Autism is a good thing

Call me A. He/Him. Autistic and physically disabled. Semi verbal but hate talking. My special interest is My Hero Academia. I have synesthesia, hyper mobility spectrum disorder, and I love music . Welcome to my blog! Here Autism and all disabilities are celebrated! I try my best to make things accessible, any tips are welcome!

[youngchronicpain]

when will doctors realize that denying chronic pain patients pain management can literally kill us?

[geometricmentality]

Apparently I’m “too young” to have chronic pain. Thank you so much doctor, why didn’t I think of that?!

[kelpforestdwellers]

i follow somebody on tiktok who is on a ventilator, has a G tube, J tube, ostomy, port, and stays alive via those and 24/7 infusions. she is at an ICU level of care, at home.

and medical professionals STILL routinely dismiss her symptoms as anxiety.

she said she felt like someone was sitting on her chest and she couldn't breathe - despite the ventilator. they said it was anxiety, until they found all the infected blood clots in her lungs.

i am telling you this because i was both horrified and validated to learn that there is literally absolutely no degree of sick you can be that can prevent doctors from dismissing it as anxiety.

i know how hard it can be to believe in your own experiences and to advocate for yourself, especially if you're not used to how often doctors are dangerously incorrect, or if you have experienced their gaslighting.

but if you feel that something is wrong with your body, you are the one who knows best.

[tavalen]

disability advocacy went wrong when it became about inspiration porn and “differently abled” and savants. its incredible that that guy with no legs did a triathlon but your sister with no legs will not and she doesnt need prosthetics or five hour training days to deserve respect and compassion and accommodations. its incredible that that autistic guy can look at a city from a helicopter for an hour and then draw the entire detailed skyline from memory when he lands but your autistic friend cannot and they dont need to have a special Autism Power to deserve respect and compassion and accommodations. 

activism framed around “we are just as CAPABLE” means that when people genuinely are less capable they are left behind. activism framed around “we are just as WORTHY” is fundamental to radical compassion.

[arctic-hands]

Ok seriously what is medicalcore and now what is traumacore

Is it like hospitalglam because I'm okay with that because it's a bunch of actually sick and disabled people acting goofy or sexy at our own appointments or hospital admissions or with their own mobility and medical devices, but if it's a bunch of ableds doing a hospital aesthetic I'm going to be mad. Same with traumacore

[geometricmentality]

So I’m disabled and I do it to make myself feel better, but yes I’m 99.9999999% sure that it’s ableds on their bullshit again.

[imkrisyoung]

Verbal communication is not the only form of communication. There’s AAC apps, writing, typing, sign language, etc.

And just because a person doesn’t communicate verbally doesn’t mean that they’re not capable of advocating for themself or making their own decisions.

It’s ableist and dangerous to assume otherwise.

[thatadhdmood]

a tragedy

I cant vocal stim and eat lunch at the same time

[disabledprincesses]

Relationships don't fix illnesses

Happy parents don't fix illnesses

New presents don't fix illnesses

New hair cuts or clothes etc. don't fix illnesses

Distractions don't fix illnesses

Closeness in faith doesn't fix illnesses

Do they sometimes help us mentally to give us hope, or something to cling to while we go through it?

Usually yes (depends on the person)

But it won't fix us.

[dankmemeuniversity]

[youngchronicpain]

I can't stand up straight right now and moving comes with involuntary gasps of pain. I need to get in the bathtub but I'm alone and I'm not confident I could make it back to my bed. My pain meds and mmj are barely touching the pain. I wish I could just force my body to do what I need it to do so I could feel better more quickly.

I need to be more prepared next time. I've been thinking of putting together an "emergency flare bag" that is always ready for me when I'm flaring. Filled with self heating heat packs, single use tiny tooth brushes, floss, water bottles, snacks, a filled pill box, pain patches, a pain journal, comfy but easily removed clothes, etc.

Because I'm not always at home when things go wrong with my body, and even when I am I usually don't have everything in one place where I need it.

If you have any ideas for items to include please let me know!

[geometricmentality]

I don’t know if you use a mobility aid, but getting a fold up cane might help. They have some at cvs and most Walmart’s. But if you’ve never used a cane be careful because it can hurt your wrist. You could keep it in your bag and grab it when you start to flare.

[owlet]

tbh i’d absolutely prefer to live in a world where assistive devices are so common and taken for granted that people who literally don’t have any medical need to use them at all can just use them if they feel like it. instead of this bullshit artificial scarcity situation where we don’t let people get the mobility devices they need because Fuck You

[faeriesaurus]

god forbid i become dependent on the mobility aid i'm already dependent on. i will become addicted if i use it every day. mobility aids are so addictive.

[geometricmentality]

Hey I ordered some mobility/disability aids so I thought I’d share. Image ids are with explanations.

Image Id: all of these images are in the white amazon order list with green text for the name. End.

Shoe inserts that have good arch support

Id: light purple shoe inserts with a very thick heel. The bottoms of them are visible, they’re black with grips. End.

