Check out this NY Times article, written by Floyd Norris, that was published on Friday.
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Check out this NY Times article, written by Floyd Norris, that was published on Friday.
Nation-wide effort to bring attention to the ban against gay/bisexual men donating blood & increase pressure on the FDA to lift it.
HIV Risk Factors and Blood Donation Discrimination
From the list of blood donor eligibility criteria for the American Red Cross:
Now, if you have ever had a positive HIV test, then no, you shouldn't donate blood (and you are probably well aware of this). But if you happen to be a man who's had sexual contact with another man, even once, in the past 37 years, you shouldn't donate blood?
Seriously?
That is blatant discrimination based on sexual orientation, which was illegal last I checked (and at the very least generally frowned upon). Yes, men who have sex with men are statistically more likely to be infected with the HIV virus, but so are black/African Americans, Hispanics/Latin(os/as), people of ages 20-29, and those who live in California/Florida/Texas/New York. Should everyone who falls into one or more of these categories be barred from donating blood? Of course not, the idea is preposterous. HIV/AIDS is not a "gay" disease. It can affect anyone. The problem here is not MSM, it is how society continues to wrongly perceive HIV/AIDS. According to the FDA, we should probably still be calling it GRID.
It can take up to 3 months for a blood test to show that you have HIV after coming into contact with the virus. If you don't have any risk factors, great, be generous with your blood as long as you meet the other eligibility requirements, and make sure that you still get yourself tested once a year. If you are in a high-risk category, it's advisable to get yourself tested every 3 months. If testing recommendations are adhered to, there is no reason that any category of people should be under a blanket deferral from giving blood. The American Red Cross eligibility checklist is already based on an honor system. Why couldn't it just be expanded a bit to cater to more potential blood donors? Since MSM are the highest risk category of people, I'll start there:
ex:
Are you a male who has had sexual contact with another male, even once, since 1977?
If yes, are you currently in a monogamous relationship?
Have you and your partner both had 4 consecutive HIV negative tests, at 3 months intervals, in the past year?
If no, have you had 4 consecutive HIV negative tests, at 3 month intervals, in the past year?
In the past 3 months, have you had sexual contact with a new partner, or a partner whose status you do not know with certainty/is not in a monogamous relationship with you?
That's only three more questions. Just three more short questions on a questionnaire and maybe even a quick HIV test at time of donation (and not even just for MSM, but for all donors) would serve to increase the national blood supply by safely and systematically validating a considerably large chunk of the population as blood donors. This would also be a step in destigmatizing and normalizing routine HIV testing, as well as in creating a society that doesn't treat homosexual people as dangerous, second-class citizens who aren't fit to donate blood simply because of their sexual preferences, even if said blood is proven disease-free and perfectly suitable for donation.
Many people protest the need for questions regarding their sexual history, which is absolutely understandable because of the deeply personal nature of such questions as well as how easily they are perceived by potential donors as irrelevant. Insensitive as may seem, it's necessary to consider the statistics of HIV infection in the blood donation eligibility determining process. It would be simply be irresponsible not to. That said, it is certainly possible to do so without blanket exclusion and alienation of any category of people.
Mr. Lee
"In 1978, I was one of the first people in the city that tested positive. At the time, they didn't know what it was. So, I've been living with HIV for 36 years. God has blessed me a lot...I'm in good shape. I'm probably in the best shape of my life right now."
-Mr. Lee on living well with HIV, June 2014 interview with ABTW
Self-checking in Research
An important part of the research we're doing and media we're creating with Anthropology by the Wire is ensuring our work has the potential for life beyond this project. Key questions to ask ourselves:
1. Are important issues being overlooked in the research process?
The central focus of the video documentary we're working on is exploring real life examples of the benefits of therapeutic photography and more specifically, how contributing their photography and stories has impacted the lives of the people who participated in the making of Life Don't Have to End. Really, this is the important issue in our research process, and we are investigating it thoroughly.
2. Is feedback from the activists being incorporated sufficiently into the research conclusions?
Feedback from the activists really comprise the bulk of what our research conclusions turn out to be, so yes.
3. Are these findings being made available in a form, style, and location that is accessible to activists outside of the academy?
Absolutely yes. Our findings will be posted across popular social media sites and tagged appropriately. Our content will be easy to find and highly accessible. We are also hoping that the video documentary we create will be played at future gallery showings to accompany the pictures from Life Don't Have to End.
Preparing for the Hamilton Gallery show of ‘Life Don’t Have to End’—opening July 11th @ 5 pm.
Kithia preparing the Hamilton Arts Collective’s gallery showing of hers and other JACQUES Initiative patients’ photos from Life Don’t Have to End with Anthropology by the Wire researchers.
I’d like to start with the disclaimer that today’s post will be sectioned off into three parts: the first containing my thoughts on the HIV 101 course, the other pertaining to meeting with ambassadors of the Jacques Initiative, and the last concerning the relationship between society’s view on...
Although I was a bit miffed by "Unfortunately our current society is not only sex crazed but also passes artificial and arbitrary judgement based on the sexual activity of others" (the irony here is pretty apparent), I thought this post brought up some valid points about society demonizing sex, love, and illness that don't align with what the majority or those in power deem appropriate and acceptable.
