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@oldlittlemama
Wound care supplies,wound and books.I forgot the classical music that calms the entangled nerves
I never imagined that this would happen ,horrible nightmare
I told him not to do the surgery but he did not listen. I hurt for him ,for me so much.
Two days ago a big anniversary,about 100 years andof course it iced that day couldn't celebrate-the year started with coffee maker braking,then best dog ever gets attacked,then snow and ice and then surgery=all in 5 days
I hope the next 5 days are better
In the oncology unit at Good Sam
Jan 1st 2016.
The new year arrived with a gust of wind and clear brisk day. The wind is relentless and has not ceased for almost 24 hrs. Random trees are down ,the ones that could no longer sustain themselves, dry rotted from the inside and thus their tragic demise after 50 to 80 years of life. I am afraid that with this global warming so many of my beloved apple trees at the park will soon die as well.And to think that they are not replaced by apple trees is tragic. The park people don't want to maintain them but Lord they haven't for the last twenty years. But those apples are so good for the eco system ,so many animals are fed ,so many dogs like mine love to chase them as they fall from the trees and simply looking at them is a gift from nature.
Why am I rambling? Could it be that I am trying to find some connection between this insane weather and the perpetual storms in our life? Probably. This cancer does not leave. In fact my husband is the only one I ever met who has a second cancer-not a metastases secondary cancer but an entirely self proclaimed cancer -colon cancer -size of an orange in the sigmoid colon. Could this have been prevented ? Sure ,if only he had a colonoscopy when first ordered years ago.
Am I past the anger ? I don't know because I am actually a little numb. What right do we have to ask for a cure when we were too arrogant to think that we may be impacted ? Isn't the test less intrusive then the treatment?
Am I dreading his surgery ? Yes,and yes and yes again. 15 months already getting him through bladder cancer and now this? But he wants the surgery regardless of how difficult it is .And he gives me mixed messages because I don't think that he is clear of what he wants. On one hand surgery is recommended because the tumor is potentially obstructive but it's not imminent -actually there is no time frame -it could potentially happen in months-tomorrow or longer. So if it provides Vince with more comfort-good-but I don't think so ,I don't think so.
And what if there are additional lymph nodes that the surgeon can't remove? I asked that question to Vincent and he clearly said that he would refuse further treatment ,ie,chemo.Do I believe him? No I don't .
I don't want him to die but mostly I don't want him to die from treatments that just rob him from living. I watched my father and Vincent 's mom die refusing treatment ,I guess because they were ready to go and felt that whatever time they had left was worth while living outside of a cancer clinic.
What I learned so far from these past 15 months is that treatment or no treatment is a prerogative that could only be truthfully dealt with not when cancer is at your doorstep but when it resides within your domain. The freedom to change the mind is an individual right as long as there is breath.
Dying is scary-the unknown.
It's been awhile since I have written .Since then the world's silent turmoil has roared .There was violence,acts of terrorism, name bashing,killng of innocent people,more gun control questions,more just talk,talk,talk without saying anything and for me the realization that all the social action involvements that I have been affiliated with are just a waste a time. Politicians just feed rhetoric and have no guts to stand on their own -false promises -blindness ,unable to think outside of the box.And me,little old me,I am just a little pisher ,powerless and insignificant in the eyes of the BEHOLDERS.
I am done ,done ,done with politics .I am done with politicians who don't think outside of the box and are afraid of being politically incorrect. They could play their games in congress but how dare they put the country and their citizens at risk and create metaphoric like earthquakes.Are we too arrogant to think that there are Isis ,Hamas and all the nothing fearing people in this country . Even in my little Portland town there are cells and terrorist supporters. When 600 Pro Palestinian marched downtown shouting for a Third Intifada, I stood there watching them and felt my heart skip beats in shock. And the community was silent because it would not be politically correct to disagree. After all this is a democratic country -yeh,but when my democracy is jeopardized ,it is no longer a democracy.I knew then that things were brewing and no-one,no-one projected that one day soon their words would turn to weapons.
I love this country so much and I feel like I lost her.America has lost her ideology and I am grieving for her.
Meanwhile my day to day have been day to day.The rain has been brutal ,relentlessly brutal challenging this sun worshipper's frame of mind.
So here I am still taking care of Vincent as the cancer has spread,walking Churchee in the rain,laundry after laundry,son about to start special forces ,and the yapping ofVincent's MSNBC in the background. How am I ? Funny question.
Cancer doesn't discriminate,old young,very old,very young------The faces of cancer.
The voices of cancer wisper in my ears constantly.Someti,es stronger,sometimes softer but always present
What do I absolutely need? Not just principles but self respect .Once I no longer vacillate from one uninvited role to another uninvited imposing role perhaps I'll gain a sense of accomplishment but the scary thing is that I am so far behind from reaching any dreams I had or maybe still have.
I could have ,should have, blah,blah blah but instead angry and lost and alone
I think that when God gave people direction,goal and purpose he skipped over me.I am tired of raising my hand in need to get noticed -no joy in that.
There is a certain smell that older sick people have.It is hard to put into exact words but it just unclean smelling,not always urine but some sort of a repulsing smell easy to gag from.Very potent odor ,maybe the entire ph level is off but I sure noticed that smell on Vincent today.
His clothes were cleaned,he showered ,all the same he smelled sick.Something is moving and growing in him
,
Tell me the truth and I will not judge.Tell me the truth and I will trust.Tell me the truth and enable to also tell the truth and pour my heart out.Tell me the truth because lies lead to other lies and to other lies, a chain of no return, always guarding to make sure that the truth is not found.
Tell me the truth so we could build foundations that are shatter proof. Tell me the truth so we could move forward even we choose to depart .
Release my anguish and anticipation, free my wasted time on doubts, yes ? no? did he? didn't he? Why? ---------------all wasted energy leading to anger and maladies
With these thoughts that popped out of nowhere ,I get how arrogant lies are and I get why I don't forgive them. Lies are a put down ,perhaps lies are told for self preservation but the question is at whose expense?
Another consciousness decision to try to tell only the truth, and to walk away from lies without any doubts------the road to honesty
I know that Vincent's cancer will return this year with a vengeance,I am scared and worried and realize that once more it's going to be so lonely-all by myself without anyone to help me.I so much didn't want to stay in this house and once more feel trapped
Is life ever going to be kinder?Does unto others mean that I could be mean to those who have been mean to me? And there are many insensitive people in my life
I found an ADD support group and will begin meeting with them in October-I hope that they will be helpful
When I raise my hand like a school child and am not called I feel worthless.Inclusive means enabling individuals keep their identity.Ignoring means robbing them of who they are.
I am no longer going to hold my hand up begging to be seen or heard.
I will go where I am accepted as I am.