an eloquent take down of the "people are self diagnosing autism to be trendy and for attention" take that morons have been echoing on tiktok
[video description is the reblogs, its very long]
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@chronicsonicironic
an eloquent take down of the "people are self diagnosing autism to be trendy and for attention" take that morons have been echoing on tiktok
[video description is the reblogs, its very long]
anyone else stay home for a while and be like "hmmmm been acting fine lately. maybe i'm not autistic." and then you have one (1) social interaction and you're like ah. the Autism strikes again.
Someone needs to talk about the late-diagnosis autistic pipeline where we all get crushed under a tidal wave of epiphanies, have all of our idiosyncrasies dialed up to 11, feel EVEN MORE handicapped by the world, lose all ability to cope, then finally shaking ourselves off and be like "fuck it, I'm autistic, so what? I'm doing the thing anyway"
all the plans I made for the future were based on what I thought was expected of me. even my own future plans were created by me masking. but now I’m burnout and I cannot mask anymore. I don’t have any future plans left, and I do realize the plans I used to have weren’t even my own.
Hi guess what???? I’m back cause I’ve discovered I’m autistic (what a surprise) and I need a place to vent and share helpful posts for myself to read
Ways to describe pain
Because when someone asks “what kind of pain”, sometimes idk how to answer.
Dull vs sharp or stabbing
Shooting, “like electricity”
Hot, burning, searing
Cold, frozen
Pins and needles
Vibrating
Pulsing
Sore
Bruised (you can use this even if you’re not actually bruised!)
Shallow vs deep
Persistent vs wavering (“comes in waves”)
Itchy or scratchy
Stinging
Examples:
A paper cut could be described as sharp and shallow
A bug bite could be decribed at hot, persistent, and potentially stinging
A sprained ankle might be described as dull, bruised, deep, and pulsing
[Image ID: White text in a Galaxy background reads If you: Derail my posts; are an “aspie”; run a sh/ed blog; are under 16; are a TERF; think cripplepunk is for mental disabilities; think that autism isn’t a disorder; are pro-transabled, trace, transage, etc; are pro-map or pro-zoo; are a transmed; want to completely demedicalize autism, I will probably block or mock you. End ID]
my disability: disables me
me: :0
People love to talk about whether or not disabled people can work
but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)
Dead silence. Nobody cares.
File this under, oh you can be active for 4 hours? You can work part-time. Um no, I have to get ready for work (30 min) get to work (15 min) get home from work (15 min) feed myself all day (30 min) maintain myself, my home and my life (15 min, yeah right), which leaves 15 min for work and absolutely nothing else.
This is so accurate, back after I’d relapsed I wanted to try and go in for one class at school so I could still stay in contact with the education system. I let slip during a meeting that I managed to drag myself to that I could manage about 4 hours of activity a week, which the teacher sprang on to mean I was being lazy for just trying to get to 1 hour class. Never matter that it was 30 minutes travel, that I would have to get washed and dressed, that I would probably still need to recover for 3 days from it.
Far too often abled people see the things they do easily as “non activities”, they don’t realise that for many disabled people these things have to be carefully planned and measured, and sometimes they simply can’t be done.
reblog bc the non activities thing seems really important words
I get X number of pain-free steps per day right now, which means that, for large conventions (like SDCC), I need to be in a mobility device. I had someone ask if I used up my steps every day before transferring to the scooter, and look surprised and a little horrified when I said “no, I save them so I can go to the bathroom unassisted.” Like, they had never considered that walking is involved in peeing.
Reblogging for the important point that the term “activity” may mean something very different and much broader for a disabled person with a chronic pain or fatigue related condition compared to its meaning for a non disabled person. If you’re tired enough, simply sitting up in a chair rather than lying in bed is an activity that drains energy otherwise usable for other things. A thing I knew from other people with pain and fatigue related conditions, but worth reinforcing for followers who didnt know or had forgotten.
How do any of you earn things?
We don’t, it’s almost like disability puts us at risk of poverty or something.
Bad days don't make you a failure! Good days don't make you a faker!
You are worth more than what you can do on any given day!
Disabled people will literally display the most concerning symptoms you’ve ever seen and then just be like nah it’s fine I’m good now that happens sometimes. anyways you wanna get tacos?
it’s me I’m disabled people
I’m both pro herbal medicine and pro vaccination because you can treat burns with aloe vera juice and sore throats with lavender infused honey but you can’t rid a country of polio with plants.
Don’t forget kids, jewelweed is a natural counteragent to poison ivy rashes but it won’t do shit against whooping cough
Mint for nausea, valerian and chamomile for sleep, antibiotics for fucking infections.
[ID: a tweet from @/gabrielledrolet. " "Make sure you allow yourself to recover from burnout ✨" with what resources" End ID]
Starting to wonder if I'll ever not be violently dehydrated
The disabled/chronically ill moment when you literally can't describe your pain in ways able-bodied folks will understand.
also thank you to every chronic pain/illness/disabled person on here cause ya'll Get it. I know they mean well but trying to explain your experience to healthy/able bodied people feels like
whatever *succumbs to the horrors*
unironically love the phrase “but I’m being so brave about it” because truly, like, what other choice do we have in this wretched existence? what a beautiful way to remind yourself to keep going, even if only out of spite