Today was one of those days
I was awake until four in the morning because of period cramps. Every wave of pain made it impossible to get comfortable, impossible to sleep, impossible to feel like my body belonged to me. By the time morning came, I was already running on empty.
Then Mom came home early from work. Her wrist hurt so badly that she had called in on her way there and turned around to come home. My sister offered to take her to urgent care after getting off work at eleven, then headed out. I explained the plan to Mom and tried to disappear into my own little corner of the house, hoping to ride out the cramps in peace.
After the appointment, they came home, and I asked the obvious question.
“What did the doctor say?”
They told me the diagnosis, then explained that Mom needed to stop one of her medications and begin a new one for five days. The problem was that neither of them knew which medication she was supposed to stop. Mom takes a long list of medications, and neither of them could explain the treatment plan. Mom casually mentioned that she had told the doctor I handle all of her MyChart information anyway, so I would figure it out.
I logged into her MyChart expecting to find the visit summary.
Nothing.
No notes.
No after-visit summary.
No medication instructions.
I assumed the system simply hadn’t updated yet. It happens. I explained that to both of them, and they agreed it probably just needed some time.
About an hour later, Mom was panicking because I hadn’t checked MyChart again yet. She wanted answers immediately. Then she asked if I would go with my sister to pick up the prescription.
“I guess so,” I answered.
The truth was, I had been hiding downstairs, trying to take care of myself for once. Trying to find even a small amount of relief.
I came upstairs and stood at the bottom of the stairs waiting for my sister.
“Are we going?”
Before she could answer, Mom yelled across the house,
“Just forget it. If it was something for you, it would already be done.”
Right then, my sister walked through the door carrying the prescription.
I asked if she had at least asked the pharmacist which medication Mom was supposed to stop taking.
She told me the doctor had said it would all be in MyChart.
I just stared.
“You always get an after-visit summary when you leave the office.”
“It isn’t my fault the doctor can’t do their job.”
By that point, Mom was angry with me.
Meanwhile, I was sitting in front of her computer desperately searching every section of MyChart, hoping I had missed something.
Still nothing.
Eventually I saw that the new prescription was prednisone.
Drawing on what I remembered from working in a pharmacy, I started piecing everything together myself. Based on the medications she currently takes and why she had been seen, I concluded that the medication she was supposed to stop was meclizine.
Before I could even process that thought, Mom looked at me and said,
“You really need to consider whether you can handle this, or if I need to end up in assisted living because this is important.”
That sentence landed harder than she probably realizes.
For a moment, I just sat there fighting back tears, trying to keep myself together while another part of my mind screamed to say, “Fine. Then maybe I should just move out.”
Instead, I swallowed it.
I called the pharmacy.
They confirmed I was right.
It was meclizine.
I updated her pill organizer, made sure everything was correct, and quietly disappeared again.
I didn’t want to be seen.
I wanted to escape.
When my husband got home, I made up an excuse about needing to run to the post office. The moment the car doors closed, every emotion I had been holding in came pouring out. I unloaded every frustration, every hurt, every ounce of exhaustion that had been building throughout the day.
Then we drove home.
I walked back inside.
And I acted like none of it had ever happened.
That’s the part no one really sees.
They see the medication sorted correctly.
They see the problem solved.
They see someone who always figures it out.
What they don’t see is the woman who was awake until four in the morning in pain, who spent the entire day carrying everyone else’s worries while quietly trying to survive her own. They don’t see how every accusation, every expectation, every assumption that I’ll simply handle it takes another small piece out of me.
I love my mom, and I know dementia is changing so much about our lives. I know fear speaks louder than reason sometimes. But I am human too.
Some days, I don’t need someone to hand me another responsibility.
I just need someone to notice that I’m hurting, too.










