polyglottis

disabled | aspiring polyglot

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[spooniestrong]

Signal boosting the hell out of this!!! 💙💙💙

[cwipple]

!!!

[polyglottis]

I’m still looking for people to fill out this survey!! Thank you! :)

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[spooniestrong]

Signal boosting the hell out of this!!! 💙💙💙

[cwipple]

!!!

[polyglottis]

I’m still looking for people to fill out this survey!! Thank you! :)

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[spooniestrong]

Signal boosting the hell out of this!!! 💙💙💙

[polyglottis]

any signal boosts of this would be super appreciated!!

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[spooniestrong]

Signal boosting the hell out of this!!! 💙💙💙

[polyglottis]

any signal boosts of this would be super appreciated!!

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[spooniestrong]

Signal boosting the hell out of this!!! 💙💙💙

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[spooniestrong]

Signal boosting the hell out of this!!! 💙💙💙

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

Hey all,

I’ve received a ton of messages regarding my research project, so thanks to all those who boosted the post!

To answer some questions:

I should have been more clear in the initial call for interviewees, my apologies: qualified interviewees have at least one chronic physical illness, and have seen at least one physician about this chronic condition (even if you have not been diagnosed officially, as long as you have seen a healthcare professional about the condition). 

Interviews are verbal, and can be conducted over phone or videochat (FaceTime, Skype, etc). 

Qualified interviewees were diagnosed or sought out a diagnosis with a chronic physical condition between the ages of 13 and 18, and are now above the age of 18.

Some interviewees have inquired about rescheduling due to health conditions, and I just wanted to say that I also have a chronic illness and am very understanding! Please just let me know if you need to reschedule, I totally get it.

If others have more questions, please let me know!

[polyglottis]

Also, if you’d like to get involved in another way with this project, see if you qualify to take the survey I talk about in this post!

[polyglottis]

quick survey about chronic illness diagnosis!

Hey all,

As part of my research, I’m interested in understanding people’s healthcare journeys as they sought out a diagnosis for a chronic physical illness.

If you are a self-identifying woman and you received a diagnosis of a chronic physical illness between the ages of 14 and 19, you qualify!

To help, please fill out this google form!

Whether or not you fit these requirements, a signal boost is always appreciated. This preliminary research is being done in the hopes that it will open up more opportunities for research in the chronic illness space, specifically for adolescents and young adults who are chronically ill!

Any questions? Reach out to me on this blog :)

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

Hey all,

I’ve received a ton of messages regarding my research project, so thanks to all those who boosted the post!

To answer some questions:

I should have been more clear in the initial call for interviewees, my apologies: qualified interviewees have at least one chronic physical illness, and have seen at least one physician about this chronic condition (even if you have not been diagnosed officially, as long as you have seen a healthcare professional about the condition). 

Interviews are verbal, and can be conducted over phone or videochat (FaceTime, Skype, etc). 

Qualified interviewees were diagnosed or sought out a diagnosis with a chronic physical condition between the ages of 13 and 18, and are now above the age of 18.

Some interviewees have inquired about rescheduling due to health conditions, and I just wanted to say that I also have a chronic illness and am very understanding! Please just let me know if you need to reschedule, I totally get it.

If others have more questions, please let me know!

[polyglottis]

Keep them coming! I’ve been having some great interviews so far! Please signal boost if you can :)

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

Hey all,

I’ve received a ton of messages regarding my research project, so thanks to all those who boosted the post!

To answer some questions:

I should have been more clear in the initial call for interviewees, my apologies: qualified interviewees have at least one chronic physical illness, and have seen at least one physician about this chronic condition (even if you have not been diagnosed officially, as long as you have seen a healthcare professional about the condition). 

Interviews are verbal, and can be conducted over phone or videochat (FaceTime, Skype, etc). 

Qualified interviewees were diagnosed or sought out a diagnosis with a chronic physical condition between the ages of 13 and 18, and are now above the age of 18.

Some interviewees have inquired about rescheduling due to health conditions, and I just wanted to say that I also have a chronic illness and am very understanding! Please just let me know if you need to reschedule, I totally get it.

If others have more questions, please let me know!

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

Hey all,

I’ve received a ton of messages regarding my research project, so thanks to all those who boosted the post!

To answer some questions:

I should have been more clear in the initial call for interviewees, my apologies: qualified interviewees have at least one chronic physical illness, and have seen at least one physician about this chronic condition (even if you have not been diagnosed officially, as long as you have seen a healthcare professional about the condition). 

Interviews are verbal, and can be conducted over phone or videochat (FaceTime, Skype, etc). 

Qualified interviewees were diagnosed or sought out a diagnosis with a chronic physical condition between the ages of 13 and 18, and are now above the age of 18.

