Janaina Medeiros
Claire Keane
Game of Thrones Daily
One Nice Bug Per Day
Cosmic Funnies
"I'm Dorothy Gale from Kansas"
dirt enthusiast
No title available
Monterey Bay Aquarium
Mike Driver
NASA
Andulka
almost home
ojovivo
tannertan36
AnasAbdin
$LAYYYTER
No title available
titsay
will byers stan first human second
seen from United States
seen from France
seen from United States
seen from Japan
seen from Belgium
seen from Ireland
seen from Germany
seen from Malaysia
seen from Germany
seen from United States
seen from United States
seen from Philippines
seen from France
seen from Finland
seen from Saudi Arabia
seen from Belgium
seen from Singapore
seen from United States
seen from Australia
seen from Saudi Arabia
@debbiethelwell
FTD -Living with Dad
FTD -Living with Dad
Happy Father’s Day to all those men out there who are dads, granddads, stepfathers, foster dads, and those who step up when dads are absent. Today, we honor those men who are or have been in our lives to guide, teach, support and love us. For those of us whose father is no longer with us, it is a day filled with memories, hopefully good ones, and love. My fatherly experience was very good. My dad…
View On WordPress
FTD - The Empty Chair
FTD – The Empty Chair
Back from a wonderful vacation, I am sitting here this morning, reading my email, checking my bank account, generally loafing around drinking coffee. I came across several new posts on a Facebook Support group page of which I am a member. The sadness, anger, grief and frustration reminds me of what once was for us and also how thankful I am that part of my life is over. I also noticed that since…
View On WordPress
AFTD Educational Conference 2016 - New BFF's!
AFTD Educational Conference 2016 – New BFF’s!
On May 12, 13 and 14th, I was privileged to have the opportunity to attend this gathering for those who have been affected and care partners. For me, as an alum of this club no-one wants to be in, the best part was meeting up with so many virtual friends that I have made as a result of the bastard disease. (Ha! Take that FTD!) I will share some of the highlights that jumped out to me and…
View On WordPress
FTD - Bringing New Horizons
FTD – Bringing New Horizons
Since becoming a lady of leisure recently (hah!) I have been tackling some projects around my house. Just small things that I didn’t have time to finish (or the inclination when working 50 hours a week) following the big renovation last year. One of the things I noticed while painting, sanding and stenciling, was that if I made a small mistake, or got paint somewhere it shouldn’t be (mostly on…
View On WordPress
Why I'm voting for Happy Hour
Why I’m voting for Happy Hour
Some of my friends are vehemently and passionately attentive to what is going on in the U.S. political arena. I have my own ideals and values – some of which are the same as theirs and some most definitely not. There are also big political upheavals going on in the U.K. – the land of my birth. But the main thing that sticks out to me is that there is one constant throughout history – not much…
View On WordPress
FTD -Ever Decreasing Circles
FTD -Ever Decreasing Circles
As one who has passed through the weird “Looking Glass” of FTD and back again, I now have a different perspective on the day-to-day oxymoron of “frantic meanderings” through tantrums, crises, tears, laughter and frustration that comprises those days. As your life turns in ever-decreasing circles towards the inevitable end point, you become completely caught up in all aspects of the caregiver life…
View On WordPress
FTD - Mission Impossible!
FTD – Mission Impossible!
“It always seems impossible until it’s done.” – Nelson Mandela Work – it means something different to everyone. What is it anyway? I have written about it here before, about what it means to someone with FTD. It represents having control over one’s life, contributing to life, liberty and the pursuit of happiness. As much as we all say “Oh God, it’s Monday already?”, work gives context to our…
View On WordPress
FTD - World Awareness Week 2015
FTD – World Awareness Week 2015
As we round off this week, I have been gratified to see the growing support that seems to be occurring all over the world. It seems that our voices are beginning to be heard and advocates are popping up all over the place! Hooray! Of course our biggest advocate and voice is that of the Association for Frontotemporal Degeneration -the AFTD. I was privileged this week to talk to some of the…
View On WordPress
FTD - Painting, Execution and Dragons - what a combo!
FTD – Painting, Execution and Dragons – what a combo!
I was wondering how I could bring another picture of Brad Pitt into my post this week,but I could not find a connection with which to do that – say, of Brad Pitt painting. Oh well. Since moving back into our family home in March, there has been much remodeling, painting, construction (oh, the dust!) and moving things around. I am finally getting to the end (well, not just I. I had help of…
View On WordPress
FTD - Hello, it's been a while.
FTD - WTH?
I’m back! Firstly, I’m sorry it’s been so long. I have not written here since April. Somehow, I feel a little guilty about that. As I have tried to distance myself from the bastard disease, it has become apparent that proximity is not the issue. What has happened to me is that as I have been able to distance myself from my own experience, I have become more attuned to the experience of others. I…
View On WordPress
FTD - from someone who knows
FTD – from someone who knows
This enlightening blog is written by Cindy Odell. Cindy has FTD.
http://www.ftdnoflowers.blogspot.com/
Cindy writes thoughtfully and honestly about her diagnosis, her life and her frustration as FTD slowly dissolves everything in her life. I am so in awe of her spirit and determination not to let the bastard disease off lightly. I am also saddened that such bright, articulate and intelligent men…
View On WordPress
FTD - Friends, Truth and Disconnection.
FTD – Friends, Truth and Disconnection.
One of the hardest things for the caregiver of a person with FTD has to handle is the withdrawal of friends and family from the day-to-day happenings in your world.
“My best friend who does call me or I call him several times a day is the only one and he doesn’t want to come here cause he doesn’t like seeing Peg the way she is. So hurts sometimes”.
– James, caring for his wife.
It’s not enough…
View On WordPress
FTD - Only the Lonely Know The Way I Feel Tonight
FTD – Only the Lonely Know The Way I Feel Tonight
“I have lost the one person with whom I could share everything. I still talk to him like he understands but he just looks at me. Lonely doesn’t begin to describe this feeling. My biggest fear is that I have not cultivated enough close friends to sustain me when he is physically gone. There will be a lot of empty hours to fill” –…
View On WordPress
enough
enough http://wp.me/s4kA6h-enough
“Love Actually”. Universal Movies. 2003
Frontotemporal degeneration (FTD)* has been part of my life, actually pretty much was my life, for seven years. My husband, Alan, died from complications arising from his dementia on September 17 2012. We had been married for almost thirty-six years. We married when we were 20 and 21…
View On WordPress
Return to the scene of the FTD crime!
Return to the scene of the FTD crime!
After three years in the wilderness (well, not really, but it sounds better than “after three years living somewhere else”). After three years away from my home, last weekend I took the plunge and returned to where it all began. My war with FTD that is.
Seven years ago, my husband was diagnosed with frontotemporal degeneration. We lived together in the home we had shared with our family for the…
View On WordPress
‘My happiness meter is so different now’ – An interview with Deborah Thelwell Here is an interview I did with Rob Perry who lost his mother, aged 55 to FTD in 2013.
FTD Christmas Present and Future
FTD Christmas Present and Future
Last year, I wrote about Christmases Past. As we inch ever closer to the magical season, my thoughts wander, of course, backwards to happier times. Christmases when our children were small. The Christmas Eves spent at home wrapping gifts, cooking, baking, drinking. Watching old movies on the TV, laughing and joking. I feel very thankful to have experienced all of this. To have felt the love and…
View On WordPress