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@caduceus3
Recovering from autistic burnout as a high-masking adult:
To recover, you literally need to manually learn skills that most people learn as a toddler
You need to learn what makes your body uncomfortable, and what to do to fix it
If you are high-masking, that usually means that you have learned to ignore every distress signal your body sends unless it is a distress signal that a neurotypical person would recognize. People have likely been unintentionally gaslighting you about your lived experience your entire life
If you feel bad or panicked for no reason, stop and try to pay attention to your body. Are you tense? You are likely feeling physical pain somewhere. If you've been gaslit about your pain your entire life, you might not be able to identify it.
Go through a sensory checklist.
SIGHT: Try closing and covering your eyes. If this gives you relief, the lights are probably too bright. You may also need differently-colored lights
SOUND: Cover your ears. Does this give you relief? If so, you may need earplugs or noise canceling headphones. You may also benefit from a neutral or pleasant background noise, like soft music or brown noise.
TOUCH: Are your clothes uncomfortable? Your chair? Your body? Do you feel greasy, like you need a shower? Do you need softer, sensory-friendly clothing?
TASTE: Do you need to brush your teeth or tongue? Would chewing on something help?
SMELL: Is there a strong or unpleasant smell in the room? Do you need to clean or empty a trash can? Would an air purifier help? Would a pleasant smell like a candle help?
INTEROCEPTION: Are you hungry? Thirsty? Tired? How is your posture? Are any of your muscles tight or sore? Scan your body slowly from head to feet, tensing and loosening each group of muscles. Going for a walk or doing a series of quick stretches may help a lot.
Learning how to do this stuff is not intuitive, if you've had an entire lifetime of gaslighting telling you that everything hurting you isn't a big deal and you're being dramatic over nothing.
This takes time, it takes work, it's not intuitive, and it's hard. Most people forget how hard it is, because they learned this as toddlers.
If you want to recover, you need to relearn your whole body. And get over your idea of "normal" and just wear the damn sunglasses and put on the headphones. If people stare, fuck em. You're disabled and they can deal with that.
What a great post! So helpful.
People often ask me about my unmasking journey and express surprise to hear that such a big part of it has been 1) accepting I must avoid light/the sun and 2) wearing clothes I can stand.
I’ll play it jokey and say it like “well it took me far too long to realize that my former wardrobe made me want to jump off a bridge.” Or “turns out my old underwear was anti-autistic.” Or “for whatever reason when it’s too bright, I can’t think.”
It sounds silly to some people. It’s very hard for the average allistic person to understand how severed I was from what my physical person was feeling. It served me to be disembodied to survive for a long time. Until it didn’t.
eliminating all polyester blends from my wardrobe (and polyester in general) changed my fucking life
The other day I told a friend of mine that I never forget to take my ADHD meds because I fucking love my ADHD meds. I'm in my late 30s, I didn't finally get a diagnosis and meds until less than two years ago, and they have changed my entire life.
And he raised his eyebrow at me. We'd been discussing addictive medications a few minutes before, like the Tramadol I finally got from the pain specialist to take once a week or so to give me a break from my chronic pain, so I reassured him that methylpenidate (Ritalin/Concerta) is not addictive (at least not in people with ADHD).
His response? To raise his eyebrow even harder and say "Well it sure SOUNDS like it's addictive!"
And I had to explain to this man - who works in a healthcare related job by the way - that just because medication makes you feel good and helps you, just because you look forward to taking it, that doesn't make it addictive or dangerous. And he wasn't convinced.
The simple fact that I was excited to take a daily pill that has literally changed my life, after decades of fighting to get that medication, made him think I shouldn't be taking it so often. That it must inherently be dangerous.
I'm not even in America, but I'm pretty sure this attitude began there and then spread over here to Europe. This Puritan idea of "if something feels good, you must beware of it. Pleasure is dangerous, it is sinful, it is addiction, it is evil."
I know too many people who subconsciously believe that pleasure = addictive = dangerous = bad. Joy is a slippery slope to hell.
So here is your reminder for today that you don't need to be afraid of feeling good. If something improves your life, use it. Even if it is addictive - learn what that addiction means, whether the addiction is inherently dangerous or not, and whether the benefits outweigh the drawbacks and risks.
My ADHD meds are, in fact, not addictive. But I will take them every day because they make my life orders of magnitude easier. I will enjoy them every time I take them.
My tramadol is addictive. I will still take it. I will keep it on a schedule to avoid becoming addicted, primarily because addiction in this case would mean reduced effectiveness. But I am not afraid of my painkillers. They are life changing.
Take your meds, everyone. Don't let anyone scare you away from doing something that improves your life.
There is something so sinister about the idea that a medication made to improve your life cannot be trusted if it improves your life so much that you like taking it. Bleh.
It puts this weird moral obligation on suffering. Like if you’re actually comfortable with yourself and your treatment you’re somehow failing. That you need to be ashamed somehow that the medication helps you and need to be looking for alternatives.
But you don’t. You found a solution that worked great and then you moved on to something else.