Some interviewees have inquired about rescheduling due to health conditions, and I just wanted to say that I also have a chronic illness and am very understanding! Please just let me know if you need to reschedule, I totally get it.

If others have more questions, please let me know!

[polyglottis]

for your survey, does a chronic mental illness count? I have chronic depression/anxiety, like the real shit, & i was diagnosed as a teenager.

hi there, thanks for your interest!

this project is limited to chronic physical illnesses for right now, but as the research continues, i will update on here if we expand to include mental illnesses as well!

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

Hey all, I’m still looking for people to be involved in this! If interested, please fill out the google form, and if you have any questions please let me know in my inbox on this blog!! Thanks :)

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

Were you diagnosed with a chronic illness between the ages of 13 and 18? Are you willing to participate in a one hour interview for a research project focusing on adolescent diagnosis of chronic illness?

Please be assured, no names will be collected, only initials. This research is intended to be used in projects focused on improving the experience of diagnosis in adolescents, and candid and honest feedback on your own process is welcome and appreciated.

If you’re at all interested, please fill out this google form and reblog to spread the word! I’m interested in hearing a variety of perspectives!

Thanks!

[polyglottis]

disabled people aren’t burdens

parents aren’t brave for raising their disabled children

teachers aren’t brave for teaching them

the people who are brave are those, disabled and abled, who advocate for the millions silenced by ableism in our society

[enjolrasjosette]

No, the people who are brave are the disabled. Why are we bringing ables into a disability post in the first place? There’s nothing brave about an able standing up for someone who’s disabled. That should be common sense. The disabled are the ones who are suffering. Being abused, ignored, and killed. Disabled people have to live in a world where the majority of people think we’re better off dead. So I’m sorry, but ables don’t get respect for doing something they should already be doing.

[cryptid-crisis]

Very true! I must have reblogged this without seeing that. Able advocates are doing what they should be doing and that’s good, but they aren’t brave. They don’t have to face all of the shit and hate and obstacles we deal with. And also you don’t have to advocate to be brave. Some of us just don’t have the energy for that.

Sorry if this reblog was problematic, my brain fog must have glossed over all that :c

[enjolrasjosette]

I almost missed it too, honestly. It’s sneaky hiding there. And exactly what you said. We are brave for existing. We don’t *need* to advocate to be brave. Whether or not we advocate we all face the struggles of being disabled and some of us can’t. But I like to think calling out even the little things like this contribute.

[polyglottis]

As the OP (and a disabled individual), I have to say that I respectfully disagree with one of your statements. While I agree that being disabled in itself is a test of bravery, and we must face obstacles every day, I know that in a world where the voices of disabled people are systemically silenced, anyone who advocates, abled or disabled, is going against the grain and putting themselves out there for a group that is so often marginalized. While I agree that abled people advocating for disabled people should be commonplace, the fact is that it isn’t, so we need to appreciate those who do put in the effort. Also, I know that some of us can’t advocate for ourselves or others in the community, and that doesn’t make any of us less brave, that’s not what I meant. I have just been hearing too many “heroic” stories of parents who haven’t even done anything particularly spectacular, but are looking for extra attention because they raised a disabled child, and I am tired of feeling like a burden to my parents, teachers, and administrators. I didn’t mean to be “sneaky” or hide anything, this is just my thought on the matter.

[enjolrasjosette]

Ables will never suffer the way we do. They will not be criticized, killed, attacked the way we are, even if they advocate for us. There’s nothing brave about it. A black person can get killed for advocating against racism. A white person won’t. Just like a disabled person can get killed and an able won’t. Sorry not sorry but I don’t agree with your way of thinking on this.

[polyglottis]

I agree, abled people don’t face the same obstacles or discrimination that we do on a daily basis, and I was never trying to insinuate that they do. I was just saying that those who actively advocate for our rights and wellbeing are more brave than those who idolize themselves for “putting up” with a disabled individual in their family, class, or workplace. This post wasn’t meant to equate abled allies to disabled individuals, just to appreciate those, abled and disabled, who advocate and don’t view our community as a burden on our families and on society as a whole.

[polyglottis]

disabled people aren’t burdens

parents aren’t brave for raising their disabled children

teachers aren’t brave for teaching them

the people who are brave are those, disabled and abled, who advocate for the millions silenced by ableism in our society

[catastrophiccharlie-deactivated]

I read this article on social media about a bunch of kindergarten students who wanted to learn sign language so that they could better understand one of their friends. And the title was “Most Kids Wouldn’t Make This Kind of Sacrifice.”

What were they sacrificing???? Why are accomodations and decent, normal human events seen as sacrifices and great deeds when preformed by able bodied people for disabled people?

Please stop telling me how much of a burden on you my existence is.