[touretteguy]

im gonna say it

having d.i.d or osdd doesnt make you broken having tourettes doesnt make you broken being autistic doesnt make you broken having adhd doesnt make you broken having ocd doesnt make you broken having a personality disorder doesnt make you broken having bipolar disorder doesnt make you broken having schizophrenia doesnt make you broken having a psychotic disorder doesnt make you broken having depersonalisation, derealisation, dissociation, etc. doesnt make you broken having dyslexia, dyscaluclia, dysgraphia, etc. doesnt make you broken  having ptsd or c-ptsd doesnt make you broken having an eating disorder doesnt make you broken having a depressive disorder/depression doesnt make you broken having an anxiety or panic disorder doesnt make you broken having literally any mental disorder or neurodivergency that i havent mentioned here doesnt make you broken. and… thats that! you are not broken, you arent a burden, you arent ‘‘crazy’‘, you arent unlovable, and you arent a bad person.  youre worthy of love, youre worthy of kindness, youre worthy of life and a community.   this is incredibly corny but its true.   

[touretteguy]

hi also terfs and other shitheads get blocked if i see them on this post <3 fuck off forever this post is not for you.

[its-ticsticstics]

Reminder that Tourettes Syndrome is a Neurological and physical disorder- not a mental illness. It's incredibly comorbid with mental illnesses and those tend to be more distressing than the tics themselves, but regardless-

It's not a mental illness. It's neurological.

Giving mental health advice for a neurological illness is typically not helpful.

[thatweirddolldude-deactivated20]

I want to talk about Tourette's

I don't know if anyone is going to read this or whatever, but I still want to say it.

I have Tourette's. I developed it later in life, about six years ago. I recently developed seizure-like tics in October after going to a haunted house. It was the big one in Nashville.

I couldn't walk. Practically had to be carried by my parents. And this is scary. Especially because this isn't something you hear about. You've seen people swear and hit themselves but never have a seizure like tic. I still have these tics. In fact, I've been having tics where I was unable to walk for a while now.

I was in a wheelchair for a few weeks because of these seizure-like tics. But I've managed to keep my balance with a cane now.

I say this not to make people feel bad for me but to tell people how scary Tourette's can be. It isn't some funny ha ha "He said the f-word" disorder. It's a real, horrifying disorder where you can't control your own body.

[monsieurenjlolras]

It's been almost 20 years since I first got my tourettes diagnosis, and I found out last month that TS is a disability. There are resources I should have had access to for the past two decades that I did not because I never knew, and no doctor or school councilor ever told me, so I'm posting this to get the word out. Please share it around if you can. If you have tourette syndrome, you are legally protected under the ADA and there are accommodations and support that you have a right to.

[its-ticsticstics]

There's a genuine terror for a certain percentage of us with Tourettes that we may be actually KILLED OR ASSAULTED for ticcing in the wrong time and in the wrong place to the wrong person.

People think we're drunk or on drugs or we mean what we say and somehow that gives them the right to abuse us.

What I say as a tic is ALWAYS out of my control, but your reaction is 1000% in YOUR control.

Do better for those of us with neurological illnesses.

[chaikamon-chair-deactivated2024]

My tics :)

heres a blank one

[tics-tacs]

here's mine!!

[touretteguy]

here's mine :) ( i used to have echopraxia and echolalia when i was younger but not anymore )

[wlfgrrl]

[phecdasolar]

This. This right here is an accurate representation of what having Tourettes is like.

You look like you’re a man possessed one moment and then you look like your average joe the next.

[tourettesyndromehq]

To the person who’s newly diagnosed or has just developed Tourette syndrome.

- Stand up for yourself when someone discriminates against you for your Tourette’s.

- Don’t listen to ignorant people who don’t understand,  you know what it’s like to live with your condition, they don’t.

- It will get easier over time

- If a doctor doesn’t believe you have Tourette’s  - get rid of them.

- If you are in school, college or university, get accommodations and support. You can get extra time on your exams, a separate room for exams, reduced timetable, a laptop to write on and more.

- If you believe you have a co- occurring condition such as OCD, ADHD, Anxiety, depression, Autism, dyslexia or anything else, get assessed if you can afford it, but you can self diagnose if needed.

- If you have difficulty finding work or if you need extra support, look into disability living allowance, PIP, or disabled students allowance (UK) or the benefits that you have in your country.

- You will probably experience self -doubt , there may be a little voice in your head telling you that your “faking it”, but you are not, many people with Tourette’s have this and if you are questioning whether you are faking it I can guarantee you are not.

- If you can, join a local support group, the friends and support you get are priceless.

- Read up on tic triggers on the ACN latitudes website , triggers can include certain foods, chemicals, emotions, sensory input, or medicines 

- Talk with your doctor about any possible treatment options because everyone is different and you can find what works for you, whether its medication, CBIT or habit reversal training. You don’t have to treat your Tourette’s if you don’t want to.

