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Nice and simple meal for me tonight. Jacket potato with beans and cheese. This is a good one for me as it was easy for me to use up my remaining exchanges with (these days it tends to be a struggle!). But of course, you can add whatever you like as a filler depending on your protein allowance…

pkuteens

Looks good! How many exchanges was that then?

confessionsofapku

I have been bad, naughty. Sticking to diet kinda, but skipping formula, over eating, and not checking my levels for almost 2 years. Now after depression and chronic pain I have started to get better and finally going to get my levels checked again. Yay!

Don’t focus on the past, focus on the now! That are you are trying and getting better! We all go through that time when this diet really gets to us and it’s so much easier to not to bother, but I always feel better when I’m back on diet. I always recommend trying to go back on diet, even if it’s for only a month, never give up!

pkuteens

Well said! 👍😊

A great site for info on Diet and PKU - happy reading!

#PKU #PKUteens #Dietitian #dietforlife

High Levels

Ever got to 'that point' when you have reached high levels? When you realise things are too much to cope with? When things have got to the point where everything is bearing down on you watching you, waiting for you to respond or deal with it... and you can't reach it? Dates, numbers, money, work, people, lists of things to do...⏰🎈🎁📅📌 That point you've reached where your computer has that important report waiting to print and it just greys out with (Not Responding) and that annoying green bar whizzing across the screen... and where you suddenly think "did I save this?"...🖥🖨🤔 That moment when you know what needs to be done, but can't process the thought to handle it like it's stuck, waiting for a green light but is stuck with the lights blinking from STOP to GO backwards and forwards... 🚦 Ever had that moment?

cafe--mocha

pkuteens

Grab a ☕️ and come and share your PKU stories with others... Meet people who understand the same things you do - talk it through and come back whenever you want! PKUteens, 24/7/365 #thisisournormal #thisismynormal #PKU #PKUteens

There is no competition for a charity.

Anon.

chloel97

Apologies for my long absence guys…I got preoccupied with uni work and other things… Anyway last night I tried something a little different. I was originally just going to have a plate of vegetables but then my flat mate gave me a cool idea! She said why don’t you make a sort of stir fry dish with noodles; I thought it would be interesting to try out so I did. Although, instead of noodles I used low profin spaghetti, mixed with carrots, a little potato and broccoli. Of course you can add whatever you like in there though! Cook the vegetables and spaghetti separately and then throw it all together in a frying pan with a little bit of sweet chilli sauce to give it some flavour. I thought it was great! And plus it didn’t use that many of my exchanges, only the potato and broccoli were counted for 😊

pkuteens

Looks amazing! Good job! 👍😊

chloel97

I’m having a similar meal tonight to yesterday’s, except I decided to mix the quorn fajitas with some Loprofin pasta instead…perhaps another good meal idea for you guys to consider?😀

chloel97

Major throwback to about 12 years ago when I used to live my life by these books…wasn’t even aware they still existed until now! Anyone else remember these or still use them now?

pkuteens

Lol! I know exactly what you mean!! I remember them like yesterday! Ha ha ha!

pictures-of-luxury

Twitter l Facebook

pkuteens

Morning swimming: good for the soul... After sleep #obvs! But if you can't sleep...!

Define 'normal'.

Anon.

Take a look at @NatBoysonPKU's Tweet:

#pkuteens #pkucooking #lowprotien #pku #pkustudent

PKUteens means That even if you are, Or have been A PKUteen, Then you know what it means, To have been a teen with PKU. So come and share your stories Of your life as a PKUteen, The good, the Bad and the Ugly, As you may or may not understand, What it means To other PKUteens! And don't ever forget, it's all in the genes!

@PKUteens

#pku #pkulife #pkuteens #jeansforgenes

chloel97

Student support...

I apologise for not posting an update in a while guys, but something I’ve been meaning to write about for a few weeks that I’ve found useful here at uni is the Student Wellbeing Centre. It’s a little building based on my campus which is basically there just to support students in anyway possible, whether that be with financial problems or the stress of uni work etc. Anyway, I went for a meeting with these people just to discuss my diet and what exactly it entails. They were kind enough to offer me advice on a few different support systems they have in place, although I said at the moment I was managing fine; personally my diet doesn’t really effect how I work. But it was certainly reassuring to know that if I ever did need help that they’re always there for me. So if any of you guys are thinking about university in the future but are worried about your PKU or whatever, do not fear for there are always people around to support you if you need it😊

pkuteens

Great advice Chloe! I think ours was called student welfare or something! I must admit I never visited them as I felt I may confuse them but I think in this day and age it's more acceptable to discuss these things as it can benefit you better in the longer term such as around exam time when stress can affect eating which in turn could affect concentration, etc... I'm glad they are able to assist with understanding you and it's good to know these people as they can assist with boosting your 'coping mechanisms' where and when required!