Open your mind before your mouth @nokindofhome - Tumblr Blog

Just incase you all forgot what I look like 😇

Having Ehlers Danlos Syndrome sometimes feels about the equivalent of being composed of jello and wet spaghetti. Nothing stays where its supposed to. Literally every single cell in the body is floppy, so fingers are definitely an issue for many of us. I can almost guarantee that for the majority of us, writing is not only slow and painful but nearly impossible at times. FIne motor skills? What even are those? An EDSer surely doesn’t have any of those. Even typing which is far easier than writing, is painful and daunting at times. But last year I joined the population of shiny zebras by getting fitted for a set of Silver Rings Splints and they are beyond magical.

For those of you who have not heard of The Silver Ring Splint Company, they are a company that custom makes finger splints that look like elegant pieces of jewelry. Don’t believe me? Well I can’t even tell you how many compliments I’ve received for them. Nobody even suspects that they might possibly be medical. But more importantly, they work amazing! I still have hand pain and finger dislocations when performing fine motor skills and writing is definitely not something I look forward to but I have saved myself thousands of painful dislocations, I can open doors easier, type faster, write longer and hold objects in my hands without looking like an alien from a sic-fi movie. With the rings on my fingers actually look like fingers rather than tentacles!

The company is also family owned and the people are so sweet and helpful!

If you are having trouble with hand pain, clumsiness and dislocations please check out this amazing company!

http://www.silverringsplint.com

cozycaffiene-deactivated2018040

I’m literally crying right now. I will be able to use my hands!!! As it stands I can’t do dishes, hold things, write, hold books, type, without pain or dislocation. Oh my gosh. This is a miracle.

aquasplendens-deactivated202411

@peaceypanic

tinyratfeet-deactivated20160331

those are gorgeous and that is amazing how well they’re working! signal boost!

murderouswaterhorse

I love these things. I use one for my thumb because due to arthritis I have very little strength/support in the joint and therefore often can’t do anything. My splint makes it possible for me to do my job, do the shit i need to do and not have as bad of pain.

lancrebitch

these are so cool

omg the first ehlers danlos post I’ve seen, this makes me happy!

video-hall-of-fame

omg

chasingandrea-deactivated201509

marinadallas

nokindofhome

appreciatecandor

ofsparrows

Summer twitter doodles ☁

blazepress

goldwomyn-deactivated20200705

I’m so exhausted with the notion that if #SandraBland would have kept quiet she would have been alive. That as black people we need to be “smart” and listen. That she should have never mouthed off at the officer. All of this respectability politics nonsense ignores the civil rights movement. It ignores changes that came about as a result of not listening. What would happen if civil rights leaders would have listened? Would have not mouthed off? Would have kept quiet?

At what point did we convince ourselves it is our duty to keep an officer from killing us even when we’ve done nothing wrong? At one point did we take on this burden?