Dear Cancer - Youāre so Boring!
I realised today the last time I wrote a blog I left you with the news my cancer is likely to be spreading, I needed furtherĀ scans etc, an unintentional cliffhanger - I apologise, please trust that no news with me is generally good news. So, as I'mĀ still alive (go me!) I thought itās about time I updated you on whatās been going on over the past month.
Well basically, itās all rather boring at the momentā¦ Iād say Iāve always been quite resilient to this disease but Iāve got a real knack for blocking it all out at the moment, my only reminder is my three weekly appointment at The Christie and various other cancer related chores one must complete. Oh, not forgetting the odd aches & pains I get, mostly in the morningsĀ as I get my creaky Jones Bones moving. Speaking of cancer chores, I did attend that bone scan I mentioned in my last post however, Iāve still not received my results. Iāve seen my Oncologist twice since the scan so Iām pretty sure theyāre somewhereĀ in my ever expanding medical folder but to be honest, I have no real desire or interest in hearing what they might be. My main concern in our meet upās recently is discussing whether Iāll be able to do a bungee jump, ride roller-coasters or go trampoliningĀ - all of which have sadly been banned.
My poor Mum, sheās probably desperate to know whatās going on and Iām sure, if any of you are familiar with the term ā Scanxietyā, a word commonly used amongst cancer folk, you might be wondering why Iāve chosen to not find out for myself. Well, Iāve decided to take my own approach, scans can tell us things yes, but I know my body and I feel like it tells me more than any Oncologist can relay from a scan. At present I feel good, everything has improved massively since March (Christ, I remember one night the pain was so bad I actually felt like I was dying - Drama Queen). So even if a scan shows my bones are looking more holey, I donāt feel that way physically so Iām more than happy to plod along ignoring the fact that whilst I feel better, beneath the surface it might be a different story. Ā
Something I havenāt neglected to discuss with my oncologist is my ongoing treatment, as there were talks of going back to intravenous chemotherapy,
(please no!) So weāve come up with a planā¦
Continue Capecitabine chemotherapy until we think itās pointless as itās not working..
Try hormone based treatment until we think itās pointless as itās not workingā¦
Try intravenous chemotherapy until we think itās pointless as itās not workingā¦.
And after that, well I didnāt dare ask.
So I continue to take my daily dose of chemotherapy pills, six weekly denosumab injection and weāve recently introduced a new injection.. Zoladex
- Zoladex stops ovaries producing oestrogen and induces temporary menopause, HELLO HOT FLUSHES! As my cancer is Oestrogen positive we thoughtĀ it wise we try and stop my body from producing it, hopefully stopping the cancer from spreading further. So far so good, Iāve had two injections
and havenāt noticed any immediate changes.
I think that about covers everything.. Now onto the good things! Team Alex were re-united a couple of weekends ago, hitting the trails in the Lake DistrictĀ trekking both Helvelyn and Skiddaw summit. In total we walked/climbed 33 Miles over two daysā¦GO TEAM ALEX! Iām actually amazed I managed to lug myself over both mountainsĀ without any training, just goes to show what the body is capable of, although half way up Skiddaw (with no safe way back down) I did consider calling in the MountainĀ Rescue team. I prevailed though with the help and patience from all of Team Alex, so proud to call them my friends - they are all amazing!Ā
Thatās about it for my round up. Iām off to Barcelona in a couple of weeks for some more relaxing time, I canāt wait! Iāll make sure I check in before I go though! Also, if you do one thing after reading this, please make sure that itās checking your boobs - Thanks!
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