Seraph's Joints

Spoonie with HSD, rheumatism, autism, chronic fatigue, migraines, CPTSD, BPD, NPD and MADD (they/he) 20

[dolljoints555]

Why does gastroenterology only send things through the post?! This is twice now that I've had my endoscopy cancelled because I didn't see their letter, so now I'm gonna have to beg to be rereffered. I don't have access to mail year round and even just checking my mail is such an insane hassle, because it's not even in the same building I live in. Thankfully, I've now realised that I can check it online through the NHS website, so I'm not worried about missing mail going forward. The second time was my fault, but I was expecting them to email or call me like every other branch I've worked with? Whatever, hopefully my GP takes pity on me and refers me for a third time.

[dolljoints555]

I've been WAITING for a gastro appt and I was finally supposed to have one today at 1pm (phone appt). So I waited for them to call...and I waited...and I'm still waiting. At 2:30pm I called the clinic and the receptionist said there was probably just a delay, so she sent a message to the clinician and said someone would call me. It is now past 6pm, the clinic is closed and no ine called me. I checked my phone calls, texts, emails, NHS app and nothing. And people ask me why I have a deep distrust if the medical system (tbf that's more related to medical gaslighting but still).

[dolljoints555]

Gna try and post here more for disability pride

[dolljoints555]

Welp that was a fucking lie 😭😭 Anyway...

[dolljoints555]

Gna try and post here more for disability pride

[dolljoints555]

It's disability pride month so ima lay down the law:

Asking random people for proof of their disability is ableist

Terms like "differently abled" or "handicapable" are ableist

The R slur is ableist

Saying "everyone is a little __" is ableist

Inspiration 🌽 is ableist

Touching people's mobility aids without consent is ableist

Distracting service dogs is ableist

Claiming that anyone is faking, unless they have admitted to it, is ableist

Asking intrusive questions to people who aren't close to you is ableist

Gasping when someone stands up out of their wheelchair is ableist

Lemme know in the comments if you can think of anymore such examples ♡

[dolljoints555]

Born to have joints that don't function and hurt a lot, forced to do manual labour

[dolljoints555]

Disability pride month y'all♡

[dolljoints555]

Yet another GP appt. Pain meds are a no go so I'm just gna have to go on a waiting pist for physio on the NHS bc lawd knows I can't afford private. I am getting referred to chronic fatigue management, but they only take you if your bloods are normal so I've got yet ANOTHER blood test (it's like my 10th in the past few months). Headaches are getting more frequent again, close to all day everyday rather than just 3 days a week for a couple hours. And I'm waiting for a psychosis screening. So all in all, my life's going great.

Lemme know how y'all are doing ♡

[dolljoints555]

Had a concussion abt a week ago and I had to wait 3 hours for an ambulance and 10 hours in a&e to be seen by a doctor 🙃🙃

[dolljoints555]

Angery

Requested an appt from my GP almost a week ago, they hadn't gotten back. I called them td to see if I could get an appt booked, they said there was nothing for AT LEAST 2 WEEKS. Called 111 who gave me a phone consultation with my GP which they attended an hour and a half late, only for it to not be my GP but a receptionist. I've now been put on a pharmacy call waiting list. All I wanted was prescription pain medication (and maybe an ME/CFS diagnosis and physio referral) because my baseline has been worse and flare ups more frequent.