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As soon as my head hits the pillow
ok,...so it’s been a little while since i have given the majority of y’all and update on how things have been going in the past month and a half or so. to say things have gotten better would be a lie. to say that they are bad is also not a lie. what i’m trying my best to do is describe them as, down, but not out. hopeful and ready for a fight to get back up. so, here we go.
lets start with the good. i’ve been keeping up with myself physically and mentally for the most part. more on the mental later but otherwise work and runs and bikes have been pretty good to me. :) reducing coffee intake and upping the water and fresh juice. veggies and fruits galore.
my dad came through the other side of his triple bypass pretty well! with a decent bit of healing and rest and rehab, he back up and just this week got the clear to go back to driving and taking it easy like he does. very good to report that.
but now onto the other side of things....as you probably saw, my grandfather Carl passed away just about two weeks ago, the progression of his dementia had taken a pretty good dive downward in the last few months. my hope was that after years of being looked after by my grandmother Claire for the last 6 years or so, that the introduction to some professional care and such would even him out some and allow my nana to get some much needed rest and self care. unfortunately with this disease, you can never really tell when its going to degenerate some of the key parts of the brain. his body didn’t last much longer and he drew his last breath on the evening of october 24th, a mere three hours after me and nana had sat with him for a good while telling hi how loved he was, and in my case, telling him that if he felt comfortable with it, i would take care of everything that needed that care, just like he taught me. a promise i intend to keep.
as far as the last couple years go, this was a passing that we had time to see and prepare for about as much as you can be able to prepare for that sort of thing. that man has earned his rest of his body, and we knew it. he had struggled and kept on long and hard like the stubborn midwestern man he was. my nana is in mourning, but also knows that this is the best we could have hoped for considering. he is missed in this house, and in our lives.
but knowing that life has this tendency to keep on moving, whether we like it or not, we move on to next situation at hand...on two occasions now my nana has had to deal with a small basal cell carcinoma {one of the most common types of skin cancer} in her left cheek. two MOHS surgeries in the books to remove any cancer found. well, it’s back. again. and its a stubborn and sneaky little bastard. a week ago finding out that a biopsy had come back positive, we were then informed that its a little more serious this time. as far as we know now, and we’ll know the full extent once we get her into an MRI, the cancer seems to have found a way to move back through her cheekbone, and right under the space of her eye. as it’s moved that direction, a “simple” MOHS surgery at this point isn’t the right call and it seems as if x-ray, or radiation therapy, is whats on the horizon. being that the cancer may have moved very close to the eye, the beam of the x-ray will more then likely be too close to it, and would possibly take away the use of that eye. not saying that the eye would have to be removed or anything, but that she would basically become blind in her left eye. of course this took me and her by complete surprise, as neither of us were even aware that a skin cancer could even act like this. we wont know the exact idea of whats going like i said until the MRI that is scheduled next week, but we know it has the potential to be bad. and all this just a couple weeks after the death of her partner.
it’s been a little excessive for us to say the least. but we know that death and true sickness is not exactly what we’re dealing with, and to be honest, i was very hesitant about the idea of another surgery for my 85 year old nana. to me, and her to an extent, this is one of the least scary situations we can hope for. no chances of her not coming out of general anesthesia, no evidence that this had made its way back to her brain, and the greater chance that this an pass with any real pain or discomfort. that much makes me happy. but the reality of the situation also doesn’t escape me, i know that this is scary, i know that this is real, and i know my stay here in Mass is going to last a little bit longer. which has its ups and down’s. i do know that i’m going to take a little bit of time for her, and for myself, off of work. just to have one less thing going on while this gets figured out and attacked. i will make a trip to see my home and my wonderful lady and my friends in columbia, and if i have the time also maybe a couple of other cities (avl, rva, philly im looking at y’all) otherwise, we’re just going to keep on keeping on. going to try and stay positive. thanks to all my friends who keep checking in on me and for being gracious with me whenever i don’t respond and get a little reclusive in my world up here.
as always, thanks, and i love all of ya. xoxo....
