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@itpawarenesss-blog
To all that has seen this page/my other page, I just wanted to let you all know that I've been discharged from hospital and no longer have to monitor my ITP (as its on good levels).
Thanks to all that share my posts/read them/heart them. Means a lot. I'll continue to post on here.
The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families o
If you want to learn more about ITP then visit this page:
https://itpsupport.org.uk/index.php/en/
Monday the 27th of January 2019
Me and my ITP
I want to share with all of you something not many people now about. Ever heard of the blood disorder called ITP? Probably not. It is rare. And guess whose got it? Me.
Immune thrombocytopenia (ITP) is a disorder that can lead to easy or excessive bruising and bleeding. The bleeding results from unusually low levels of platelets — the cells that help blood clot.
I was diagnosed on Tuesday the 9th of October 2018 (Yeah I know it seems like a while ago but its not, well it doesn't feel like it). On the morning of that Tuesday I had a blood test and in the evening they called me into the hospital. Being called in as an "emergency" is scary, I will be honest, I cried. The worst thing was my parents couldn't hug me because I would bruise and get a peteshi rash.
That month just wasn't my month because I also hurt my wrist, the doctors said it was broken but it wasn't, I had a haematoma (a solid swelling of clotted blood within the tissues). I did it in a play centre.
Anyway, when I arrived to the hospital they took me to the observatory ward. I waited there for a while. A nurse came and did my OBs (heart rate, blood pressure), they were fine.
Eventually the doctor came. He sat down on the edge of my bed and asked a few questions eventually he said:
"You have Immune Thrombocytopenia Purpura which is a blood disorder that effects the platlets. This would explain the brusing and peteshi rash".
Those words have stayed with me for a while. But those weren't the worst words that came out of his mouth.
This was the same week I was going to DisneyLand Paris. Yeah DisneyLand, problem is with a blood disorder you can't ride the rollercoasters. These were the worst words that came out his mouth:
"You won't be able to go on the rollercoasters"
Those words stung. My plan was to take my younger sister on the biggest rollercoasters, but it never happened. Instead I did the kiddie rides with my youngest cousin.
So that week I didn't know if I was allowed to DisneyLand, I didn't pack, I tried not to think about it.
I got to the end of that week. I was expecting to hear from Phill Connor, the head kid doctor in the Heath. He was the man deciding if I could go to Disney or not.
We got the phone call on the Friday, I was in my nans. My mum came down the stairs and looked at me. I could already feel my tears building, for the worse or the best. She stood there nodding and answering. She came off the phone and looked sad, then she started smiling.
"WE ARE GOING TO DISNEY!!!!"
My mum was so happy, she started calling my dad and messaged my brothers. She left a message at my sisters school to let my sister know. I was going to Disney!
But I still couldn't ride the rollercoasters. You can guess how that went, I stayed with an adult most of the time and my baby cousin. My parents made it magical though, we had a breakfast with some of the characters.
ITP isn't known. Not many people know what it is, my school had to be informed and they had no idea. I couldn't go in the halls or play PE, do drama.
Everything was taken away from me in a second. I couldn't do anything physical, couldn't hold over 5kg. No running. No cycling. No NETBALL. No rollercoasters.
It had been hard and it still will be hard. There is no treatment for ITP. They could give me steroids, but that could take a bad effect on my body.
My last hospital appointment my Monday the 6th of January 2019. On that date my doctor said I will probably have this blood disorder for life. Which then it makes it a chronic disease.
ITP can effect anyone. You can get it from any age. Please share this post to make ITP more known.
#ITP-AWARENESS
#ITP-AWARENESS
We act now!
Immune Thrombocytopenia Purpura
ITP - a blood disorder that affects the platlets. This is were the white blood cells attack the red blood cells, which ends with the platelets being destroyed.
