[triumphant music]

abbee / aries / fibromyalgia + pots follow from emojiphobe

[yikesabbee]

a bunch of my favorite artists are coming to my city in the next few months and i can't go bc of how shitty the venues here are with accessibility

[raywantssuperpowers]

There’s something so oblivious and self-centered about the anti-vaxx/anti-science crowd always talking about how “Big Pharma” wants to make them sick.

But do they talk about predatory healthcare pricing or the fact that medicare can’t negotiate drug prices or how companies spend more on advertising than on R&D?

Or how most companies are disinterested in looking into creating new treatments because they are too much of a financial risk? 

Or literally any of the actual reasons that the pharmaceutical industry is actually taking advantage of people?

No, they just want to whine and moan about their kids getting a shot while simultaneously putting many chronically ill people at risk… you know, the ones actually screwed over by the pharmaceutical industry. 

[chameleonchild]

even if you manage to ferret out a fake disabled or chronically ill person how many real ones will you hurt in the process? how many intrusive questions do you need to ask to figure out the difference? how many people will feel like they can’t talk about their genuine experiences now? do you even know all the ways illness and disability can present themselves? what good does finding ‘the fakers’ even do? honestly leave people alone

[fox-and-roses]

I’ve just started to hate those stories and videos of like “girl learned how to walk again after 10yrs in a wheelchair!” Because even though that’s great and should be celebrated, there’s a pressure that ALL disabled people will do that, and if you don’t magically get healed one day, you aren’t trying enough

[lavenderteaspoons]

Everyone, I really need your help. 

As some of you know, I’ve been matched with a cardiac alert and mobility dog from the organization Canine Partners for Life. Wendell is a two year old yellow lab, who I’ll attend team training with in June, but I have a lot of money to raise to make this amazing, life-changing partnership possible. 

Please, if you can’t donate, spread the word. We would both appreciate it more than you could ever know.

https://www.gofundme.com/6tt8f8r8 https://www.gofundme.com/6tt8f8r8 https://www.gofundme.com/6tt8f8r8

[chronic-confessions]

Confession #842

I’m so angry at everyone - this illness makes me fucking hate everyone, flaunting their health taking it for granted whining over nothing. It’s like I’ve lost all my empathy and just feel all this hate towards the outside world. It really takes me aback how much hate I feel.

[lifetakesgutsuc]

[thischroniclife]

When I swallow a bunch of pills and then can’t remember which meds I just took...

[hippyelfchick]

The toughest thing to explain to people is that weird place where chronic fatigue and brain fog intersect; where you’re so far gone that physical and mental energy are both being drawn from the same well, and the well is dry. When you’ve been on your feet and your muscles are screaming they can’t do anymore, and someone asks you a question and it’s more than you can muster to even open your mouth and make a sound. When critical thinking is the same as running a marathon and you can’t remember what you’re doing so you walk into a wall. It all just blends together until your brain and your body both feel like useless mush.

[yikesabbee]

Me: Let me go slip into something more... comfortable.

Me: [ comes back wearing a blanket as a cape ]

[shelbi-therock-johnson]

it’s so weird when abled people reblog posts made by disabled people about their experiences with disability and like, co opt the post and treat the post like a funny exaggeration of an average issue when it’s really not an exaggeration at all, know what I mean? Does this make sense?

[cripplepink]

yes!! i def feel this

[justdishonoredthings]

tag yourself I’m a Weeper

[justdishonoredthings]

(tag yourself Loyalists edition)

tag yourself I’m (still) Cecelia

[yikesabbee]

hey i was hoping you could signal boost this for me, i started a chronic pain/chronic illness support group on Facebook called chronicpain09 support. I hope you and your followers come join :)

yes, definitely! if any of you spoonies w/ chronic pain are looking for a safe place to share your struggles and meet others dealing with similar situations, check this group out here!

[yikesabbee]

life with a chronic illness:

[sad-leafe]

After a nurse told me there was “nothing wrong w me and no reason for the pain” obviously I was upset and then she said . “you should be happy there’s nothing wrong with you, people who are actually sick would love that result.” FUCK YOU

[yikesabbee]

god, that's so disgusting. i wish i could say i can't believe it, but this shit runs so rampant. fingers crossed you're able to get a diagnosis soon! good luck!

[spoonie-living]

Similar in form to Emergen-C, Nuun Active Hydration drink tablets are great for anyone looking to increase their salt intake (shout-out to my POTSie readers!). I ran into a discussion about this product on a neat new Facebook group called *Positive only* POTS Support group :), and as a POTSie myself, I decided to check it out.

For those of you sick of downing bottle after bottle of sugary Powerade or Gatorade and watching your tongue turn blue (or green, or pink), this is a great alternative with no sugar. It still contains all the nutrients you’re looking for, and in significantly higher quantities. Since it’s in little tubes (rather than big tubs of powder) it’s a lot easier to carry around when you’re on the go. And finally, it tastes just fine–maybe like a watered-down Emergen-C. Rather than a big bottle of sugar, it’s more like flavored water.

Let’s do a quick breakdown of a standard 500ml/16oz-ish serving:

Gatorade (17 oz @ 93¢ when purchased as powder in 8-quart bulk) 

Calories: 120

Sodium: 230mg

Potassium: 65mg

Sugars: 29g

Powerade (16 oz @ 55¢ when purchased as powder in 7.5-gallon bulk)

Calories: 100

Sodium: 200mg

Potassium: 70mg

Sugars: 14g

Nuun (1 full tablet=16oz @ 37¢)

Calories: <8

Sodium: 360mg

Potassium: 100mg

Sugars: 0g

Magnesium: 25mg

Calcium: 12.5mg

Vitamin C: 12.5mg

Vitamin B2: 500mcg

Comparison shopping accomplished, with Nuun as the winner! It’s cheaper and has more of what you’re looking for, so definitely check it out.

ETA: Although Nuun tablets are showing up in grocery stores, they’re scary-expensive. Try Amazon for a much better deal.

[yikesabbee]

the problem with being sick is that the minute you feel even marginally better, everyone expects you to jump back into your old life. but that's not possible. you can't expect someone who's life has been turned upside down to start navigating it the same way when the angle has only changed by a little bit.