A little update...
hey there. so if you’re reading this is because you followed the link to this thing so that i could explain a little to what has been going on with me in the recent months since i left home in south carolina to spend a little while here in massachusetts with my small in number big large in heart family.
so, let’s start at the beginning. i am an only child born from another only child. and have had not negative but limited contact with any extended family outside great uncles and aunts. so, family is small in number at the present moment. after the death of my mother in 2015, it now is me, my dad (jerry), me grandmother (claire) and my grandfather (carl)...lets start with carl.
for quite a number of years now carl has been living with dementia. it probably started showing its face around 8 years ago or so, but i can say in hindsight that there were signs of it years before. in the last 5 or so years it has taken away his ability or want to do much more else than sleep half the day, and eat a limited diet of ginger ale and sandwiches. my main goal when i decided to spend the summer here was to spend good time with everyone but i also have had this feeling that carl was going to become a greater concern soon and i needed to see what could be done. withing a few weeks of me arriving here he started to show some new behavior that bordered on manic episodes and talking to himself. in about a weeks time it came to a head when he awoke in the middle of the night and started acting very erratic and in ways i thought were possibly going to hurt himself or my grandmother. i stayed up through the night attempting to keep him still and calm until in the later morning i was able to get in contact with his home care nurse. she advised to take him to the VA hospital nearby immediately to be checked for any infections that may have changed his mood and behavior. after some time when we got him there and had him checked over, as i was trying to calm him down for a chest scan and i was alone in the room with him, his eyes locked and rolled back as he went into a grand mal seizure. my first i have ever witnessed. the med folks came rushing in and did what they do and as the seizure passed and he was stabilized, he was transferred to the nearby hospital with a better staff to handle his turn for the worse. as the day and night went on and the sedatives wore off he began to become aware again and continued with the self dialogue and manic behavior that after a few hours turned into rage and outbursts of anger and statements of killing the people who hurt me. he was sedated and i finally decided to return home to be with my grandmother who has stayed home when he was taken to the hospital. over the next couple days he was up and down and sedated many times. finally he was places into the geriatric behavioral floor while we have been figuring out the best skilled nursing care place in a nearby location to place him. this has of course been a big stress on my grandmother claire, as they have been eash others lives for almost 50 years and she has been his main caretaker for all this time. but at 85, i know she is in a real danger of not being able to take god care of him anymore, and that placing him in a good place where people can watch him and make his life proper for however long he might have left. this is hard, very hard, but we both know it is the right thing to do. more will be known this week with where he will be going. speaking of this week, lets move to my grandmother, claire....
having been one of my greatest influences in life, and my caretaker at times while i was growing up, claire has been my main reasoning for making this trip. she needed someone close to be here. to help with things around the house and spend some good time with. and thankfully as time would allow it, to help with what has been going on with carl the last couple months. i wouldn’y have it any other way. yet, she has her own great struggles on the horizon. to say that she has been through a lot on the last 5 years would be a great disservice. she has taken care of her carl, as well as my mother at times until she lost her too the beginning of 2015, and has since lost both of her brothers, bob and eddie. all the while dealing with her own set of health problems which included having some skin cancer surgically removed from her left upper cheek and nose in the last two years. something she actually hid from me altogether until last year when my father informed me against her wishes, she didnt want to worry me. crazy right? well, a couple weeks ago after weeks of having consistent headaches and some tenderness in her former surgery area, her doctor sent for a head x-ray and cat scan. to which he then sent us to an ear nose and throat specialist who with a quick look down her nose with a little camera, informed us more than likely, her cancer has returned where it had been removed 2 years ago. coming up this week we make the trip to the dermatologist at beth israel cancer center in boston to find out for sure and take it from there. again, very scary and stressful a thing to have to deal with at this time especially, but from what i have read, this kind of cancer is rarely dangerous unless it spreads and get close to other sensitive areas in her head, but i am hoping we have caught it i plenty of time to deal with it properly. i wouldnt want to be any where else than with her while we find out whats best and to come. to ease her worry as much as possible and be her support. and speaking of beth israel boston, lets move on to my dad, jerry...
