professional daydreamer

Hi, I'm Lucy, and I am chronically ill. i have Ehlers Danlos, Dysautonomia (POTS), Chiari Malformation, and some other illness stuff currently in the process of being diagnosed. This tumblr is mostly for illness/disability stuff, but also sometimes random things I like. I love talking to people so message me or ask me questions! :) * **************************** **************************** ****************************

[professionaldaydreamer2]

tips for finding mast cell disease/MCAD doctor?

Hi guys. So i’m doing rly badly health wise, and it’s strongly suspected that i have some sort of mast cell disease (MCD? MCAD? Mastocytosis? I am not classified yet) and i need help getting a diagnosis and finding a good specialist. 

1. Tips for finding a specialist, and/or recommendations of doctors in the US? (Or tips on any doctors/clinics to avoid!)

2. Diagnostic tests i should my primary care doctor to run in the meantime?  (specialist appt’s can take ages of waiting and im hoping to speed up the process) Oh, and how reliable/unreliable are the various blood and urine tests, diagnostically?

Any tips or other advice would be really really appreciated. Thanks!

[cayennepeper]

chrome extensions for disabilities masterpost

I have seen a lot of posts on here talking about individual extensions for chrome to help people, but I haven’t seen a place where they’re compiled together. So here you are! font/text

no caps - Makes everything lower case

Open Dyslexic: changes the font to Open Dyslexic and makes it larger. Personal favourite.

Dyslexie: changes the font to dyslexie and allows change to font size and colour (blue). Can be turned off. (Doesn’t seem to work on facebook)

Font Changer: Allows you to change the font on specific website or on everything using a Google Font. I believe you can also upload your own, if there’s a specific font you need.

BeeLine Reader: Uses a gradient so your eye follows along one line to the next

overlays/colour change

Color Overlay - Irlen Filter for Chromebook: Puts a coloured overlay over the screen. can choose colour and opacity. 

Sunglasses: Tints the screen grey to reduce contrast

Desaturate: Removes all colour and makes everything a greyscale

High Contrast: Change contrast or invert colour scheme

Deluminate: Similar to High Contrast, but tries to keep photos in tact

G.lux: Makes the colour of the display change depending on the time of day (also cuts down on blue light so it’s easier to fall asleep)

reduce visual distraction

Readability: Can change things such as margins, colours, etc… as well as reduce visual business

Ad Block Plus: blocks ads. What more needs to be said?

FlashControl: Stops flash animations running by themselves

Hide GIFS: Allows you to keep GIFS from displaying

Text Mode: Loads pages in black/white, covers images, with text only.

audio

SpeakIt!: Reads small section of highlighted text aloud

Chrome Speak: Reads small section of highlighted text aloud

Announcify: Reads full web pages. Warning: may stop in the middle of text or not read for the full thing.

[professionaldaydreamer2]

I've gotten some messages lately from tumblr friends checking in and asking if I am okay, since I haven't been around. And seriously, i don't care if this is silly or whatever, i am honestly getting emotional over it. I know it's a little thing probably, but my irl life is not one where there are people checking in like that or missing my absences. You are such lovely people, and it means so much to me that you asked. I don't want to post a public update because a lot of it's new and it still feels really raw to me, but I am working on responses to you when i have the spoons, and thank you so so much for asking. ily.

[9090432-deactivated20140709]

[crowcrow]

ON TUMBLR WE ARE REQUIRED TO POST THIS EVERY YEAR.

(i literally waited till midnight to post this)

[marauders4evr]

So, I’m thinking about making a shirt…

Would anyone else be interested in said shirt?

[paprikamom-deactivated20160112]

are some of the profits going to go to a breast cancer charity? i haven’t seen that mentioned.

[marauders4evr]

Yes, indeed! I will personally donate 1/2 of my royalties (so roughly $2.50 per shirt) to the Breast Cancer research foundation!

You can find the shirt here:

http://www.zazzle.com/dont_save_the_tatas_save_the_people_t_shirt-235115872663336979

[professionaldaydreamer2]

that moment when you can't blog about your life because even other disabled people will turn you into inspiration porn

[springawakeningblog]

Promotional trailer for Deaf West Theatre’s production of Spring Awakening in Los Angeles, CA.

