when life gives you lyme

hi, i'm Angela. i'm 26, i live in MA. #spoonie i'm currently battling Lyme disease, babesia and bartonella. i'd love to hear your story so feel free to shoot me a message :) (ps. this isn't my main blog, so if i follow you/message you it won't be this URL x)

[sunlight-and-sparrows-deactivat]

Talking to doctors like:

[shelbys-advice-blog]

Chronic illness masterpost:

coping with feeling lonely or scared

if you are between the ages of 13-20, you may be able to join starbright world, a social network for chronically ill teens

7 cups of tea (talk to trained professionals)

the thoughts room (type out your feelings and watch them disappear)

coping with depression

dealing with feelings - chronic illness

baymax ask RP blog (for advice in a cute baymax way)

medical/general chronic illness things

this might sound silly, but sometimes it’s better to read about your condition on teenshealth, where information is presented in a simpler, friendlier, less medically sterile format.

teenshealth links for info about medical conditions and treatments: (x) (x)

balancing schoolwork and hospital stays (teenshealth)

instead of using websites like wikipedia or webmd, trust websites such as mayo clinic for information about your condition

the teenage spoonie’s handbook - google doc written by chronically ill teens, for chronically ill teens

chart for which painkillers work best

things you could put in a self-care box

dressing cute in a wheelchair (video)

decorating a nasal cannula (video)

hank green’s video about living with chronic illness and ‘the new normal’

info for teens with ulcerative colitis and crohn’s disease

post about dealing with feeling like you’ve lost potential (gif warning)

self-harm help

alternatives to self-harm

taking care of self-harm injuries

happy/calming things

ambient noise masterlist

more calming sounds

more masterposts of movies, recipes, cute stuff, etc

the nicest place on the internet

make everything ok

compliments

chronic illness boredom busters

justlittlethings

cuteyahooanswers

babygoatsandfriends

RRCherryPie youtube account idk they calm me down

make a nebula

play games

simple colour matching game

make a pokemon secret base

learn a new hobby

music

songza

pandora radio

all the audio posts youve reblogged

8tracks mixes for chronic illness, hospital, sadjamming, or uplifting

my skin

detox just to retox

sickness deeper than skin

x

tales of a sick lass

chronic illness

chronic illness tag in general

the tfios tag is also sometimes good

strength tag

chronic illness blogs on tumblr

chronic-illness-support

chronic-illness-cat (memes)

a long list of chronic illness blogs

list of some tumblr users with chronic illnesses, organized by illness

Chronic Illness / Pain:

Tips for Coping with Chronic Illness

Coping With Chronic Illnesses and Depression

Living with a Chronic Illness

Living with a Chronic Illness: Reaching out to others

But You Don’t Look Sick.com: Handling Isolation That Comes From Chronic Illness

Where to Begin: Finding Help During Chronic Illness

Living Well With Chronic Illness

Teens Health: Dealing With a Health Condition

Keeping a Positive Outlook When Dealing With Chronic Illness

Head Held High: Coping With Chronic Illness

10 Steps for Coping With a Chronic Illness

Coping With Chronic Illness

Coping With a Diagnoses of Chronic Illness

Healing Well.com: Chronic Illness Support

Peer Support Network: Chronic Illness Alliance

Meetup.com: Chronic Illness Meetup Groups

Chronic Illness / Pain Hotlines:

Chronic Pain Hotline: [phone]-PAIN

National Mental Health Association: 1-800-969-6642

Samaritans Crises Hotline: [phone] (free, despite not being 800 number)

Volunteer Emotional Support Helplines

Other hotlines

[mitski-miyawakis]

when your therapist says “you wanna know what I think?” and you know you’re about to be read for filth

[marisatomay]

me: if youre dead you dont have to do homework or get stressed over school so it would eliminate anxiety

my therapist:

[ourstrangeduet]

me: I dont wanna like…… do things……..

