Ehlers Danlos zebra

London Needing multiple spoons for the day. I spent my New Year's Eve in my pj's wbu

[bendybitchesanonymous]

May 2019 bring you enough adequate pain relief that you can finally get out of spoon debt.

(May 2019 bring you enough adequate pain relief that you can finally get out of spoon debt)

[chronicallyinvisible]

chronic illness has this really fucked up dichotomy where you spend your life trying to find some sort of purpose but end up using all of your energy doing so

[82spoons-deactivated20190331]

eds lifehack

sit on your bathroom floor for 45 minutes before taking a shower because it’s exhausting. just do it. coward

[kallersleviolet]

Just got home after being in A&E for a few hours, shout out to the staff for getting my asthma attack under control and I blame my doctor for not taking me seriously in the fact I need a nebuliser and some steroids because I have a chest infection shout-out to the #nhs

[nikolajdanishpastrycosterwaldau]

[burymeinpink-remade-deactivated]

i eat a lot of bread because it’s soft and i deserve it. also i am gorgeous

[heavensickness]

[chronicllyillcollegestudent-blog]

me to my hips: Country roads take them home tO THE PLACE THEY BELONG. GO BACK IN YOUR SOCKET PLZ

[thebootydiaries]

anyone: *says something to me*

me: haha yeahh

me in head: what did they just say

[polyjql]

I keep saying IRL “you know that feeling when-” and getting strange looks.

But you know that feeling when your joint needs to crack? Particularly a joint in your leg, like your hip, knee, or ankle. And you’re just walking on it and it needs to crack but it won’t and so it just feels misaligned as shit and it hurts b/c it feels misaligned as shit.

And you’re like ffs crack already and your joint is just like (: no

[my-adhd-self]

One of the worst things about chronic fatigue is when you so, so desperately want to wake yourself up, and focus, and be alert, but you just can’t no matter how hard you try.  You’re just stuck in this fog and you can’t get out.

[benditliketoni]

“You’d never know you were Ill just by looking at you!”

Aye, no shit…

[benditliketoni]

You know you have a chronic illness when:

You have 3+ hospital appointments in 1 week.

[kallersleviolet]

2 a day is always great

[benditliketoni]

“People with chronic illness are not lazy or underachievers. If anything, we are warriors. We live with what can feel like overwhelming circumstances, yet many of us find a way to continue to smile in the face of adversity. We fight an unrelenting and uninvited assailant every second of the day, one that we didn’t ask for and didn’t want for our lives. Yet we manage to keep going, keep smiling, keep finding ways to live our lives with purpose in spite of all that is against us. That’s not being lazy or weak; that’s being courageous and strong.”

— Stephanie Emory http://themighty.com/2016/07/when-people-say-im-not-trying-hard-enough-with-my-disease/

[onlinecounsellingcollege]

“Mental pain is less dramatic than physical pain, but it is more common and also more hard to bear. The frequent attempt to conceal mental pain increases the burden: it is easier to say “My tooth is aching” than to say “My heart is broken.””

— C.S. Lewis

[chronicallyem]

“Why can’t you just...”

Me:

[benditliketoni]

Gotta love chronic nausea. 

[mighty-spoonie-blog-deactivated]

*sweeps the floor*

*shoulder blades die*