A lot of people have asked me about the green wrist band I wear pretty much all of the time. I usually answer “It’s for the foundation This Star Won’t Go Out, which is for kids with childhood cancer” because I don’t have the time to say more, but that is only a very small part of it.
Yes, the bracelet is for the foundation This Star Won’t Go Out, a nonprofit organization dedicated to helping families ease the burden of medical bills, transportation costs, and any of the other expenses they might have so that they can spend their time and energy on what’s important: loving and caring for their child with cancer. What I love about this foundation is how specific it is, and its goal. They help a very specific problem so that families can, well, focus on being families, and that’s beautiful.
But the main reason why I wear this bracelet is what it represents. This foundation was created to memorialize Esther Earl,a wonderful young woman who died from thyroid cancer at the age of sixteen. Esther was a quirky, nerdy, Harry Potter obsessed (of course I don’t mean that in a negative way!) girl whose wisdom impressed me with every word she said and every dollar she helped to raise for charities like the Harry Potter Alliance. While she was sick, she worked with her chapter of the Harry Potter Alliance to raise money, wrote stories and wrote in her journal (which has since been published), and created videos on YouTube with the channel name CrazyCrayon.
The common thing to say about kids with cancer is that they fought with unrelenting strength and constantly remained positive up until her final days, but this was not Esther. Esther was strong, but she was also tired and frustrated. She tried to stay positive, but sometimes she cried, sometimes she was scared, and sometimes she just hated cancer. Much of the time her bouncy personality overshadowed her physical fatigue, but sometimes it did not, and her illness took over. But through all of this, she was full of love. Full of love for her family, he friends, the nerdfighter community… full of love for writing and Harry Potter, and the little bit of life she had left.
My Esther bracelet, as us nerdfighters call them, stands as a reminder for me. It reminds me that it’s okay to break down in difficult and painful situations, that crying, screaming, and falling apart is okay sometimes, no one worthy of your time and love will expect you to always remain stoic. It reminds me that through those times, I can still find joy. I can still have pockets of time that I can have fun or enjoy my life, when I can breathe during a time of constant drowning.
Most of all, it reminds me of the love my friends and family have for me, and the love I have for them. It reminds me how important love is. It reminds me to tell the people that I love that I love them, because being loved is the best thing in this world.
To say that Esther inspires me isn’t entirely correct. Esther isn’t my inspiration, she’s my mascot, my life coach. She pushes me to be less hard on myself, to enjoy my good days, and to love fiercely. This green bracelet on my wrist reminds me of all of that.
And a lot for one little green bracelet to accomplish.
You can find the Esther bracelet at dftba.com and learn more about the foundation at tswgo.org.