Life with Ehlers-Danlos Syndrome

24 years old. snowboard instructor. This is my daily battle with EDS and all things Spoonie.

[benditliketoni]

Damn it’s been 3 years!?

Hey loves! Been a lil while 😭 how are we all? Whats new with you all? I’m ✨29✨, a mommy to two beautiful girlies now and still suffering with my shoulders dislocating, awaiting a referral to the complex shoulder unit.

[benditliketoni]

Been so absent on here but being a momma is fully taking it outta me. I barely have time to pee let alone anything else!

[notmytraumablog]

[anxious-and-in-pain]

Anyone else be going about their life then suddenly thinking “I’m in too much pain for this shit” because same

[chronicallydee-blog]

You get used to it and the suddenly your like why do I feel like I’m gonna throw up and pass out and then you actually take note of your body and realise the extreme amount of pain your in. And then there’s nothing you can do about it.

[benditliketoni]

Messing around with my new Anastasia Beverly Hills Amrezy pallete, lipstick and brow wiz.

[benditliketoni]

I hope everyone had a good Christmas! I’m so sorry I haven’t been posting or reblogging.

I gave birth to my little girl on the 25th November at 23:38pm. I was induced at 37 weeks due to her not growing and she entered the world weighing only 5lbs 3oz. It was a pretty traumatic experience all in all as I ended up with a c section under general anaesthetic.

Having a newborn when you have EDS has been a definite learning curve! I’m exhausted in a way that I never knew, but she is so worth it.

She is 5 weeks old today and I’ve never been so in love.

[benditliketoni]

Me: sorry my shoulders are so weak cause they’re constantly dislocated.

Normal person: ...there’s no way they could be dislocated all the time, you’d be screa-

Me: *shows my shoulders*

Normal person:

[whatshouldwecallchronicillness]

Me: does nothing

My body:

[benditliketoni]

Everyone says how hard being in your third trimester is - only most people aren’t also chronically ill too.

Jesus Christ I am exhausted/ sore/ uncomfortable.

I feel like the bath is where i am spending more of my time recently!

7 weeks to go though

[benditliketoni]

Just a reminder

Do not apologise for listening to your body.

You take that nap.

You cancel those plans if you don't feel well enough to go.

Self care is so important!

[turtwig387]

I don't know who needs to hear it but your body's "failure" is not a personal failure

[pariztexas-deactivated20210721]

Mad Max: Fury Road (2015) dir. George Miller

[apardonablemonomania-deactivate]

[randobambo]

[dedededededededededededededenne]

I hate that you photoshopped out the right arm of the dog to enhance the realism

[ehlers-danloscircus]

My shoulder today:

[f1ng3rs]

[auradeflor]

[uglyrad]

me

[benditliketoni]

Second trimester got me feeling good though 👌🏻☺️

[nature-travel-photography]

It’s that time of the year when our milky way arm aligns oh so perfectly with Mt Rainier (OC) [1333x2000] @ross_schram - Author: debuggerfly on reddit