-Embrace your Tourette’s , don’t be ashamed of it!

- Don’t let anyone make you feel like you have to suppress your tics. Suppression is not the answer.

- Join an online Tourette’s forum or support group, they have all the best information and they are an amazing way to get support.

- Stick to your dreams and life goals , don’t give up on them because of Tourette’s. 

[touretteculture]

People with tics do NOT have to suppress around you just to make you feel comfortable.

People with tics do NOT have to hold down a tic attack just for you to not feel uncomfortable.

People with tics do NOT have to suppress.

Suppressing is a shitty thing, when I suppress my tics, my whole body tenses up, I can’t talk because I’m afraid a vocal tic may come, I let small tics go because it can go unnoticed, I can’t focus on anything that isn’t suppressing tics, I suppress because I’m afraid people can look at me weird, say something bad, or bully me.

And yes, is a form of surviving in a neurotypical world, but it makes US have tic attacks, it make US tired, it make US feel like shit because we can’t unmask around people, we can’t be us with our tics.

So if you have a friend, family, anyone you know with tics, please, let them unmask, let them be free with their tics.

[its-ticsticstics]

its disability awareness month so lets get fuckin real about tourettes and tic disorders bc some people STILL don’t get it 

Dispelling some myths

NO you can’t ‘catch tics’ from watching tiktok videos.

NO anxiety, OCD, ADHD, and Autism do not cause tics, HOWEVER, they are extremely common in people with TS/tic disorders and up to 90% have them as comorbidities.

NO ticcing in your sleep is not a sign of epilepsy.

NO CBD/THC are not magical cures.

NO not everyone with tics has tourettes. Tic disorders are there own seperate diagnoses from tourettes and many other neurologic disorders (and things like degenerative diseases, brain injuries, and enviromental toxin exposure) have tics or tic-like movements. 

and finally 

PEOPLE WITH TICS DO NOT TIC 24/7

FAQS

Do you tic during sex????!?!?!

First- stop asking strangers this, you’re CREEPY. Second, normally no, tics tend to lessen while ‘distracted’. 

Isn’t Tourettes just swearing? 

Nope! It includes motor movements, other vocalizations, many comorbid mental health disorders, and phenomenon like tic attacks and uncomfortable urges before tics. Coprolalia and copropraxia (the swearing and inappropriate gestures) actually only appear in ~10% of TS patients. 

Do tics hurt? 

Technically, the sensation of ticcing is just uncomfortable. However if the ticcing invovles self-hitting or anything that would normally be considered self-injurious, or the tic repeatedly happens and strains a muscle, then yes, it hurts.

Can I laugh?

This depends on the person. Some people are okay with it at anytime, others only if they’re laughing first, and for me- its okay as long as its not a tic where I’m hurting myself or something and othertimes, I want my tics ignored completely no matter how ‘funny’. 

Is there a cure?

No. There are therapies and medications to help manage symptoms but there is no one ‘cure’ for tic disorders or tourettes syndrome. 

And here are some of my other posts on Tics/TS terminology/Need-to-Knows:

Basic Terminology

What Are Motor Tics?

Phenomenon in TS

More Facts about Tics/TS

[touretteguy]

i feel like what people don't seem to understand is that Tourette's is not caused by anxiety or stress or whatever, it's a neurological condition that is there in your brain no matter how you feel or where you are, even if you grow out of tics, you still have Tourette's.

it's not an anxiety disorder, or because of stress at school, or whatever, it's a whole neurological syndrome.

yes, tics can be worsened by anxiety or stress or whatnot, but in Tourette's, they are not caused by stress. they're caused by your brain being abnormal; parts of your brain are Fucked Up and that's what gives you tics, like scientists and doctors discuss neurons misfiring, an issue with the basal ganglia, neurotransmitter abnormalities, issues with the frontal lobe, issues with the areas of your brain that control impulse and motor movement refinery, etc. like. Tourette's is caused by Brain Weird. not stress.

[talking-tics]

tic disorder? more like, everyone asking if you’re ok every two seconds disorder.

[touretteguy]

LITERALLY!!!... that's exactly what its like

[oopssorryitstourettes]

[oopssorryitstourettes]

[oopssorryitstourettes]

[tourettesbabe]

I’m trying to snuggle with someone but my tics be like:

[positivityischange]

Shout out to people who have:

- Tics that embarrass them

-Loud tics

-Tics that last a long time

-Tics that call a lot of attention/ are "distracting" to others

-Tics that can be seen as rude

-Tics that are very unique

-Tics that are very complex

You guys are doing so great, and I hope you have a good week 💖 Your tics are nothing to be ashamed of or embarrassed about and they do not define you

[thealienmoth]

Needet this today