Hey I was wondering how old you were when you developed ic and did you ever find a cause
Hey! It’s hard to pin down a specific time, as it was a slow slide into it. I’d say around when I was 35 or 36 I would feel like I had to pee, then leak a little bit. That got progressively worse (and I kept ignoring it) over months until I started wetting the bed. I went to the doctor and they ran 3 or 4 months worth of tests. Every kind of imaging (Ultrasound, CT scan, Fluoroscope, etc) and a battery of blood tests, as well as ever increasingly invasive, embarrassing, and painful tests on my bladder. By that time I was feeling like a totally normal guy, but wearing a diaper, until my bladder decided it was time to go. Then I’d have anywhere between 10 seconds and a minute to get to a bathroom before it was coming out one way or another. It was weird, because when it started I’d have weeks where it wouldn’t happen, then weeks where it would. I started just wearing when I was out and worried I wouldn’t be immediately near a toilet, and not at home because I could make it, but then I started dribbling and resigned to wearing 24/7.
After all the tests, they weren’t able to pinpoint anything in particular. They started suggesting random medications “that might reduce symptoms”, but came with onerous side effects, and best case scenario would only make me wet my pants once a day instead of a few times a day. In other words - I’d still have to wear diapers, just change less.
How about you?