being chronically ill

Hello! I am E, I'm a 16y/o Hungarian girl living in England! I've got cfs/me, depression but also struggle with more. I've had cfs/me and depression for around 4 years. This blog is dedicated to educate and to relate too and to help/give advice to anyone! So feel free to send a message/ask! I hope you're having a good day and if you aren't I hope a good one is coming your way soon! So much love to everyone xxxxxxx

[zemma06-deactivated20190107]

A brilliant documentary about chronic fatigue syndrome

[nonbinarypastels]

[Image Description: A half-pink/half-white color block with text that reads “you are good enough, you are worthy of love”]

[so-over-ableism]

5 Things Not To Do When You See A Disabled Person Under 21

I’m a disabled high schooler so I experience this shit a lot and I just wanna tell y’all what not to do, not to be mean but to just educate y’all

Assume we don’t know things. This happens to me a lot. I’m a straight A student, I’m in honors classes, and yet people still think I’m in need of educational help. I know it’s the cane cause people will talk to me normally, but then speak like I’m a 5 year old when they see my cane. It’s rude and honestly disrespectful so pls don’t.

“You’re too young to be disabled.” Holy shit no. Some of us are born with a disabilty and even if we aren’t, you don’t get to say shit about that. My legs didn’t stop working because I’m young, it’s because I have an actual illness.

“You’d be better if you went out more.” I have dealt with this so often. When I’m in extreme pain, instead of getting me pain meds or help, I normally get told I need to go out more. Walk around a bit. Fuck you.

“You shouldn’t rely on that ___” Hell no. If you take away my cane, I can walk but I’ll be in so much pain I’ll start crying. Also? Have you thought that maybe I actually need this cane? I’m not doing it for attention.

Which brings me to… DONT CALL US ATTENTION SEEKING. I promise you that if I could walk without my cane, I would. I don’t want this shit, and you saying it’s not real makes it worse.

This is just the tip of the iceberg but here’s some basic no-nos.

[noping-out-deactivated20241117]

Tfw old people want to complain to you about being old. You know what Marge? At least you got to be young.

[notsograndadventures]

The amount of people who ask me “when” I’m getting better" is ridiculously high for how little I leave my house

[counterbants-blog]

gentle reminders

wash your face!! (esp important if u wear makeup!)

put some moisturizer on!!

drink some water

if things are confusing it’s okay to not have everything figured out!!

breathe in and out. slowly

relax your shoulders

stop clenching your jaw

go pee

if things aren’t going so good it’s alright! i believe in you

don’t forget your meds!

water some plants!! it will help

lip balm!!

get some sleep if you are tired

you will be okay!!

i love you !!

[flares-of-fibro]

me: *cries because I have a headache*

me: *crying makes headache much worse*

me: *fuck*

[earthlyvibration]

They forget to tell you that growing hurts. It breaks you and mends you with whatever you feed it. Feed it gold. Feed it fresh water and tenderness. Become stronger and brighter than anything you recognize. You are sunlight.

[chronicillnesses]

somebody: hey are you okay?

me, beating my repressed memories back with a stick: fine, why do you ask?

[spoonielols]

When the Brain Fog hits...

[nahimoffthis-deactivated2018091]

We here crackin’ jokes to cover the pain, feel me?

[spoonielols]

That nerve pain feel...

[justhypermobilethings]

bending all your joints backwards simultaneously to assert your dominance over abled people

[justhypermobilethings]

Harry Potter and That Time I Almost Fainted in the Shower because I was Dehydrated and had Barely Eaten that Day because I was Super Nauseated and also the Shower was Too Hot

[justhypermobilethings]

me speaking softly to my clackety skeleton: Can’t You Just Calm Down A Bit

[cuzyouwanttotakemypicture-deact]

We should not have to chose. Healthcare is a right not a privilege.

[chronicillnesses]

1000th post!!

This is the 1000th post on this blog what a milestone yayyyy! started this blog almost a year ago (1 year in december) wanting to create a platform where people can relate to each other and have support and help and positivity, and i like to think thats been achieved. So happy with what this blog has become and i love each and every follower! sorry for being so inactive recently, its been sorta busy with starting school! hope you are all well and if not i hope a better day is coming your way <3