ur heart can tell apart the parts that make it you

they because gay

[ayronaught]

Pinned post

Hi everyone, I'm Ayro!

Please do not send me flashing GIFs or videos

Please do not use text emojis such as :) or ^o^ with me

Emotes (😀☹️💀) are fine though

Please do not send me long blocks of text. I will ignore your ask/comment/etc if i cannot read it

My long information post about screen readers with actual footage of me using one!

Please do not send me coloured text or heavily formatted text (all bold, all italicised, all underlined, etc.)

Profile image by @astressedlittlejaybird !

More stuff about this blog specifically

I don't specifically tag my posts about Christianity

I don't engage with posts or asks asking for donations or money. I am not in a position where I can donate money or check the source to make sure it's legit or that I can really support the cause.

I suck at replying so don't take it personally. If it's important then please send me an ask! But it still might take me a while to reply too.

I'm 18 years of age but blog like an 8 year old. Make of that what you will

Only DNI is nsfw blogs or if you support AI image generation.

Other boundaries

I'm not very comfortable with gendered language and prefer neutral language

Mutuals/friends can call me "dude" "sis" "girl" "bro" etc informally though

If you think (physically) able bodied people can call themselves cripple then fuck off and block me

I prefer person-first language (Ayro has a disability, they live with a physical disability, etc) but I won't be offended by identity first

Cheap food

[ayronaught]

I need Thy presence every passing hour.

What but Thy grace can foil the tempter's power?

Who, like Thyself, my guide and stay can be?

Through cloud and sunshine, Lord, abide with me.

[ayronaught]

The blanket i'm making right now is all different textures for each square because i like the sensory aspect of it

[ayronaught]

However i am running out of ideas so pls suggest some

So far i have

Waffle stitch

C2C

Tunisian crochet

Solid granny square

Back loop only double crochet

[ayronaught]

The blanket i'm making right now is all different textures for each square because i like the sensory aspect of it

[ayronaught]

I know church is about God not the people in it but i feel the difference when i go to church and have really nourishing conversations afterwards vs when i go to church and have nobody to chat to except the vicar

[snow-nose]

good morning. for no reason at all: facial differences aren't always just cosmetic but can either cause or be a sign of internal damage, or be a cause of symptoms themselves

hemifacial atrophy from parry romberg syndrome and en coup de sabre for instance can cause brain damage, cognitive deterioration, nerve damage, damage to the blood vessels (i'm not sure if this is referring to blood vessels in the face or the brain or both), and issues with the eyes, nose, teeth, jaw, and ears. migraines are extremely common. a lot of people also develop epilepsy. rarely, it can also spread to affect one side of the body (or can be present on both sides of the face)

this is one facial difference, there are thousands of them, i'm just using it as an example because i know a lot about it

[ayronaught]

I'm watching football and ok 4 goals is exciting but the play between goals ... is that it

[ecstasemen]

im developing cataracts in my right eye and ill be getting surgery for it on sunday so art might be paused for a bit next week ...

[butch-witches-deactivated202412]

to help OP out for each day it is healing I will invent a new minion hybrid.

day 1: if a minion and shrek had sex that produced viable offspring

[ecstasemen]

that's okay. you dont need to do that actually

[ayronaught]

Embarrassed myself massively in front of holiday church's vicar because i've gotten used to a city church where everyone is on a strict rota

Forgot that most village churches are just "build a team out of who's there 5 minutes before the service starts" and u dont have to give advance notice of potential absences

I got a very lovely message back from the vicar saying basically "chill out my dude it's whatever if u show up or don't do not worry"

[ayronaught]

The first 6 mins of this mornings game is more exciting than all the football matches this year combined and not much has even happened

[ayronaught]

I couldnt sleep all night cos of pain and i could barely use my phone hashtag not having a good time

[ayronaught]

There are not enough words to express my contempt for the (relatively new?) EDS communities filled with

"Here's my 30th gifted mobility aid from a PR package and i am being paid to tell you to not go to an occupational therapist and also mobility aids only have positive effects they can do no wrong ever"

"I am the face of lifelong severe disability because i developed POTS last year"

"I was completely healthy all my life until i was 40 and i'm not really even that hypermobile but i do get stomach aches from fast food and my back aches sometimes, which all disappears when i eat a vegetable and stretch a bit"

"Watch me dislocate my joints" (proceeds to show a hyperextension, not a dislocation)

"If you buy my $500 course I can cure your EDS with products only found in the USA"

"If you go to a doctor you are a privileged arsehole who wants everyone else to die"

"Here are 10 unscientific, unsupported, scaremongering claims about EDS in a glittery font"

"hEDS is a terminal progressive incurable untreatable disease which will kill you. No I have never heard of vascular EDS what is that?"

"I would rather have cancer than EDS because at least cancer has a cure"

"Strengthening exercises can cure 100% of your symptoms and make you able bodied"

"If you make any attempt to make yourself better you're ableist"

"I wish I had a feeding tube to look ill so I'm going to deliberately make myself ill so that I feel validated in my symptoms"

"I think actually 10% of people have EDS"

"Everyone with autism/adhd has EDS"

"Everyone with EDS has autism/adhd"

"Only women have EDS"

"Here's my realistic aesthetic 15 step getting ready for bed program on a flare up day"

[ayronaught]

I'm losing my fucking mind

[ayronaught]

"I've been living with a serious life limiting condition as long as i can remember" (developed pots in 2021 in their 30s)

[ayronaught]

I get that becoming disabled in adulthood after a healthy life up to that point is traumatic or whatever but being born disabled or becoming disabled in childhood is not a privilege

Can i please just emphasise that disabled children do not hold privilege over newly disabled adults

[ayronaught]

Yes to an extent i am privileged because i got diagnosed with eds at age 12 but i am privileged in the fact that i have access to medical care

I was not privileged for losing the ability to walk, nearly needing tube feeding, and for being very ill for all my teenage years

And even though 12 year old me was diagnosed, they didnt hold privilege over undiagnosed 30 year olds because i was a literal child who couldnt walk more than ten metres even whilst supported versus an adult who has managed to get by (even if it was difficult)

[ayronaught]

"I've been living with a serious life limiting condition as long as i can remember" (developed pots in 2021 in their 30s)

[ayronaught]

I get that becoming disabled in adulthood after a healthy life up to that point is traumatic or whatever but being born disabled or becoming disabled in childhood is not a privilege

Can i please just emphasise that disabled children do not hold privilege over newly disabled adults

[ayronaught]

"I've been living with a serious life limiting condition as long as i can remember" (developed pots in 2021 in their 30s)

[sluttynurse]

probably the worst attitude tumblr unintentionally cultivates is "the world out there is completely dangerous for you and no one can possibly understand you, so you should isolate yourself from it and avoid interacting with it as much as possible"