Our lives took an unexpected turn on Wednesday, February 27th. I felt my whole world turn upside. Iâll never forget when I saw my husband was calling on my phone, but when I answered a stranger was telling me my husband was having a convulsions and being taken to the hospital in an ambulance. Literally just moments before, Michael texted me that he was leaving Eucharistic Adoration and coming home early from work. Fear quickly overcame my whole being. I immediately called my parents as they only live minutes away, all the while trying to keep my composure to not panic our children. My dad rushed us to the hospital, while my mom stayed with the boys. The whole time I just assumed Michael had been in a terrible car accident and had no idea what condition he was in. I immediately started saying some Hail Mary's for him.
It felt like everything was moving in slow motion - it felt like it took 10 times longer to get to the hospital. Relief flooded me when I was able to finally see him and to find out there was no horrific car accident as originally thought, but that he had terrible pain on his left side and started trembling and was able to pull into a gas station to call 911. His seizure took place once he arrived to the ER. It took him awhile to even start talking to me, which really scared me and even longer to start moving. But the ER nurse assured me he could talk and move.Â
He was admitted, where over the course of two days they ran numerous tests - CT Scans, MRI, ultrasounds, EEGs, EKGs etc. All tests came back normal and he was feeling ok besides being sore. He was discharged and so glad to be home. We left with no prognosis, just that it was an unfortunate incident and to follow up with the his primary doctor.
He was doing well at home Friday and Saturday, besides having a headache that he had complained about for 2 weeks now. However, getting ready for bed on Saturday, another seizure took place. This was two seizures in less than a week! Now we really knew something was wrong. Itâs the most terrifying experience to witness. His whole body tenses up, he shakes uncontrollably, as he keeps repeating that it hurts and that heâs about to black out. I immediately called my dad and sister who are also nurses and then 911. The ambulance arrived and took him to the ER.Â
He was admitted again and we met a seizure specialist the next day. He told us the seizures were not exactly typical since Michael was experiencing such pain before they happened. But they started an EEG and began him on an anti-seizure medicine. He came home after two days and again with no real answers. He has had a tough time adjusting to the meds. They make him feel sleepy one day and yet the next day he canât sleep. He feels very anxious at times, has occasional blurry vision and just feels off. So weâre trying to get through the two to three weeks of adjustment that the doctor told us about. Itâs still unnerving to experience these side effects all day everyday even though the doctor tells you about them. To not feel right day after day takes a toll. He does have good days though or at least good moments of the day, which give us great hope.  We have gotten through one week, so hopefully after one more week it will all level out a bit.
We still have an unsettling feeling about it all; that another seizure could happen since we really donât know if the current medicine will work for him and will need to be adjusted at some point. So we still take it day by day.
We meet with the neurologist in April for follow up. Maybe things will be a little clearer then.Â
This has been a great cross for all of us, but especially for Michael. Even though we wish we didnât have to carry it, much good has come from it. God brings much good from our pain and suffering. Weâve felt Godâs love and mercy for us. Our parish family have been prayer warriors - offering daily masses, rosaries and adoration for Michael and just keeping all of us in their prayers. Because of this we know and understand the great power of prayer. It truly is the greatest comfort and joy anyone can give to someone in need.  We are more empathetic to those that are sick and suffering, especially those who suffer alone.  Itâs so hard to get through difficult, scary and trying times even with the love of family and friends, so the burden for those who are alone must feel impossible. We pray for all those suffering everyday and offer our sufferings for others and the Holy Souls in Purgatory. Our priest and sacristan, both who are wonderful family friends of ours, have visited and called us, giving us much spiritual support. Weâve been brought meals and have had offers to take Michael to work. Our boys havenât been forgotten either, as theyâve received coloring books and treats too. A ministry in our parish even surprised Michael with a beautiful prayer shawl they made for him. How comforting and beautiful that they made this shawl all while praying for him. The generosity, love and compassion of so many has been touching.Â
Of course our families have been a huge help to us as well. Weâre lucky to have my parents and sister just a few minutes away, so our boys have had lots of fun being spoiled by them. More spoiling to be done when Michaelâs parents come visit next weekend too.
Michael has to be seizure free for 6 months before he can drive again. Weâre blessed heâs able to work from home through most of it, but he of course misses just being in the office. I plan to drive him in a couple times a week starting next month, as Iâd like him to stay home while heâs still adjusting to the medicine.
This does really turn your lives upside down especially when you have young children. Michael is used to just taking the boys on long summer walks and having lazy days at the pool. We now understand Iâll have to be there with them on such excursions.
Just the thought of having to rely on a pill everyday for the rest of your life is a bit daunting especially when youâre not used to it. Something as simple as that really effects you. We do hope he can wean off of it when the time is right though. And we realize even with all of this, things could be much worse and so we are grateful that it is not.
We had the opportunity to attend Stations of the Cross on Friday. Â How therapeutic. I was so anxious going there, not knowing how Michael would do, but as I sat in the pew I could feel the embrace of our Lord and was at peace. Â We truly understand how wonderful our Catholic faith really is; that itâs truly the best medicine and how blessed we are to be Catholic. Thereâs much beauty in the fact that our pain and suffering, no matter how big or small, doesnât have to go in vain. We can offer it up for a greater purpose. What a beautiful thing! We have Jesus as our ultimate example of that. His suffering and death on the cross became a beautiful testament of Godâs love and mercy for us.
Please continue to keep us in your prayers, especially Michael. And know that all of you are in ours!