Drew | 27 | he/they | AuDHD | Disabled | Nonbinary Transmasc I am very shy and just reblog whatever, there isn't any real order to things here. Feel free to talk to me! I'm awkward but I love talking to people! I like and follow from my main: @yendysear
Hey for anyone who is interested/wants an update on how ive been:
Here it is
I got sick with a flu if some sort for two weeks in late February. Qhich was fine, whatever, I can afford that by working extra when I get back.
I work a normal amount for the next 2 weeks and open up another day of availability. My health seems stable and im having less appointments.
Or so I thought
Mid March I'm out and about. Doing errands. Suddenly I can't fuckin see straight. I'm seeing double and everything is blurry and I can't read anything at all. Signs, license plates, nothing. I pull over once we get to the grocery store and call the eye doctor. Ask if I can be seen sooner as I'm having blurry double vision and its making driving difficult. At this point everything is totally doubled. I cannot focus my eyes. They say they'll contact the eye Dr and get back to me.
We decide to go in and get the groceries we came for since we're here already anyway. I'm having trouble pushing the cart. I'm running into aisles. I can't read any of the signs or the product packaging.
They call me back. They say to go to the ER ASAP.
Ok.
So we finish up and check out and go back home. I call my sister to see if she can take me to avoid an ambulance ride since at this point I don't feel safe driving, and I'm already night blind on a regular day. Going to the ER and being there for hours would potentially mean driving home in the dark with even worse night vision. I'm not doing that.
Sister answers and agrees to take me.
Once we get there and get all checked in (plus them deadnaming me in the check in. Thanks) they decide to run some tests. I get an IV and they take some blood before wheeling me over to do the MRI and CT scans. I'm chilling. Ive done this before.
Over the radio I hear them call for my ER Dr to look at MRI results urgently. Oh. I hope thats not mine.
It's mine. I have a brain lesion on my pituitary gland.
We do some more blood tests before they give me a referral to see the neurosurgeon, get another, clearer MRI, and see the cardiologist (I had also been having some heart palpitations. I have POTS so this is fairly normal for me but we wanted to get me checked out just in case).
Over the next 2 weeks I get another MRI, get those results, and see the neurosurgeon.
The lesion's been there since at least 2022. We don't know why my vision got all funky since it seems stable.
Welp.
Time to see the neuro-ophthamologist.
At this point my vision had returned to normal and I told my managers I could return to work with the permission of the neurosurgeon.
I see the neuro ophthalmologist and everything is normal, nothing is physically wrong with my eyes. The running theory is that I had an ocular migraine along with low blood pressure and low blood sugar that made my eyes. Do that. Idk. We don't know. We're guessing. At least its better right?
Anyway fast forward and I see the cardiologist. Everything seems ok, one of my sleep meds might be aggravating my POTS symptoms. We up my heart med for now and decide to talk to my sleep dr about changing the dose or med used for my nightmares that could be causing low blood pressure.
The neurosurgeon also ordered a CT scan to see if there's any calcification in the lesion to better narrow down what exactly it is. After working on and off since we had my shifts all covered for this schedule (3 weeks out) I finally get that done. Apparently there IS calcification and they want to see me again but it can be virtual. I have that appointment set. Its later this month.
Overall
I'm seemingly fine at this point. The vision symptoms haven't returned. The lesion seems stable since we saw that its been there for a while from an MRI I got in 2022 where it was initially missed.
I missed. A month's worth of work total. And I'm financially struggling a bit.
If you wanna commission me I'd appreciate but if not ill figure it out. I take character illustration commissions at @yendysear if you're interested. All my stuff should be linked there.
I'll keep this post updated for the calcification neurosurgeon appointment results and stuff.
Why is it easier and more comfortable to sit in a position that actively damages my joints than it is to just sit with okay posture. Why does my body crave its own destruction
Over 90% of parents of visibly intersex children opt for cosmetic surgery on their infants.
The ones that don't experience medical violence then, likely experience it as a teenager.
I didn't.
I am very rare in that I did not experience medical violence.
Why? Because I learned what intersexuality was as a young age, and I actively fought against what doctors wanted to do to me. All the way down to legal research on what medical care minors can be forced into. I remember walking into that doctor's appointment with the state law written down that proved that if I did not consent they could not do surgery.
That is why intersex activism is important. It saved me and it will save more.
cis people will say “I found out I’m having a baby girl at my anatomy scan and I’m experiencing gender disappointment” but be mad when you say “who knows? maybe you’ll end up with a son anyway”
christianity being a real facet of peoples lives instead of something you grow out of is killing me what do you mean youre 19 and still believe that mission trips are a positive force in the world
adhd paralysis sucks bcuz im just sitting there and my brain is like
YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME YOU ARE WASTING TIME
no work done no rest gained. literally no point of this at all
unironically i think we need to bring back computer labs because APPARENTLY some people WERENT taught basic computer literacy and internet safety in school
things about computers/the internet i think kids should be formally taught in schools because theyre important to know and the amount of soon to be grown adults i know who know NOTHING about any of these is quite frankly almost all of them (and resources to learn if you dont know these things, because its never to late to get better with computers)
how to troubleshoot by yourself when you have a technical problem
what common file types are
some very basics on how to use ""developer tools"" on your computer (because i cant think of a better way to refer to them) like task manager and command prompt (and their mac equivalents, terminal and activity monitor ofc)
how to read and understand a privacy policy and what your personal data is, as well as what it being collected actually means and steps you can take to keep it private
how to understand terms of service
(hey. if you have trouble with reading legalese and worry about being able to understand these policies anyways, here's a site that gives basic summaries of privacy policies and ToS)
what a cookie actually is
internet privacy and your digital footprint!! seriously i dont know why we stopped teaching people that they shouldnt be putting their entire real identity online in a world where your online actions can ruin you irl
basic safety measures like antivirus software (and why you should use it or if the built in one on windows or mac is enough for you) and backing up your computer (also a mac guide)
common keyboard shortcuts (and on mac)
as an additional note: things i think everyone should know on computers and the internet but schools may bit hesitant to teach about for whatever moral/legal standards schools pretend to operate on
vpns and adblockers! (btw for most of these where you can pay for things im purposefully not recommending any specific software but seriously just use ublock origin for an adblocker)
how to not get a virus while pirating something
what a temporary email is and when to use one
red flags that you shouldn't trust a website (and how to quickly check the security of a site)
what javascript on a website does and how to disable it to get around paywalls
ok one last addition! if you want to take it one level higher, i think learning the very basics of at least one programming language is good for people. it makes computers less scary and it makes you feel very cool, and a lot of people get discouraged about it because it seems overly complicated and hard to learn outside a formal classroom setting, so heres some resources for learning the very basics of python (because i consider it the easiest language to learn and knowing one language will make it easier to learn others)
an online compiler so you dont need to download anything or worry about running code directly on your computer if that makes you nervous
a basic video guide to introduce you to python and walk you through beginner steps
a guide to some syntax and commands you should know (this was literally my lifeline in my first CS class)
some performance tasks to give you things to code to practice and assess yourself
dededos
theartofmadeline
snowghoul
ellievsbear
tangentwithtanner
titsay
origamiaround