[missingspoons]

SOMEONE GO WITH ME TO THIS WHEN I’M IN LA PLEASE PLEASE PLEASE

[missingspoons]

OFFICIALLY GOING I AM SO EXCITED

[professionaldaydreamer2]

I have made a couple cool friends on one of my fandoms accounts and we talk a lot and its getting to the point where they want to get to know me better ie ask personl questions and what the fuck am I supposed to SAY "youre awesome but I dont wanna tell you anything about my personal life AT ALL because all roads lead to pity and awkwardness"

[neuroatypically-speaking]

Reblog if you would read a post-apocalyptic comic about disabled people

Seriously. Because I have an idea for one, and I want to see whether I can make it work. I don’t know if I can find an artist who’d be interested in collaborating on it, but if I can, I have some ideas on how to fund it. I just want to see enough people would be interested in it.

Surely I can’t be the only one who’s tired of the idea that the apocalypse would wipe out all disabled people because we couldn’t possibly survive. 

[tea-and-codeine]

I would probably read this, with a few caveats:

- only if there are no disabilities getting ‘fixed’ so that to all intents and purposes the person now functions exactly like an abled person (John only has one leg, but we gave him a robo-leg that functions exactly like a regular leg so now he can do everything his friends can and it’s hardly ever even mentioned!)

- no people ‘compensating’ for their disabilities with magical abilities which essentially negate their difficulties (Sally is deaf, but she can psychically sense all the sound around her so she doesn’t actually miss anything or need to lip-read or sign or do anything actual deaf people do!)

- some acknowledgement that for at least some disabilities, you ARE going to be more at risk in a dangerous situation. Doesn’t mean everyone has to insta-die, obviously, but I’d feel weird about something that didn’t even acknowledge that, for example, mobility problems are going to make it harder to run away from zombies; I’d like to read about how people deal with that and what strategies they use to keep themselves safe, rather than something which just ignores it.

anyway, all of that probably sounds really negative but I don’t mean to because actually that comic sounds awesome! and it’s mostly a personal preference kind of deal, because I know a lot of people would be happy to see disabled characters kicking ass and taking names (or just being represented at all), it’s just that speaking solely for myself I’m a bit tired of the whole thing where disabled characters aren’t actually really affected by their disability; it makes it much harder for me to relate to them, because my own disability is a pain in the fucking butt. (also, I realise I’ve focused mostly on physical disabilities in this post; I am aware there are other kinds)

I’d LOVE to see a character (or several!) who is disabled and actually has problems because of it but survives and copes anyway and gets to be a fully rounded, complex, interesting character rather than a heartstring-tugging plot device, or a badass Action Girl/Guy who’s soooo inspiring and doesn’t let it hold them back so what’s your excuse??? That’d be amazing.

[professionaldaydreamer2]

THE COMMENTARY YESSSS THANK YOU. I acually didnt reblog it before bc i was like "ehhh but odds are it might have these shitty tropes." So you are awesome for writing it all out! (And i can assure you it's not just your personal preference, loads of people hate these things, you are in good company haha :)

[liftinggggggg-deactivated201411]

don’t tag things like :

trigger///

trigger2525

tw: trigger

tw trigger

trigger——

tag things like:

trigger /

trigger 4

trigger tw

trigger -

the thing you’re tagging must be the first thing in the tags and there must be a space after it none of the proper tags above will be bookmarked on your blog excess numbers and slashes will slow down xkit

[yasminwithane]

Friends Season 1 Collage

[professionaldaydreamer2]

*delightedly googles my abnormal blood test result*

[professionaldaydreamer2]

I honestly worry about people who argue that the reason a shitty disability trope is not offensive, is because the disabled character is perfectly happy to be living in an offensive trope. ("if you really respected disabled people, you'd respect [character]'s happiness!") Like Time to log out of your fandom account ok?? Abled writers are making their choices. They are not real.

[dont-just-go-pink]

I saw the first 'Save The Tatas' shirt today.

Maybe we can try to sexualize our awarenesses to get more people to notice them? I don’t know. What do you guys think?

Save the Autoimmune Systems! Oh my gosh; so sexy! Save the Spinal Cords! Much hot. Very sexy. Wow.

Etc.

Hmm…it could work.

Or, you know, we could also NOT sexualize real diseases, disabilities, and other health related issues that affect real people, real lives, and not just organs that are sexualized by an ignorant society. Yes, I like this option.

[buzzfeed]

HER NAME IS BOOBOO

[authorsarahdessen]

OH my goodness. 

[versaceslut]

[professionaldaydreamer2]

Maybe I will start talking to abled people in kindergartener voice and pass it off as "I just didn't know if you'd understand me! You'reso strange and different"