No title available
gracie abrams
ellievsbear
macklin celebrini has autism
TMBGareOK. The Official They Might Be Giants tumblr
RMH
Lint Roller? I Barely Know Her
almost home
TANKHALL
EXPECTATIONS
hello vonnie
Cookie Run:Kingdom Official!
art blog(derogatory)
Product Placement
❣ Chile in a Photography ❣
Kiana Khansmith
Mike Driver
Game Changer & Make Some Noise
PUT YOUR BEARD IN MY MOUTH
No title available
seen from United States
seen from United States
seen from United States
seen from United States
seen from Türkiye
seen from United States
seen from United States
seen from United States
seen from Iraq
seen from United States
seen from Netherlands
seen from United States
seen from United States
seen from United States
seen from United States
seen from United States
seen from Malaysia
seen from United States
seen from United States
seen from United States
@ifallmyspoonswereladles-blog
If all my spoons were ladles...
The joy of singing wouldn’t be balanced with the pain in my throat.
I posted this about two years ago after an ENT diagnosed me with GERD. Now here I am, two years later in a different city, waiting to see a new ENT for a chronic throat infection.
If all my spoons were ladles...
I wouldn’t be too tired to take a shower.
Sleep Study Results
Totally normal. Completely unhelpful in figuring out my chronic fatigue and chronic daily headaches, but at least I know that certain aspects of my body are able to function normally.
MTX Night!
Shout out to anyone else who takes their methotrexate on Friday nights to avoid those dreaded “hangovers” during the school or work week. Weekends are for relaxing, so take the time to rest and recover. You deserve it!
It’s that time of week again!
Chronic Daily Headaches
I like to describe it as having had a headache for just over a year now... I’ve had so many tests and so many doctors and tried so many things and no answers. So this is what we’re calling it and a name isn’t really any progress, but in some ways it helps because it makes the problem seem more legitimate. Also, I’m going to be trying amitriptyline for it, so hopefully that helps and doesn’t make me too much more drowsy and/or dizzy than normal while I’m on exams.
I just had a really honest conversation with my housemate about my RA and how I felt about it as a child versus how I feel about it now. I’m used to rambling about doctors appointments and test results, but I usually leave out how I feel about these things. It was really nice to feel like I was in a safe enough place to be listened to.
Remembered to phone the doctor today and I have an appointment to discuss sleep study results next week!
I am exhausted, but I got a lot accomplished today and even saw some friends. I am really proud of myself, but definitely ready for bed!
I only remembered to phone the doctor at times when I couldn’t pull out my phone...oh, brain fog. I guess I have to phone tomorrow.
Need to phone the doctor in the morning to ask about test results. Fingers crossed for some helpful information!
Three cheers for everyone who is incredibly understanding, even though they can not and do not understand.
I think it’s important to remember that, even on our good days, we still have a limited number of spoons. That on our good days we tend to overdo it because we’ve gotten through so much of the day seeming like our spoons are unlimited that we are determined to keep up the facade for an entire day.Ultimately this is taking spoons away from the next day and the days after that. Take care of yourselves and know your spoon limits, even on a good day.
Discouraged
Yesterday I failed my road test and my immediate reaction was to post that I was sad. But sad isn’t really what I was feeling. The emotion I was looking for was discouraged.
Being a spoonie leads you to long for many things. One of those things is independence. It’s incredibly discouraging to have not passed the driving test because getting out of the house is so hard already. I already have to rely on other people for so many things, why can’t there be one thing that I can rely on myself for, even if only on my good days.
It’s also discouraging because I was told that I just need to practice more. But easier said than done for a spoonie. I need to have enough spoons to go out and practice. I understand that it is not safe for me to drive once I reach a certain spoon level. It’s upsetting, but it’s a reality that I have to accept. Just as anyone should not drive if they are unwell or unrested. For spoonies this is more of a regular occurrence and it makes it especially hard when learning to drive because it’s hard to get consistent enough practice to get the skills down.
I’ll be taking more lessons soon and am definitely trying again, but for now I am still feeling as though my license may be yet another thing out of my reach.
Failed road test = one sad spoonie
On my feet in the lab from 9 to 5. Needless to say, spoons levels low.
Just had a nice chat with one of my friends about their role in my life with chronic illness. Very thankful to have acknowledged support from the people in my life.
Spent most of the day in bed yesterday and anticipate spending most of the day in bed again today. Either way it is extremely unlikely that I will make it out of the house... Saturdays are fun...