So many people never learned to live with harmless discomfort at any point in their lives and holy fuck does it show
“But I wanna know!” You’re gonna have to learn to be ok with not knowing some things, especially when those things involve personal details about strangers that they’re not comfortable sharing.
“But it’s confusing!” If you take the time to educate yourself it’ll no longer be confusing. Otherwise you’re just gonna have to learn to be ok with being confused.
“But it’s weird!” You probably do weird things all the time. Everyone does weird things sometimes. Life goes on.
“But it scares me!” Is it hurting you? No? You’ll be fine. Being scared and being harmed are not always the same thing. Learn to tell the difference and then act accordingly.
“But I want it!” And I want a million dollars. You can’t always get what you want.
A lot of people were also never told “no” as children and the consequences of that manifest in similar ways. Learn to be ok with being told “no.” You’re not gonna die if you don’t get your way in every single situation ever.
Whenever America starts a war with a nuclear power everyone starts yelling about WW3 and it's only just occurred to me that when Americans say 'WW3' they are at least partially expressing an anxiety that this time their government's blind aggression might have hit somebody who'll actually hit back.
I was gonna say 'like WW2' but then rapidly remembered that neither of the existing world wars involved like. much of any direct damage to civilian populations either because America's eternal wars haven't touched its own soil since like the 1860s. except for Pearl Harbour, which was literally One Attack in the whole of WW2 (and which was also primarily targeting a military base. and was in a colonized nation far from the mainland USA). I am not kidding if you look up 'attacks on American soil' every single thing since 1900 except individual attacks (Pearl Harbour and 9/11, basically plus a couple of border skirmishes with Mexico) is like 'America was attacked In The Gulf States' or 'America was attacked In Asia'. like mate where is the US? you can't count attacks on military bases as 'attacks on US soil' unless you need to bulk out the list which. look at the history.
Like imo one of the reasons the US is so comfortable being leisurely belligerent against Literally Any Country In The World is that it's been literally well over a century since the fight actually came to them. why WOULD the US government stop being blindly aggressive when the only costs are financial?
and instead of being primarily concerned about like. the actual thousands of people who are actually gonna die in these strikes. every time the US's unprovoked aggression hits a nuclear state of a state with a measure of international heft, the loudest concern from Americans is OH NO WHAT IF THIS ONE'S WW3
because. war is so abstract and foreign. because it's spent 150 years constantly happening Over There and only involving Americans who are in the military. foreign wars don't register as a threat because they're NOT a threat to Americans (the only Real People) and the way in which they're frightening is the abstract possibility that the other party might at some point bring America actually into the war. which has basically never happened so it's this vast unknown threat.
(the UK btw is also not immune to this but it's a wee bit different. our economy was permanently crippled by direct damage in WW2 and the Irish republicans got a lot of hits in so there's still some memory that War Has Consequences. but by and large we still approach war as something that Happens Elsewhere and are scandalised by the idea it might directly affect us at home. this is still a fairly abstracted and fictionalised threat to us which we treat as More Worrying than the actual bombings currently happening, but I just don't think it's as completely abstracted as the American relationship to foreign wars)
The Black Tom explosion in 1916 was a German terrorist attack on US soil and resulted in 7 deaths, hundreds of injuries, about half a billion dollars in adjusted damages, and complete annihilation of an island in New Jersey.
Also, WWII was a nuclear war.
SEVEN. SEVEN DEATHS. A CENTURY AGO. is the 'war has come to US soil' you wanted to pull?
Preliminary figures today (4 March) is 787 Iranians killed since 28 February. so forgive me if I say you're proving my point pretty effectively.
similarly yes you are correct WWII was a nuclear war. so far the only one. a war in which the US made the decision to kill over 200,000 people Over There on a different continent and then spent the next 80 years making sure nobody else would be able to either retaliate or do anything similar. And the American (and Western) relationship to nuclear arms remains primarily not 'Jesus Christ I cannot believe America killed close to a quarter of a million people in a civilian centre with one set of orders' but 'oh noooooo what if this means we have to mitigate our aggression in case they do something like this BACK TO US'.
so. again. my point. war in the American cultural imagination remains an abstract thing that THEY do to OTHER PEOPLE where the concept of any enemy action reaching people in civilian centres is so completely abstracted it just becomes a boogeyman and apparently we should still be talking about the 7 American civilians that were killed in a war that claimed in the region of 6-13 million civilian lives in Europe, Africa and Asia.
Seven. Fuck me. I thought I was being needlessly shitty when I wrote this post but you have really helped clarify that this actually is how warped American perspectives on civilian casualties are.
What really bothers me about when people call every current event “an orchestrated distraction” is that ICE and Trump’s propaganda machine regarding immigrants are the orchestrated distractions. They’ve been used to divert attention from issues like wealth inequality, the lack of accessible healthcare, education, etc etc. All these issues have been used to scapegoat immigrants. None of this has to be fixed because everything is their fault. But this ultimate orchestrated distraction has been in the works for over a decade. People are paying with their lives. Words are weapons. The real issues are kept out of focus on fucking purpose.
Henrique Rec 👑✨️