Sleepy-Head

Leah. A seventeen year old girl and her daily adventures and woes of living with chronic invisible illnesses.I pretty much just look for people to relate to, reblog stuff, try to educate, and post rants. In a nutshell: Narcolepsy (T1), Cataplexy, inappropriate sinus tachycardia syndrome (disautonomia), migraines + headaches, and DSPS. Read my "My Story" about me page for more info! last updated: 6th March 2015

[cataplectic]

napping together is my kind of date

[cataplectic]

For like the third night in a row, I just spilled my entire second xyrem dose all over myself. And it's not like I can just mix more, because then my prescription would run out before my next refill. All this because I'm too lazy to actually sit up in bed or lift my head for .4 seconds to drink it hahaha w2g me

[cataplectic]

sorry to bother you, I was wondering if you'd be able to sign my petition, it's to help people with chronic illnesses during their exams, it will only take you about two minutes, just take the brackets out of the link, I feel like I should say this isn't a virus, www(.)change(.)org/p/joint-council-for-qualifications-jcq-give-students-with-long-term-chronic-illnesses-special-considerations

Not a bother at all! I set myself a reminder in my phone to sign it 1st thing when I get on my computer tomorrow, as I'm on mobile right now. Hope it's okay I'm publishing this, the more signatures the better

[snarky-narcoleptic]

Things are going well on the narcolepsy front. To review: 3.75 x2/night Xyrem 20 mg Adderall XR upon waking 10 mg Adderall as an afternoon boost

(Ah, crud, I need to call Dr. Tom tomorrow and get a refill on my Adderall XR. I usually would have an appointment to get the script but something came up on his end and we had to reschedule. The office will give me the script without being seen because I have been faithfully coming to get the scripts every month for at least a year now.)

Random question: does anyone else on Xyrem get crazy hungry after taking their first dose? Happens to me almost every night if I don’t eat like right before bed. I saw a meme on a narcolepsy facebook group that joked about being hungry on Xyrem. I told Dr. Tom that this happens to me a while ago and he was kinda surprised but unconcerned about it, cause it’s pretty harmless really.

[cataplectic]

YES. I get incredibly hungry after the 1st dose!! I end up sleep-binge eating whether I realize it or not like 5 nights out of 7. For most people it's not a problem, but be careful as I've gotten sick from it all too many times and also started to nod off in the middle of eating which lead to almost choking.

I need someone to put a padlock on the outside of my door and lock me in after I drink the 1st dose haha

[openthedooritschip]

maybe i should stop referring to xyrem as the hell drug because i just almost called it that out loud to my mother

[snarcolepticrosencrantz-deactiv]

As someone with narcolepsy, jokes like this make it really hard to open up to people about how it impacts my life. Advertisers hire brilliant people who can craft successful campaigns without using a medical condition as a punchline. Narcoleptics aren’t punchlines, we are people.

[engrebby]

[snaappy]

Visit Original Link

[sizvideos]

Video

[pirism]

The more I try, the more disappointed I get

Me (via unconditional-true-love)

[everafterjudz]

Julie Flygare is the very first person I’ve known to have Narcolepsy.  I read about Narcolepsy for years and mostly centered on scientific or medical data like from wikipedia, newsletters or school journals.  I never have encountered real stories from real people. I’ve surfed some support groups as well as researches employing PWN’s in the US, yet no first-person narration or name/face identification was absorbed in the mind.  Until I directly disclosed about my sleeping illness in the social media this year. I never hide it before though, there is a dedicated effort to make people listen. I met Julie via Twitter that brought me to her blog and Project Sleep, then simultaneously met other PWN’s too. She is now my mentor and friend. 

www.project-sleep.com

[rissecup]

Whether or not the joke offended you personally, the content of the ad suggests the Narcolepsy is a normal symptom of aging, rather than it’s own chronic (unrelated to age) neurological disorder. It is devastating to the awareness that we all work so hard to create when companies (like Honda did earlier this year) spread mass misinformation to the public. The Narcolepsy community banded together to get that ad removed, and we can do the same this time around!

[snarcolepticrosencrantz-deactiv]

As someone with narcolepsy, jokes like this make it really hard to open up to people about how it impacts my life. Advertisers hire brilliant people who can craft successful campaigns without using a medical condition as a punchline. Narcoleptics aren’t punchlines, we are people.

[cataplectic]

I just wanted to say thank you to everyone for the support and wonderful comments you all left on my last text post about what happened at the fire drill <3 It really means a lot to me to have people who actually understand where I'm coming from after an awful day like that. I wish I could reply individually, but I'm on tumblr mobile 99.9% of the time so unfortunately I can't reply to replies.

[flimsywrists-deactivated2017070]

Just because I don’t look sick doesn’t mean I’m not sick.

Just because I don’t look sick doesn’t mean I’m not sick.

Just because I don’t look sick doesn’t mean I’m not sick.

Just because I don’t look sick doesn’t mean I’m not sick.

[thequoteuniverse]

When thinking about life, remember this: no amount of guilt can change the past, and no amount of anxiety can change the future.

This is so important. (via hadeiadel)

[tittytron]

im funnier online where I can’t stutter