"Fauci’s statement that from 25-35% of coronavirus patients may come down with long COVID was helpful – and was used by advocates during the Solve ME/CFS Initiative’s Advocacy day this year. Fauci also knocked down the idea that the long haulers have a psychological disorder, stating “a lot of times people think it’s a psychological disorder. It’s not.” Recently, Medpage Today reported that Fauci explicitly linked ME/CFS and long COVID to some of the top neurologists in the world in a special session about COVID-19 at the annual meeting of the American Academy of Neurology (AAN). Fauci said: “We’ve been chasing myalgic encephalomyelitis and chronic fatigue syndrome without ever knowing what the etiologic agent was. Now we have an absolutely well-identified etiologic agent that should be very helpful now in getting us to be able to understand it. I hope we do; it’s been mysterious to us for years. Maybe this will give us a chance at a breakthrough.” That was very promising. Walter Koroshetz, the Director of the National Institute of Neurological Diseases and Disorders (NINDS) then went further. First, he brought Francis Collins into the discussion, emphasizing that the director of the NIH himself wanted ME/CFS integrated into long-COVID research. “Dr. Fauci and I’ve been asked by Dr. [Francis] Collins [NIH director] to really push on that…There are incredible parallels between the clusters of symptoms seen in those two conditions, and we’ve never been able to figure that one out.” Citing the “very ambitious (long COVID) research” now underway, Koroshetz proposed that studying the long haulers could solve both diseases. “Chronic fatigue syndrome is a real mystery but, in that case, you never knew what the virus was. A lot of people said they had a viral illness and then they had this trouble…(Now with COVID-19) we know when they had it, what it is, and we can actually try to trace the biology, and hopefully, get some clues that will help us understand and treat patients with post-acute COVID” and potentially, people with chronic fatigue syndrome.” Koroshetz also clearly believes that NINDS, the big neurology institute at the NIH that he leads, will play a key role in that. “Neurologists have to play a really important role in trying to get at the bottom of this problem, because it really is in many instances, a neurological problem,” along with dysautonomia, pain syndromes, abnormal sensations, and “big sleep troubles” that linger for months after COVID is first diagnosed.”
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