be darkness; vile and brave

34 years old ENFJ-T. EDS (Ehlers-Danlos Syndrome) zebra POTS fainter single mom starving artist photographer terrible dancer hookah smoker relentless liver darkness dweller health challenged this is an overflow of all the stuff that doesn't fit inside anymore. i ran out of room to hate. i ran out of words that haven't already been said. i ran out of tears that aren't close to how much i hurt. it's about feminism, liberalism, equality, peppered with anatomy and art. It's also about my struggle with Chronic Illness; EDS (Ehlers-Danlos Syndrome), POTS (Postural Orthostatic Tachycardia Syndrome), Mast Cell Activation Disorder, Peripheral Neuropathy, Fibromyalgia, and depression.

[crumbsinthesand]

[liberalsarecool]

Government is ‘We the People. #AOC is the People.

[oncelerfucker69-deactivated2019]

“billionaires bad” is an objectively good opinion actually

[notyourmoderate]

One of the best soundbites I’ve heard about modern economics is (paraphrased)) “It’s not possible to earn a billion dollars. It is possible to steal a billion dollars.” There is nobody smart enough, hardworking enough, trained enough and dedicated enough to earn a billion dollars without leveraging corrupt systems and exploiting people. The poverty threshold in America is $11,490 for one person. If someone has a billion dollars, that is 87,032 times the poverty line. It’s possible for someone to be twice as smart as another worker. It’s possible for them to be four or five times as hardworking. It’s possible for one person to have ten times the training of another person. So if you have one person that is half as smart, a fifth as hardworking, and a tenth as trained, they should reasonably earn one percent of the other. That’s the very outside figure. But anyone who takes in more than a million dollars per year did not earn that, they stole it. They found a vulnerable system to exploit or they found a group of people to cheat. Maybe they did it legally. Maybe they paid someone to make it legal to do that. It happens. But “earn”? Actually -deserving- that much money because of their merits and efforts? No.

[crumbsinthesand]

[liberalsarecool]

O'Reilly assaulted co-workers. He thought his wealth would protect him, give him a different set of rules.

[printmakinguakron]

Nidus 

11x14

letterpress, intaglio and hand stitching

Winnie Daulbaugh

[crumbsinthesand]

I'm so proud to know this artist. This print gives me feels. Beautiful and poignant work Winnie

[braintrash83]

[crumbsinthesand]

Ehlers life

[dysautnomia-survival-guide]

a convo i had earlier is helping me get through today. take some time to just rest, you deserve it

[tundrabro-deactivated20170712]

When you’re chronically ill, you don’t take naps, naps take you.

[mackenziesummertime]

That constant struggle between “I can’t show my symptoms or I’ll be a burden” and “why doesn’t anyone realize I’m suffering?”

[magical-agatha]

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[micdotcom]

Jimmy Kimmel “apologizes” to critics for saying kids should have health care

[chronicillnessproblems]

This, and also that’s not even the problem, the problem is that when you get emergency care but you don’t have insurance, you then get a hospital bill for something like $200,000+ and somehow have to pay that even if you only make ¼ of that a year.

[pompadorkery]

[southernliberalbitch]

A Guide for Abled People to Stop Being So Fucking Aggravating to Disabled People

1. sickness/disability does not have a “look” 

2. stop assuming - stop assuming things about strangers, colleagues, coworkers, even friends. you never know the whole story i promise

3. unless you’re a very close friend, do not bring it up as casual conversation. nothing is more uncomfortable than being caught off guard having to talk about it.

4. ILLNESS IS NOT INSPIRING HOLY SHIT if i see another “she has ____ and works 60 hours a week!” article with a million “oh how inspiring <3″ comments, i’ll scream

5. if a disabled person says “i can’t do it,” they can’t. they’re not looking for encouragement

6. pls be more aware of the strong link between disability and mental illness. anecdote - i had no idea why i was so severely depressed for the first year of my illness, until an old friend told me “no that’s actually very common.” more likely than not, your disabled friend/coworker/student/whatever is struggling and they need some patience and understanding

7. yoga doesn’t always work

8. doctors only know how to put people in boxes and treat them accordingly. “just go to the doctor!” is about the dumbest thing you can ever say to a disabled person. i promise, they have. they’ve probably been to more doctors than you’ve seen in your life

9. DO. NOT. MAKE. COMMENTS. ABOUT. MOBILITY. AIDS. 

10. you CAN offer your help in a polite, not-annoyed tone. if a disabled person asks you for help, if you can do it, please do it without complaint or jokes. i used to not be able to lift more than about 20 lbs without it putting me out of commission for the rest of the day - i don’t need shit about how pathetic that is

11. we already feel like huge fucking burdens on our family, friends, and society as a whole. we don’t need the guilt trip

12. if you see a disabled person and your first thought is “oh my god imagine what their parents/spouse/friends go through,” you’re gross and you need to rethink yourself

13. it is literally none of your business what they have, how they go about their life, etc. they do not owe you anything

14. “i hope you get better soon” followed by “wow you’re still sick?” many months later pls pls pls stop. unless you know something someone has is temporary, it’s more than likely chronic/permanent meaning IT DOES NOT GET BETTER

15. “why are you always tired?” it is so. exhausting. being sick and in pain all the time. it’s an unimaginable kind of tired. i can sleep 4 hours or 8 hours or 12 hours and i will still be exhausted

16. chronic illness/disability is literally nothing like the cold, or breaking your hand, or whatever you want to try to compare it to. the difference is that we don’t get better, doctors have no idea what to do with us, and gradually we have to accept it

17. idk just stop being a big fucking bag of dicks

[lagonegirl]

You should share this for people in DC and close to you!!

Black Community we have to be careful. Protect our Girls! Spread this! 

[luthienne]

If it is true that I have the defect of being hypersensitive, of being easily wounded, it is also true that I have an uncanny divination of others’ feelings.

Anaïs Nin, from Nearer the Moon: The Previously Unpublished Unexpurgated Diary, 1937-1939 (via luthienne)

[insist-on-resisting]