The panel discussion being broadcast was teens and adults with autism and how federal funding could better support them. As the show closed, the moderator asked if anyone on the panel felt a vaccine had caused their autism.
Silence.
One teen panelist spoke up, “no, but it hurts that you would ask that question.”
The moderator’s tone softened, he apologized and asked why. I’m going to paraphrase the boy’s response because it has been several years and for the life of me I have not been able to find a transcript of this event anywhere, which has driven me to madness. If anyone from C-SPAN reads this and knows the talk I’m referring to, please send me a transcript! The panelist’s response was incredibly moving and I wish I could give him credit for it and do his response justice.
As I recall his response was, “because it makes me feel like I’m damaged or broken, when I’m not. I was born this way. My brain just works differently than most other people’s. When people talk about vaccines and autism it makes me feel like I’m not a person but a ‘bad result.’ It reminds me that no one wants a kid like me and parents will risk their kid’s lives and everyone else’s just to make sure their kid doesn’t turn out like me.”
There was silence on the radio. By this time I’d pulled into our parking spot at home and sat in the car in silence as well. It was a moment of epiphany.
Oh bleep, I thought. I’ve never thought of it like that.
The panelist’s words were so loaded and unfiltered. He was speaking from the heart and I could imagine the pain he felt when he described that some parents would rather have their children die than turn out like him. That is an incredible and completely unnecessary burden for any child to carry around, yet any time vaccines were discussed, those assumptions were coded in language.
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