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@epilepsyculture-is
Hi! ^-^
Please do send in any prompts with the phrase "epilepsy culture is" or something along those lines!
This 'culture-is' blog was inspired by the likes of @giftedkidburnout-culture-is, @anxiety-culture-is, @depression-culture-is, @bop-culture-is, @fanfic-culture-is , and other great x-culture-is blogs!
Admin;
Min | @armysantiny
Ask rules;
no content calling other people/blogs out
no discrimination of any kind
(photosensitive) epilepsy culture is getting triggered by a video with flashing lights even though you have all the possible tags filtered, asking the op if they could please tag the video so you can avoid seeing it, and being told that they won't do it because they know people with photosensitive epilepsy so they know what triggers it
like ok i guess I'll tell my brain it was a false alarm 😭 wtf. i just want to scroll social media without the fear of getting my brain scrambled because people won't tag their damn videos
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Eci based on the previous ask we can reduce it to hoping that people don't treat us like some terminal ill patients and we are just normal people that sometimes have some random reboot
My bad I didn't read the pinned post
You're alright 😅 I should update it honestly, it's been a while
Yo pals I got a seizure mid lecture last Tuesday I guess the professor is traumatized he basically was wondering if I was okay and told about his experience to the other professors that made these condition like some whatever thing that is not a big deal when I was absent
No that's somebody actually experienced that now they know that magically they can't f*** with that
So basically I was absent for 2 days and fortunately faculty will be helping me with getting back on track with my homework
The guys who are the worries me the most is not getting that stuff on public I don't really care but I am worried about and I hate is that people treats us different after being there I honestly I'm seriously hope that they don't treat me like I'm some disabled person because it's just a condition it's not something that interferes with my day to day.
I do appreciate that my friends care about my situation and we're checking on me unfortunately they let go of that after that happened but the fun thing is that faculty already knew about it they just didn't give much importance to it
So wish me luck hopefully when I have my next lecture with that professor he won't be treating me with pins and needles because honestly that's annoying
A little late, but I hope you're doing better now! Being treated like glass after a seizure sucks
And good luck! (Or I hope it went well 😅)
Epilepsy culture is tumblr ads trying to cause seizures. FIX YOUR ADS @humans . I AM TIRED OF DOORDASH ADS BEING BROKEN WHEN I SCROLL SO THEY FLASH AND GIVE ME SEIZURES. I AM TIRED OF ADS NOT BEING FULL SIZED SO THE BLURRED PART FLASHES WHEN SCROLLING AND GIVES ME SEIZURES. I AM REPORTING AND REPORTING ADS FOR BEING BROKEN BUT I'LL GET THE ONE I JUST REPORTED NOT EVEN SECONDS LATER AND GET MORE FLASHING LIGHTS. AAAAAAAAAAAAAAAA
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epilepsy culture is finding texts from when you were impaired after recovering and laughing so hard
spheal is named sorb now forever
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epilepsy culture is waking up in the back of a parked ambulance, and having the first coherent words out your mouth being “for fucks sake not another one”
I just wanted to catch the train. like a normal person does on a Monday evening to get home. Luckily, my last memory is passing through the station entry turnstile, and standing in the lower corridor in clear view of security. I was nowhere near any serious danger.
It’s 6 days post seizure now, and I’m still working off the concussion Funk from falling over. I wish my brain didn’t hate me. I wish i didn’t have to deal with the fear and the medications that i keep forgetting because of the memory issues that the seizures cause that i keep having bec— and around it goes. My one silver lining is i didn’t bite my tongue this time. small victories, i guess.
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epilepsy culture is trying to power through triggers because professionals don't believe it is epilepsy and it didn't come up on tests. i am trying to not have seizures through sheer force of will as my body hates the barometric pressure and flashing lights. willpower is not enough.
(for those unaware: epilepsy can be present without coming up on an mri or eeg every time. it can go multiple tests without being found. sucks ass for yours to not come up and professionals who are not educated to treat you as incapable of knowing what seizures you experience)
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So I'm an epileptic who can't drive (in fact, I've never learned and was threatened with a lawsuit preventing me from attending the free driver's education classes we had at my school way back when) so non-driving epileptic culture is nodding in sympathy to folks who are temporarily unable to drive complaining about how not being able to drive severely impacts their ability to interact with the outside world while internally screaming because this has been and always will be my entire life.
Legit, a lady (who didn't know I was a non-driving epileptic, mind you) went on a long ramble at me about all the struggles she faced not being able to drive and that she was so grateful she had her car back and how the freedom of mobility is what keeps us human and I just want to scream. I hate suburbia and how it penalizes non-driving folks for simply trying to exist. I feel fortunate enough that at least in the town I currently live in, I have a sidewalk so that I don't have to walk in the dirt as much.
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Sorry for going MIA, I've been having a rough few months. Gonna clear out the backlog!
Had a seizure this morning, I'm still so exhausted 😩
epilepsy culture is wishing you could do the small things other people take for granted everyday
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SO HAPPY I FOUND THIS ACC OH MY
epilepsy culture is explaining that seizures arent the only symptom of epilepsy (ie chronic migraines)
Hehe hello!!
So guess who realized he has, in fact, photosensitive epilepsy
At least you know now 😭
Genuinely tho, I hope you're doing alright since coming to that realisation. Having photosensitivity can be rough
Epilepsy culture is using your peripheral vision to verify whether or not you're having/going to have a seizure
cw for being a bit venty. that wasnt my intention.
Undiagnosed/possible epilepsy culture is getting dragged into a video game you are unfamiliar with, by a kid online you dont remember friending, and getting hit with flashing effects with many of it's features. not. telling this person if we could stop with the flashing lights because. ive dealt with it before, ill do it again.
and then having the worst seizure you've had in a while. after spending a few hours feeling like your gonna start shaking violently at any moment after.
I just.. want. people to see me. i want help bad.
Oh mate, I am so sorry :( genuinely hope you get a consultation soon so you can get the help you need
epileptic culture is finding yourself saying things like "a little window in my skull that i could open to relieve pressure would fix me" and everyone who is not epileptic around you being concerned about it
Nothing like a bit of trepanning to relieve symptoms :D