I Am Not Your Hero by Sarah Cate I am not a hero because Iām fighting Cancer. Iām not worthy of someoneās pedestal because I am choosing to fight for my life. I am not more beautiful, more courageous, more strong, or more worthwhile because I am fighting to be Cancer Free. And I am tired of being told that I am. I am tired of this pinkwashed view of Cancer patients. Of their strength and beauty and wisdom. My Cancer fight is not pretty. My Cancer fight is not laudable. It just IS. In fact, most of the time, itās pretty unpleasant. Sometimes downright gross, humiliating even. Komen, and Pinktober, and all of these campaings to āraise awarenessā (and line corporate pockets) have created this view of Cancer patients as though our diagnosis and our struggles turn us instantly into angels⦠or in the sadder cases- martyrs. But thanks to all the pretty propaganda, I wonder how many of us are really prepared for what it means to be a Cancer Warrior. The world sees the fight against Cancer in a sea of pink product lines. In women wearing pretty wigs and scarves, crowded in clusters of pink waiting to walk for 3 days towards āa cure.ā The world sees strength and hope and courage and signing credit card slips with pretty pink pens adorned with ribbons. But the honest truth of being a Cancer Warrior is not so neat, not so pretty. And maybe it was just me, unprepared. Maybe Iām the one out of the loop. But I doubt it. I have seen the world the way I was told to see the world. The way weāre all told to see that world. Which isnāt to say that fighting Cancer isnāt a hopeful thing. But itās not awash in pretty pink ribbons- and not just because we donāt all just get breast cancer. The truth about Cancer, about being a Cancer patient, a Cancer Warrior⦠is frightening. Itās painful, and stressful, and oftentimes- humiliating. Itās surgery. Itās recovery. Itās popping a staple and oozing in a hospital room at 4am. Itās blood and scars and lines and bruises. Itās finding a vein after 4 sticks because the nurse didnāt listen when you said your iv was slipping. Itās pain. Itās having to call for help to get to the bathroom. Having to ask a stranger in scrubs to wipe your ass because you canāt reach that far. Itās not showering for 3 days because you canāt stand to have a relative stranger see you naked in order to help you. Itās walking squares around the hospital floor with a walker, and a tiny PT nurse at your elbow. Trying to prove that you are capable of moving on your own so that maybe, MAYBE you can go home. Itās waiting to heal well enough to try and start treatment. Itās wondering if youāll heal in time to be able to partake in a research study thatās better monitored than standard treatment. Itās realizing that the study is a hit and miss and that what you really want is best achieved outside of it. Itās late nights reading about your diagnosis, reading statistics, gathering facts. Itās realizing you fight or you die. Itās realizing how close you could have come to dying in the first place. Itās fear. Itās stress. Itās discomfort. Itās saying the words, āIād rather go overkill on treatment now, then wish I had later on.ā Itās realizing that even once you are someday declared Cancer free- you will always, ALWAYS live in fear of it coming back. Because it can always come back. Itās being home. Exhausted. Overwrought. Itās losing your job for missing too much time. Itās going from being neurotically independent to having to rely on EVERYONE for EVERYTHING. Itās daily trips to the hospital in 105* weather to lay on a table for 10 minutes while they shoot you full of radiation. Itās 3 tiny dot tattoos on your abdomen to make the process faster to line up. Itās fighting the urge to throw up every hour of every day for weeks. Itās diarrhea. Itās spending 10 minutes trying to eat, and 3 hours in the bathroom. Itās a panic attack at your first chemo session. The sheer terror of the unknown. Its the taste of the heparin flushing your port. Itās stinging and itching. Itās feeling a healing poison seep through your body. Itās the sheer weightless exhaustion of that first treatment. Itās watching your body disintegrate in the mirror. Itās being grateful that you started out fat because otherwise- youād look like a holocaust survivor. Itās not recognizing yourself in the car window, not understanding the shape and feel of your body. Itās feeling 2 years of self-work on body peace slip away from you inch by inch, pound by pound, meal by meal. Itās the unspeakable, indescribable trauma of watching your hair fall out in clumps. In headaches, and pain and the feel of your skin crawling on your scalp. Itās finally giving up and shaving off whatās left. Because it is the only way to stop wanting to kill yourself when you look in the mirror. Itās buying hats and scarves and trying them on as carefully as you can- so that no one can see what youāre hiding. Itās watching people start to recognize you. To recognize your disease. In public. Itās watching their faces change, watching pity wash over an otherwise normal smile, watching it flood their eyes. Itās trying to find something to eat that doesnāt taste like burnt rubber. Itās plucking out your own few eyelashes because itās less painful physically than constantly fishing them out of your eyes as they fall out on their own. Itās the irony of your eyebrows falling out, but your leg hair remaining resolutely in place. Itās debilitating pain. Itās feeling like your bones are filled with stuffing because they are weak without the strong thrum of marrow that is destroyed by treatment. Itās eating Vicodin that doesnāt really take care of it all, but you take it anyway because otherwise itās not even worth opening your eyes. And sometimes, it still isnāt. Itās hiding from friends and family because all you ever want to do is scream. Because the only thing you can do is complain, or vent, or be angry because you are sick and tired and in pain. So you spare them. You hide. Itās ugly. Itās disgusting. Itās painful. Itās not pretty, or strong, or hopeful. But we do it. Because we want to live. Because I want to live. And maybe that in itself is strong, or courageous, or hopeful. I resent how ill-prepared I was to start my Cancer journey. I resent the halo thatās placed on the head of a Cancer Patient by sheer virtue of diagnosis. Itās great, as long as you donāt have to join their ranks. But as a Cancer Patient, eyes aglow with the flood of pink-washing Iād seen for so many years, one of the hardest things about this whole process was realizing how un-pink Cancer really is. I deserved more honesty than that. Iām tired of this automated response of āYouāre so brave.ā Iām not brave. I just want to LIVE through Cancer.
A very interesting perspective that hits the nail on the head in so many ways, even if I don't feel all of this myself.Ā I have a bit of an uneasy relationship with the whole "brave" thing because as I read it somewhere once, if I'd had any choice I would have run screaming away from this thing as fast as my legs could carry me, which is I suppose an option.