby.com.au