My psychologist: You have to, do things

me: 

[aphrodeiti]

Do you ever become desensitized to your own trauma?? Like you’ve been dealing with it for so long that when you accidentally let it slip out in conversation and the persons like “um oh my god?” You’re like wow I forgot my life has been one unspeakable horror after another #noted

[1dietcokeinacan]

It’s disgusting to make fun of someone who battles addiction regardless of who they are, but Demi Lovato has done so much to help lessen the stigma of mental illness just by being so publicly upfront about living with her multiple disorders, I can’t believe someone would ridicule her for this recent overdose. This is a woman who has lived in the spotlight since she was a CHILD. Since she was 16 years old she has had to navigate her addiction, bipolar disorder, self harm, and bulimia within a hostile, enabling industry and in spite of constant public scrutiny. More than any great talent she possesses, Demi Lovato is a fucking hero for being a woman who has kept on living and loving and fighting thru it all. Shame on you if you think this is fodder for jokes and memes. Fucking misogynists

[impotsiblelife]

Don’t beat yourself up if you’re chronically ill and can’t exercise as frequently as you’d like to. 

Exercise is often recommended as a treatment for chronic fatigue and pain, but those symptoms make it difficult to exercise. A lot of people with chronic pain and fatigue, myself included, experience an increase in symptoms during and after physical activity. It can be hard to find the time for exercise if you know you’ll need a few hours to recover afterwards, and it’s difficult to motivate yourself to do something you know will leave you in even more pain. 

Doctors and mostly healthy people often don’t understand these challenges, but don’t let anyone make you feel guilty about how much you do or don’t exercise. Try your best and don’t stress. 

[living-with-lyme]

I wish there was more awareness of Lyme, especially here in the Northeast. People don't realize how serious it is. They don't know what it can do to them. They don't know nearly enough, especially the doctors, and they don't protect themselves. I see kids running into the woods and long grass in shorts and flip-flops. I don't have Lyme, but I know a damn lot about it. To be living with it, you're incredibly strong, especially since you're so young. Hopefully someday they'll find a cure for this.

i don’t know why i’m just seeing this now as you asked this nearly a year ago but alas! here i am!thank you v v much i appreciate your kind words 💘i agree. the ignorance about Lyme sometimes is worse than the symptoms. i feel as though we are making some progress finally. one step at a time!

[chouchouamazigh-deactivated2023]

Breaking down barriers: Russian designers present catwalk collections on disabled models at Moscow Fashion Week

[bando--grand-scamyon]

here for it

[whitepeopletwitter]

Be better to each other

[living-with-lyme]

been forever since i posted a selfie on here but hey guys 👋🏼😘💓

[lemmondoge-deactivated20180822]

Another autism acceptance meme

[ommanyte]

[theeeprotagonist]

The realist one

[probablystillmad]

Feeling called out

[mitski-miyawakis]

when your therapist says “you wanna know what I think?” and you know you’re about to be read for filth

[mackenziesummertime]

That constant struggle between “I can’t show my symptoms or I’ll be a burden” and “why doesn’t anyone realize I’m suffering?”

[magical-agatha]

!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

[deliriumcrow]

All. Of. This. Yes.

[living-with-lyme]

depression is not showering for almost a week. depression is not answering your texts because typing words is too hard. depression is driving in the car in silence. depression is skipping school and work because you’re too tired to get out of bed. depression is setting an alarm 10 minutes before you have to leave your house because you know you’re just going to end up wearing sweatpants and a sweatshirt anyways. depression is sometimes so numbing that you’re unable to cry, or crying so much you start to throw up. depression is not eating one day, and then eating all junk food the next. depression is people thinking you’re crazy, lazy, or faking it. depression is wishing you died in that car crash you saw on the news instead of that innocent little 3 year old girl. depression is messy and isolating. depression is not a trend. it’s not pretty. it’s not fun. stop romanticizing it.