THE STORIES @rarelives-blog - Tumblr Blog

Marie suffers from Osteogenesis Imperfecta, even a slight bump is enough to provoke her a fracture. Today we have gone to the hospital with her to check a suspected fracture.

Marie's mother.

Marie, 17 years old, suffering from Osteogenesis Imperfecta.

Maggie is good and empathetic by nature, also because of her syndrome. If she sees someone arguing with someone else or if she sees someone sad, she gets sad in turn. Otherwise she is always positive and happy. If everyone were like her, it would be a better world.

Maggie's mother.

Maggie, 15 years old, suffering from William Syndrome.

I did this tattoo last year a few hours after my dog had died. It was the only living being that could make me happy and make me feel relaxed when I came back home from medical treatment completely destroyed.

Nicklas, 22 years old, suffering from Pompe Disease.

Julia is mentally disabled due to tuberous sclerosis, but she has a very strong desire to be able to manage on her own during daily life.

Julia's mother

Julia. 22 years old. Suffering from Tuberous Sclerosis.

I am a patient suffering from Fabry disease and a nurse at the same time. It gives me a lot of satisfaction to help others and I like to treat patients as I would like to be treated by my self.

Christina, 51 years old, suffering from Fabry disease.

When we did not suspect Charline disease yet, I got pregnant with twins and we were lucky because now our home is always lively and Charline has always someone to play with!

Charline’s mother.

Bièvres. France. Charline, 4 years old, suffering from Rett syndrome.

"This is first of all a school of acceptance. We have students affected by any kind of pathology, students from any social and ethnic background. Diversity, here, is our main source of wealth."

Marie, Luis' teacher.