LupusLife_5

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May is Lupus Awareness month!!! #Hope #Lupus #Lupusawareness

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I love being by your side. Forever. #willie #mrswright #forever #beards #husband #myman #myhappyplace

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Poor Cyllie Sparkles! But look at my Ava's smile. So glad Cyllie allows this. #catlover #cat #AvaElizabeth #ava #kitty #momlife

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#lupus #lupusawareness #lupuswarrior #mom #momlife #chronic

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Willie has been teaching Ava about beards for the last week or so. Yesterday she was on her stool, brushing her teeth in front of the sink, and the chair fell foward and she hit her chin. She shrieked and I ran to her in a mother's frantic and then she yelled "I hurt my beard" and I knew everything would be ok. Love her!! #AvaElizabeth #ava #beard #beards #myman #twoyearsold #myhappyplace

[lupusfight]

Good Morning!! Today I'm going to work on counting my blessings. This definitely includes my dog, my coffee, my attempt at Yoga, and the fact that it's my favorite day of the week. Happy Thursday! #blessed #lupuswarrior #thursday #thuglife #positivevibes

[lupusfight]

How we feel about early morning doctor appointments!!!! However, most of the time it takes a few hours before we're done but because we were early we got in and out in about an hour. Winning! Just a little Lupus fact that I don't normally share with people, but in hopes to help with Lupus awareness.... I have to go to the rheumatologist every 12 weeks just for my normal check up. I get treatment done at my rheumatologist building every four weeks. So just to be able to keep my normal regiment of meds that help me walk, move, talk, live, function, I have to see a doctor 16 times a year. While I was pregnant with Ava I went three times a week, once for ultra sound and twice just to hear her heartbeat. I did that for 20 weeks. So that year I went to the doctor how many times??? I've been to the ER about once or twice a year since I've been diagnosed. I hate the ER! None of this counts my normal Gyno appointments, the Dermatology appointments for Lupus rash, the Physical Therapist so I can keep moving my limbs, abdominal injection appointments so I can continue to eat or heaven forbid I get an actual cold or the flu and have to see a normal practitioner. It's safe to say that I'm a little sick of the doctor and I'm only in my thirties. Supposedly this thing lasts a lifetime. Talk about a life changer. But no worries, I have until Friday before I have to go again. :) #lupus #lupusawareness #lupuswarrior #chronicillness #chronicpain #fibromyalgia #spoonie

[lupusfight]

Sparkles

[universitywithmecfs]

Here’s a thing about pain

…Or my pain anyway.

Most of the time my baseline pain is manageable, I’ve accepted it, befriended it so to say. I have strategies to cope with it. I’m aware of it in the background, like the hum of a fridge or the fluttering of a fan.

You’d think, being aware of this pain that I’d notice any changes in my pain level. Except I don’t really, or at least not at first. 

Keep reading

[lupusfight]

Truth

[illness-adnauseum]

Reblog if your illness does define you

Reblog if your illness has shaped your outlook on life and the world.

Reblog if your illness has warped your perceptions of people and social situations.

Reblog if your illness has altered some of the most fundamental aspects of your personality.

Reblog if your illness has impacted all of your relationships, and even been the reason for the beginning or end of some.

Reblog if your illness is often the cause of your moods and emotions, and affects nearly all of your moods and emotions in regard to other things.

Reblog if your illness has changed the strength of your virtues, from compassion and tolerance, to perseverance and determination, to gratitude and generosity.

Reblog if your illness has been a part of your life for so long that you honestly can’t differentiate the parts of your identity that are influenced by your illness from the parts that aren’t influenced by your illness.

Most importantly, please reblog this if you’re okay with your illness being on the incredibly long list of things that define you. Reblog if you don’t feel like your identity has to be completely undefined by your illness in order be valid. Reblog if you don’t necessarily like the parts of yourself that come from your illness, but don’t think that makes them any less you.

[lupusfight]

Truth!

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One pound of beef and one date night later...still love him!!

[lupusfight]

I’m Sick. Sick of people acting like I’m depressed. Sick of thinking this will get better. Sick of others

thinking

wishing,

wanting

the same. Sick of hurting. Sick of crying.

Sick of new symptoms. or are they side affects? Sick of going to the doctor’s office. Sick of meds. Sick of being in pain.

Sick of restrictions. Sick of changing my life for this thing. Sick of seeing those I love change their lives for it too. Sick of my chronic illness taking my sun.

Sick of seeing my kids hide the sad when I can’t go play, or I can’t drive that day, or I had to cancel, again. Sick of knowing I caused the sad. Sick of knowing that the sad and the disease are not going anywhere. Sick of being strong.

Sick of feeling sad.

Sick of being sick.

Ready to make a difference.