Zebra Life : Living with CVID

And EDS, and Rheumatoid Arthritis, and Fibromyalgia...the list never seems to end. 🎶Yo ho yo ho a spoonie life for me.🎶

[eccentric-zebra]

What music is getting you through this shit??

[cvidzebralife]

Gosh - I’ve been compiling music so it really depends on the mood, but “Unity” by Shinedown is just 👌👌👌

[oracleofthehoneycomb]

Why the fuck is my body so hell bent on deteriorating itself fuck

[chronicillness-confession]

As someone with an invisible illness I feel relieved whenever I have a test come back as abnormal. It’s proof that I am ill. No one can deny it or tell me it’s in my head

[chronicallyliv]

You know you’re a Spoonie if…

you dread weather changes.

[thenatsdorf]

Cat discovers oranges and discovers that he doesn’t like them. (via nevermndthealbatross)

[up-north-23]

[thouroghly-inconsequential]

Sometimes “I’m not available” means “I’m not mentally/emotionally available” instead of “I’m not physically available” which is ok! Both of those are equally important.

[catchymemes]

[prof-grace-aspen]

This is the best description I’ve heard for this method, I always thought it was bullshit because I never heard a description that actually explained how to do this other than “tap your head 20 times”.

I have anxiety-induced hissing, which sounds/feels different from sound-induced tinnitus (which I have also experience). Sound-based tinnitus actually sounds like you’re “hearing” something in your ears, whilst the hissing I have feels like it’s “inside my head”, if that makes sense. But this technique still helps!!

[re-bee-key]

OH MY FUCKING GOD IT WORKED!

Ive had tintinis my whole life and its just… fucking gone. What the fuck

[naamahdarling]

Well, it isn’t gone, but it did quiet down noticeably???

[vaspider]

holy shit

[diabeticgf]

living life with a chronic illness like:

[telegantmess]

“wow, you seem to be sick a lot!” Hence the Chronic part of Chronic Illness, Brenda.

[did-you-know]

Happy Palindrome Week!

This one is especially noteworthy because it’s the end of a nine year run where we have 10 palindrome days in a row.

Btw, the next palindrome week won’t be here until 12/1/21!

(Source)

[adudeandhispetdisabilities-blog]

The other day I saw a family with a toddler who was walking, a little unsteadily, while (presumably) the child’s mother pushed an empty stroller. And I started thinking how normalized this is, the idea that a little kid can *walk* but can’t walk *long distances,* and so we accommodate for them. Yet so many of the same people want to start yelling accusations at ambulatory/part-time wheelchair users for having the exact same problem.

[rngrmyk]

[mental-health-recovery]

Focus on the good

[cwunch]

[spoonie-humour]

“You’re too young to be so sick!”

“You’re too young to be using a mobility aid!”

“Why do you rest so much? You’re so young!”

[gif: Hades from Disney’s Hercules saying “I know! I know. I know. I got it. I get the concept” while his hair flares from blue to red]

[septemberequinox]

self care is just going the hell to bed

[spoonieofmayo]

Spoonie life

That wave of emotional instability you get when your energy levels drop all of a sudden