Hiking sticks. These aren’t meant as mobility aids but I’ve been wanting forearm crutches and these are much cheaper. Hopefully they’ll work for me. They have wrist straps so I won’t drop them (that happens a lot.)

Id: A pair of pink and black hiking sticks with these accessories next to them: storage bag; stickers to change the color; a variety of tips for different terrains. End.

Wrist braces with a thumb brace! Finally I found a brace that should keep my thumbs in place. I have brachydactyly which is a joint deformity. Basically I’m missing half of my thumb joints, and that happens to be the part that would keep them in socket. Fun. /s.

Id: A white hand held in a loose fist. There’s a thick wrist brace that wraps up around the hand and thumb. A small number “2” is visible in the bottom right corner. End.

Ankle braces that have side supports! Again, joint deformity. I was thinking of getting fitted for afos but those are expensive and insurance probably won’t cover them.

Id: A white foot with the heel lifted slightly. There’s a thick sleeve around the ankle and the middle of the foot. Plastic and steel bars are on either side, held on by an extra strap. End.

New ear defenders. I have no clue where mine went and it’s been hell without them. Especially bathroom hand dryers.

Id: A pair of black and white headphones, with another pair in a box behind them. They’re folded up. End.

And lastly, a knee brace that actually looks like it’ll help. Notice a trend here? None of the braces I have give proper support, mainly because the medical field doesn’t care about hypermobility. My other option is custom, but that would literally be over a thousand dollars US.

Id: A gray and black knee brace with the inner sleeve next to it, the package it comes in in the background. The brace has an open kneecap and multiple straps, it also has a side support. End.

So I’m probably not the first person to use hiking sticks as mobility aids but I might be the first person to blog about it. So maybe this’ll help someone.

[geometricmentality]

Ok wow I haven’t posted on here in forever. Um I’m back but I honestly don’t know if I’ll post that much. Just thought I’d give a little update so you know I’m not dead. Anyway things that I want to share

I came out as a trans guy and I’m going to my first psychiatrist appointment today. Also hoping to get an autism diagnosis but that’s not top priority. My health is ok I guess. Through physical therapy I’m able to walk (at least right now) but I’ve been having some mystery kidney issue. We don’t know what’s wrong and I’ve already seen a specialist. So I guess I just have to wait till this gets bad enough. My family has been ok during all this but mental health stuff has effected everyone. I (knock on wood) haven’t had covid but my grandpa did. He’s fine now he had a pretty mild case luckily. We did lose my great grandma (his mom) because of covid but she also had stage four lung cancer so it was her time anyway. One of my cats also passed as well as my grandmas dog and that’s been really hard to deal with. My cat was very sudden, he was only 7.

I want to start hrt but it might negatively impact my kidneys and liver so I might not be able to. My mom doesn’t understand but frankly I don’t care. My special interest is still my hero and the anime merch collection keeps growing (it’s becoming a problem). I’ve also found a store that let me set up a stand to sell my art so we’ll see how that goes. I made a tiktok that I don’t really want to share but uh I’ve been getting harassed by trumpets so thats fun.

Anyway yeah I just thought I’d let everyone know I’m doing ok. Most of the people I was friends with on here haven’t posted in like 6 months so that’s sad :(.

[smolalpacacutie-deactivated2021]

Types of Stimming - click image to see better.

[neurodivergent-nesamone]

me, listening to the same song for the 62nd time: this is everything i have ever needed to exist. this is it i do not need food or water or any other stimulation, just this song but loudr jUSt tHIS

[geometricmentality]

I get scared sometimes to listen to new music because I’m so used to new sounds being unpleasant. Seriously how do you just??? Enjoy?? It???

[00437bedsheets]

it’s pretty much common knowledge on twitter but i don’t know if they’re widespread anywhere else? they might be, who knows, but i wanna make an informational post anyway

tone indicators!!!!

a tone indicator is a little addition to the end of a sentence, post, etc. that confirms the tone you typed it in! it’s REALLY helpful for neurodivergent people like me because in my own personal experience it’s hard for me to tell what people are exactly trying to say sometimes, especially over text. the main tone indicators i see people use are:

/j (joke)

/hj (half joking)

/lh (lighthearted)

/s (sarcasm)

/g or /gen (genuine)

/p (platonic)

/srs (serious)

/lyr (lyrics)

/c (copypasta)

/q (quote)

here are some examples:

i’m pissed off /srs

i love you!!! /p

wow way to go /s

i’ve been insensitive, i’m sorry /gen

so on and so forth!!! spread the word :)

[biggest-gaudiest-poltergeist]

let’s talk about the sarcasm switch aka /s

adding /s to the end of a statement is used in many online communities to denote sarcasm

this is useful to people who have trouble reading the tone of a statement without verbal indicators

this especially helps include neurodiverse folks in the conversation! 

this type of slang is based on HTML syntax, and there’s more:

/s  -  sarcastic

/j  -  joking

/srs  -  serious

/hj  -  half joking

and more besides! like emojis, html tone indicators provide important context & clarification to written communication. you can include a wider audience by using them, and autistic readers like me will really appreciate it!

if you already use tone indicators, which are your favorites?