EDS Confessions

Calling all EDSers! Come and tell me what you'd like everyone to know about EDS. Tell me all the stupid sh*t you've been put through by doctors. Tell me what you need to talk about, but think is too embarrassing for normies. **Ehler-Danlos Syndrome https://www.ehlers-danlos.com/what-is-eds/ https://www.practicalpainmanagement.com/pain/other/ehlers-danlos-syndrome-emerging-challenge-pain-management

[eds-confessions]

Healthy person who just heard me pop all my joints in one weird move: could you not do that, that sound bothers me.

Me: so instead of popping my joints into place you want me to stay in excruciating pain, just to ease your simple discomfort....BITCH GET SOME GD HEADPHONES AND GROW TF UP.

[thepersonalquotes]

[creativeronica]

*resting pain face*

[sober-anarchist]

[makingmyinvisiblevisible]

If only people could see pain - I think they would be a bit more understanding or would show more compassion - especially when you live with a chronic invisible illness. When walking with a crutch, walking stick or wearing braces my invisible becomes visible and people ask what I‘ve done to my leg or my hand etc. But in these moments I get to explain about the enigma that is Ehlers Danlos syndrome and sometimes it’s the first time people have heard of it ... I know these conversations are sometimes exhausting but they are so worth it and teachable moments as raising awareness is so important.

[cutpriceguignol-deactivated2022]

I try not to think about the fact that I and every woman I know with a chronic pain condition had to go through literal months if not years of being told we were making it up, imagining it, exaggerating it before we got a diagnosis because if I do I get so fucking a n g r y that it makes my brain hurt

[madeofbees]

my body: i’m so tired i’m exhausted i can’t function so tired so tired oh my god i’m tired tired tired tired

me: okay let’s sleep then

my body: no

[pharmacyforthemasses]

Marijuana and Medications

Marijuana refers to the parts of the Cannabis plant that are smoked or consumed in edibles. This plant contains 483 substances, some of which are psychoactive (cause changes in the brain). Sixty-five of these substances are called “cannabinoids” because when they get into your body, they bind to these molecules called “cannabinoid receptors” which then triggers a cascade of other biochemical reactions in the body. The most potently psychoactive compound in marijuana is a cannabinoid called tetrahydrocannabinol, or THC. Another prominent cannabinoid is cannabidiol, or CBD.

Keep reading

[aromoji]

Chaotic nonbinary bastard is chaotic

[dysautonomia-darling]

PSA!!

saying someones disability is harder on you than the actual disabled person is not only

ableist

it's also

rude and ignorant

as fuck!!

[eds-confessions]

[crippledgoddex]

Reading about subluxations in anatomy like

[anxious-and-in-pain]

[oh geez that’s me]

[hatin]

“The biggest lesson I’ve learned is, It’s okay. It’s okay for me to be kind to myself. It’s okay to be wrong. It’s okay to get mad. It’s okay to be flawed. It’s okay to be happy. It’s okay to move on.”

— Hayley Williams (via perrfectly)

[threeraccoons]

Some Things I Didn’t Realize Were Complex Trauma Symptoms

I don’t usually post personal shit but my friend and I were talking and there were some things she didn’t know were PTSD related, and sometimes it’s just so weird and out there so. Some stuff I learned too late were caused by trauma:

- Nightmares that have *nothing* to do with your trauma

- Getting angry at anything that startles you/is loud/is irriatating

- Becoming alarmingly calm in situations of crisis/chaos

- Shaking, just, all the time

- Needing very little sleep to function effectively

- Massive mood swings that often get mistaken for personality or mood disorders

- Feeling like there is a layer of dirt on you/that your skin is dirty and needing to get it off

- Believing you will die young and alone !! Big one!!

- Looking for reasons to cut people out of your life

- Needing things to be exactly as you like them to be – not necessarily clean/organized but just to be a specific way and be within your control, and getting angry when it is not *this one gets mistaken for OCD v often

- Preferring high stress/very busy lifestyles to keep occupied

- Needing compression/pressure (ie tight shoelaces, heavy coats and blankets, snug fitting hats, etc) to feel comfortable/safe

- Discomfort with silence

- Very sensitive to heat, smell, and lighting

- Ringing in ears!! I had no idea about this one tinnitus is not that uncommon for ptsd, even if there was no direct head trauma involved

- Physical numbness, often in arms & hands when a flashback or panic attack is about to start

- Derailing conversations when they are causing stress

- Sudden and unexplained onsets of just the most deep sense of melancholy (often accompanied by a lot of tears)

These are just the ones I know of from experience, if there are any others ppl know of and were surprised by pls add. But yea ptsd is not always flashbacks and panic attacks and avoiding triggers, it’s also just random small shit that effects how you exist ¯\_(ツ)_/¯

[eds-confessions]

So I thought I only got PTSD a short time ago, but you just described my whole childhood to adulthood. Damn.

[joint-hurty-juice]

Getting a mysterious pain right before you go to bed, icing it, and just being like "well. We'll see if that's still Happening in the morning"

[eds-confessions]

[positiveautistic-deactivated202]

。・゜              ♡ ・ 。       。・゜ ♡   。・゜              ♡ ・ 。       。・゜ ♡        ♡   。・゜                   ♡           .               .♡             ・ 。       。・゜ ♡  

Please keep going, I know you can do it

    。・゜              ♡ ・ 。       。・゜ ♡   。・゜              ♡ ・ 。       。・゜ ♡        ♡   。・゜                   ♡           .           .♡   ♡   。・゜   。・゜              ♡ ・ 。   

[miriastar-deactivated20190509]

something other people don’t realize about chronic illness: Just because I stopped talking about a symptom doesn’t mean it went away, it just means that I realized you were sick of hearing about it

[wheremyspoonsat-deactivated2023]

Current state 🤪

[eds-confessions]