he is not my grandmothers son of course, he is their son in law, a little over a year ago, the apartment he has lived in for the last 15+ years was sold to another owner who promptly ended all leases and asked every out in 30 days. he needed a place to live, and i needed someone to help keep proper eyes on my grandparents. so we cleaned up a room and threw some paint on the walls and moved him in. hes been a stupendous help since. besides being able to take my grand folks to their doctors and what not, hes also a good cook which my grandmother greatly appreciates ha ha. about the same time carl went into the hospital, jerry was having some blood pressure problems that ended up with him having to have an angiogram that revealed 3 major (90% or more) blockages around his heart. one week ago he was admitted to beth israel boston and was given a triple bypass to head off any future heart attacks and such. he’s laid up now and headed to a rehab place to get strength built back up. it’s gonna be a bit of a healing process for him im sure, which is why i am going to be here as it stands a bit longer than first expected.
so, now that were all caught up, i wanted to get y’all updated and thank the lot of you for all the well wishes and phone calls and what not. i’m sorry that i haven’t been great at keeping up with back home or been good at talking to many of you as that talking isn’t something i have been a big fan of lately. admittedly i have been a little overly reclusive with my thoughts and feeling and wants and such, but i’m thankful that i have the good life i have and the people that i love and the ability to stop a lot of things in what normal life i kinda have to come here and be of service.
maybe next i’ll actually take a stab at describing the feelings and emotions that one goes through in the midst of this really hard season, but i’ve never been good at putting all that into words and sharing things or having attention put on me. but, i’m trying to make a change to that for my own mental health and stability. i guess we’ll just have to see wont we. ‘til then, love all y’all.
mind has been way too loud and busy lately. so i decided on a long walk this morning to help it quiet down. this shit is free y’all. get into it. (at Massachusetts) https://www.instagram.com/p/BnhVDvbhmOI/?utm_source=ig_tumblr_share&igshid=1e6iyoub099vw
maybe i need another outlet...
I started this blog over a year ago as i planned to travel across the country with my dog in a van. i never really got into writing a lot about my thoughts on my adventures and i can blame that mostly on living fast and stopping to think little which has its pros and cons.
over a year later i am currently spending the summer in the northeast helping to take care of and spend good time with the little family i have. between declining mental health, up coming serious surgeries, and friends committing suicide way too often, i have found myself more stressed but at the same time more at peace with what is going on. I can attest this only to beginning a path of daily meditation and having enough alone time here to further myself with running and riding my bicycle. exploration of my surroundings in south shore massachusetts have been wonderful.
but still i am caught up in sadness and confusion with knots in my stomach and a clenched jaw more often that i have been. ever. so, i am going to attempt to use this avenue to write out some of those feelings and attempt to share more of my life, and not just the pretty pictures of places and friends that my other social media show.
here’s to sharing and keeping on with life as it comes. xoxo....
#flashbackfriday i chose this one because we're all makin' the worst faces ever, because we're having a hell of a good time, and i love my friends like family. 📸 by: @katherinemdalton #naynkay2015 #rva #richmond #joesammich2016 #brothersinthewind #roaddawgdawg #richmondcolumbiafriendshipmonth #thejealousparade
when a beach wants to be metal...in florida, it can be.
this is all #vegan. y'all who know me know I'm a snob. but this is dank. well done sushiko.
jelly's in the warm sunshine. #rip
also, foggy mornings are superior to all mornings 99% of the time. #columbia #southcarolina #congareeriver #csx
sometimes i take a photo of @snackmastergeneral that looks magical. but he is also droppin off a load too....oh well. enjoy internet. #angusüberalles #snackmastergeneral #whorescuedwho #columbia #southcarolina #congareeriver
hard to find a better reason to come home. #angusüberalles #snackmastergeneral #whorescuedwho
when i'm healthy I want carbs. when i'm sick I want carbs. #carbscarbscarbs don't judge me.
this early morning #coffee selfie brought to you from counter culture coffee and my homie at drip coffee for this ever so relatable mug. ho ho ho.
I think I sprained something reblogging this so damn fast.