Become friends with people who aren’t your age. Hang out with people whose first language isn’t the same as yours. Get to know someone who doesn’t come from your social class. This is how you see the world. This is how you grow.
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Great article that Ben found. It details the different facets of therapeutic photography (i.e. the photography used in Life Don't Have to End) and the healing it can facilitate. The article outlined 10 main benefits of therapeutic photography, all of which were pertinent to the JACQUES photographers. There were 3 benefits that really stuck out to me as being especially important and recurring as we interviewed the photographers about what they got out of contributing photography to Life Don't Have to End:
Encourages sharing, storytelling and dialogue
The social stigma of HIV/AIDS can be a huge deterrent for sharing personal stories and struggles of living with the illness. Life Don't Have to End helped to further foster a sense of solidarity and community in its JACQUES contributors as it strengthened their bonds and abilities to communicate with one another.
Overcomes barriers to verbal expression
More than one of the photographers mentioned that putting their photographs and stories into Life Don't Have to End allowed them to share deeply personal emotions, triumphs, and struggles in a way they were comfortable with. The book gave the photographers a medium through which they could clearly and concisely state and show their story as a polished finished product that conveyed exactly what they intended.
Confidence and self-esteem
Having photographs, poems, and/or stories published in a book gave the JACQUES photographers a sense of pride and self-worth. They also felt it gave their families something to be proud of. To the photographers, contributing to Life Don't Have to End was a way to show their loved ones that they were more than their diseases or addictions, and that they could be somebody and accomplish something.
Mr. Albert Tribute Video Treatment
goal: tribute to/memorial of Mr. Albert, simple videography that doesn’t detract from content but highlights important quotes from friends and aspects of who Mr. Albert was
audience: Albert’s friends, JACQUES ambassadors and members, friends and family of JACQUES, Life Don’t Have to End contributors
time frame: ~3 minutes
>Who was Mr. Albert?
blend interview snippets describing who Albert was as a person -> as a friend -> his role in the JACQUES dynamic
Go through transcriptions and find quotes from different interviewees that would follow each other in a seamless, logical order to clearly tell who Albert was/how he is remembered/his impact on others
insert frames that include text/voice over of important quotes from interviewees
>as Ms. Kithia, Mr. Curtis, etc. are talking about Mr. Albert, cut to video footage/photos of Albert with whoever is talking if possible
>As Mr. Albert’s photography or what LDHTE meant to him is discussed, cut to his photographs
Thanks and well wishes from some of the most inspirational people I've ever met. They are kind, courageous, eager to share their stories and to reach out to others. They are living well with HIV/AIDS, because "HIV/AIDS is not a death sentence. Life don't have to end."
They may look hideous, but is there a more complex issue behind them?
Providing shelter for homeless people when it’s raining, this initiative couldn’t be further from ” defensive architecture “.
Leo Burnett - Raising the Roof (2010) - Awareness campaign for Canada’s homeless
Simple but powerful message
"among anthropologists it’s a mortal sin to write about oneself"
I’ve been seeing and hearing a lot surrounding the use of reflexivity and after seeing this quote I feel I have to address it.
As a person who thinks the use of positionality, or the explicit description of identities, is extremely important the way we have approached in class has been a surprise. It is true that most anthropology entails the research and understanding of “other people’s stories” however to ignore one’s own identity is to miss a huge part of the story.
According to Merriam-Webster dictionary a scribe is (a) an official or public secretary or clear or (b) a copier of manuscripts. Anthropologists are not mindless scribes taking notes about what is going on. We observe cultures and participate in them. We are actors in these situations, whether we want to be or not. By giving ourselves the title of “scribe” we are ignoring how we shape these instances, but more importantly we ignore the power dynamic.
How does your gender (and gender performance) change the information you will be given? How does your race change the information you will be given? How does your ability status change the information you will be given? And the list goes on…but generally in the United States there are generally 8 aspects (page 12) of social identity: age, race/color, ethnicity, religion, gender, ability, sexual orientation, and class.
I’m not saying you should write about yourself all the time - but if you want to, that’s not a bad thing. It all depends on the goal of your research. But to not acknowledge your positionality which is also your bias, makes you biased. Each person has their own story and they are all important in different ways (please ignore the sappiness). As one of my friends told me, everyone is an expert in their own experience, and anthropologists can learn from those experiences, even their own.
Point beautifully made. We can learn cultures and stories and preserve them and share them and that, in itself, is beautiful. But we can do more. We should do more. As anthropologists, we have the education, tools, and (in my opinion) the consequent obligation to help the people we study express, find, and/or construct the meaning in their lives. We can positively impact the people we work with. We are not holding clipboards and observing zoo animals. We are working with living, breathing people. We have biases and opinions and we must acknowledge them to create an honest and meaningful representation of what we study. If I felt that my job here was truly just to be a scribe, well...I'd just as soon not be here at all.
I'm having a fantastic time working with the ambassadors of the JACQUES Initiative. Everyone remembered my name and greeted me like an old friend on only my third day with the program. We also got some really incredible interview footage of different ambassadors talking about their fond memories of Mr. Albert and how the book "Life Don't Have to End" has impacted their lives. Up bright and early tomorrow morning to conduct a couple more key interviews.